Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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Treats, Terror, Tea & Theatre

Time for another catch-up on what I’ve been doing lately, and with this past week including Halloween, it was only fitting that I did a couple more things to celebrate the occasion, following on from the Ghost Bus Tour I did the previous week But I’ve also been to a couple of other things too that aren’t related to it. All in all, I’ve been entertained at a museum, the cinema and the theatre, and tried another dining experience that’s new to me. So I’ve had a nice bit of variety, and I hope you enjoy reading about it.

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Warriors & Wizards, Drones & Dinners, Crafts & Chocolate

This past week has been a very busy one, as I’ve been to an audio described exhibition, an audio described theatre show, a football field for a Youtube project, a new social group, a craft show and a chocolate show. So Iin this post I want to summarise it all and bring my activities up to date.

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