Update (March 1st) – I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂
Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.
1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.
There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.
This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.
As a follow-up to my School Days video last month, I thought I’d also write about how I got a job after graduating from university.
My degree was in accounting and finance (in which I got a 2:1), so naturally I was looking for work in that field. It was the area that interested me most, and my degree would allow me to skip some of the exams of the official accounting bodies, which would be a great help.
But I was also open to other ideas and possibilities as well, if any came up. I knew that just having a degree in itself would be useful, even if it wasn’t directly related to the job I eventually went for. So I didn’t feel I wanted to restrict myself too much, just in case.
There’s a new Visually Impaired Persons Tag doing the rounds at the moment, initiated by My Blurred World and Life of a Blind Girl, and Fashioneyesta has also responded to it at the time of writing. They’re all superb posts by superb bloggers, so they’re worth checking out. Although I’ve not been tagged myself, I’m going to jump on the bandwagon and join in anyway, as I do think they’re great questions. So hopefully nobody will mind. 🙂
Today I wanted to look back at how my confidence has developed over the years, after a difficult start. At home it’s never been a problem – my parents are both visually impaired, so they and my relatives have always been understanding and supportive from the outset. But away from the family, it hasn’t always been as easy. I’ve also made a video about my school days which relates closely to this post.
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