Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

Continue reading “Rare Disease Day Photo Challenge”

Passport Photo Apps

This is a video in which I demonstrate a couple of apps that I’ve used recently to take passport sized photos. I used these to take photos of Mum for a couple of things she needed to apply for – I couldn’t use them on myself, as I can’t see well enough to do a selfie, and there was nobody handy to take a shot of me. So I did use a photo booth for myself, struggling with a monocular to see the screen in there. But for Mum, who is blind, it was worth trying a couple of apps to see what worked.

So the first is Passport Photo, which lets you save an electronic copy of a correctly-sizd photo for sending to someone else or uploading to a website. And the other is Passport & ID Photo, where (for a small fee) the app’s developer will print and cut down the photos and send them back for you. He’ll also check your photo first and, if it’s not quite right, you can have another go at taking them at no extra charge. Both apps worked well and gave us the results we wanted, and in this video you’ll see how they work.

This is not sponsored or endorsed by the app makers, and the opinions expressed are entirely my own. Other passport photo apps are also available, these are just the two I happened to find first. I hope you enjoy it!