Lockdown Favourites – Weeks 13-14

Miraculously we’ve made it to the halfway point in the year, although admittedly it feels like a lot more time has passed. Months effectively haven’t existed for a little while now, with all the weeks just blurring into one continuous sequence. If weren’t for the titles of these posts, I would have lost complete track of how much time had passed since lockdown started!

So I hope you’re all continuing to keep safe and well. Our lockdown measures here in England are going to be eased significantly further from next week, and the government have ended their daily briefings, but as the virus is still in circulation we all have to remain very cautious. There will inevitably be local outbreaks, which may lead to lockdowns of certain towns and cities as and when necessary, but we just have to hope the entire country won’t be shut down again. The most vulnerable people who are still shielding will have to remain indoors until early August, when they can finally go out again if they feel ready to do so.

Regular readers will know that my mother and I have been voluntarily shielding, even though we’re not explicitly required to do so, for my mother’s safety in particular. The last time I went out, to do a little bit of shopping to top-up an online delivery, was just over 7 weeks ago. And that’s only the second such outing I’ve had over the past 14 weeks. Mum hasn’t been out at all since lockdown began.

However, by the time you read this, we will both have been out together to attend my Uncle’s funeral with my Aunt, so I’ll let you know how that went in my next post. I’m also starting to feel that the time is right to venture out for local walks soon for some much-needed exercise, as it does seem to be the case that being outdoors, socially distanced from others, is relatively safe. But I still don’t intend to use public transport for the time being, even though there are safety measures in place for train travel, as the risks still feel too great and there isn’t anywhere that I need to go. Some museums are reopening, but I’d rather continue to wait before I visit them again, and support them online in the meantime.

So that’s where I’m at currently. But now let’s look back at the past couple of weeks in my latest post and video, to see what’s kept me occupied and entertained, none of it sponsored or gifted as usual. I hope you enjoy!

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Lockdown Favourites – Weeks 11-12

Hey there, hope you’re all continuing to keep safe and well! Here in the UK lockdown has been eased further, including the re-opening of non-essential shops, the compulsory use of face coverings on public transport, and the partial re-opening of schools. So some small sense of normality is returning, albeit with lots of distancing and hygiene measures in place.

I’m still happy staying at home though, because I have no compelling reason to go out and my priority is still protecting Mum by not bringing the virus home. Our shopping’s being delivered every week, and despite the new rules public transport is still a no-go, as it’s only for essential journeys and distancing is much harder on a Tube train or bus. So there’s little incentive to go anywhere. Mum and I will be leaving the house to attend my uncle’s funeral with my aunt in a couple of week’s time, and I’m starting to feel more open to having a socially distanced outdoor meeting or picnic with a friend or two, as that appears to be relatively safe having been aware of others who have done it. But that’s about it.

In any case, I’ve been keeping myself very busy lately. I’ve actually been using Zoom for the first time recently, to talk to workmates, some friends and other people I’ll mention a bit later in this post. It’s strange how I didn’t get asked to do any video calls for the first 2 months of lockdown, then had one last month, followed by loads in June, about half of which are on Zoom. It’ll probably go quiet again in July!

And I’m also busy on my blog too. Hopefully you’ve already seen my Def Leppard – London To Vegas Unboxing, which I produced after they very kindly set me a copy of the box set to review. But if you haven’t seen it yet, do go and check it out. It’s the first time I’ve ever been sent a product to review, and I had no hesitation in accepting the offer as it’s from one of my favourite bands! I also have some other blog posts I’m working on too, by which I mean a couple of big series that should guarantee me regular posts over the summer and beyond. So I’m in no danger of running out of content just yet!

And of course my Favourites posts will continue, now on a fortnightly basis for the time being, as that frees up my time much more. So here’s my latest recap, with plenty to cover, including disability events & discussions, theatre, Blu-rays, comedy, music and more. So let’s get on with it, and I hope you enjoy my latest post and video!

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Lockdown Favourites – Week 3

Happy Easter! I hope you’re all staying safe and well as best you can, and that you’ve had a nice break over this long weekend, with plenty of chocolate goodies or whatever you like to indulge on. I think we’ve earned a few treats at the moment. Or if you’re a key worker – including employees and volunteers in the health service, social care, retail sectors and local authorities, among many others – then thank you! You deserve even more special treats than the rest of us!

Following on from my post last week, here’s my next roundup of the ways I’ve been staying occupied and entertained over the past 7 days, including a video as usual. So I hope you enjoy looking through it. And don’t forget that I also have a huge list of Lockdown Resources that I’m updating regularly, including information, support and entertainment links, that you can check out as well.

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February & March 2020 Favourites

Well, what a year this has turned out to be, huh? Perhaps we should just rename it 2019B or 2019.5 and start 2020 again next January. It’s like we’ve had a faulty software update in the calendar that needs serious debugging and virus-checking before it’s rolled out again.

Obviously I’m not dismissing the tragic side of things by saying that. My heart goes out to everybody who has lost loved ones or been severely affected in some other way, and I sincerely hope you all stay safe and well as best you can. Please follow the guidelines on hygiene, distancing, isolation, etc, because it really will save many lives. It will take a few weeks at least before we start seeing the impact of such measures, but they will help, and we will get through this. Huge thanks to all our incredible health and care staff, as well as the many other people providing essential products and services.

Beyond this introduction, I have no desire or intent to write posts about the situation, as it’s not nice and there’s enough about it online already. However, I have created a Lockdown Resources page, where you’ll find many links for information, advice and support, plus many ways to stay connected and entertained at home, which I hope you find useful.

Clearly this is going to change what I’m able to do and post about for a while. So in this post and video I want to wrap up my recent museum and theatre visits, as well as disability related updates and TV favourites, for both February and March. That way, I can move forward with a clean slate as I settle into a temporary new routine.

All of which means there’s a fair amount to cover here, making it a good distraction from everything that’s going on. I haven’t been sponsored or gifted by anyone to mention them, and all opinions are my own. So I hope you enjoy!

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The Reality of Aniridia & Nystagmus – Guest Post by Glen

I’m delighted to be featured in Ami’s Undercover Superhero blog, as part of her excellent series raising awareness of different disabilities! Check out my guest post about how I live with aniridia & nystagmus, and have a look through the other posts in the series too. Thank you for featuring me Ami! 🙂

Undercover Superhero

Glen’s guest post is the 47th post in the segment on my blog, called “The Reality Of…” which gives others the ability to share their story and raise awareness of the disabilities, illnesses, impairments and invisible illnesses that they have.

Meet Glen!

Hi! My name is Glen, I’m 36 years old, and I’ve been living in London for the past 3 years since relocating from Devon. I’ve continued to provide IT support for my Devon employer as a homeworker, while in my spare time I enjoy musicals, comedies, museums, eating out, walking, travelling, socialising and blogging.

Glen has his side to the camera, he is wearing dark sunglasses and has a pair of white earphones in his ears. A large church/cathedral is in the background. People who are walking past are very blurred.

My Story

I was born with the genetic condition, Aniridia, which means I don’t have irises (the coloured circles) in my eyes. In my case it’s congenital, because it was inherited from my mother. But for some the condition can be sporadic, meaning the particular gene (PAX6) gets corrupted purely by chance. It affects…

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2019 Review

2019 was a bit of a rollercoaster year for me, but it worked out well overall. I was very busy and active for the first half, then there was a dip during the summer with various things that came up all at once, before the final few months that gave me a chance to recharge and get back to normal, while also throwing in one or two surprises.

So as is traditional, I thought I’d quickly go back over the year, to recap on the many things that happened. Click on the headings for each month to see the Favourites post in each case, while there are links to more detailed review posts throughout the text as well. I hope you enjoy looking back at it all with me.

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Sight Village 2019

Last week I had a great time at the Sight Village South East event in Kensington Town Hall. It’s an annual exhibition showcasing the latest technology, products and services for blind and visually impaired people, and is one of a few Sight Village events held around the UK by Queen Alexandra College every year.

I’ve attended previously in 2016 & 2017, so having missed last year’s event it felt like a good idea to go back this time. But this occasion was slightly different, because although I did have a little look around, I actually spent most of the day working on one of the stands. So it was very interesting to be on the other side of the desk, as it were, talking to curious visitors rather than being one of them myself. So I just thought I’d give you a quick rundown of the day and who the exhibitors were.

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September 2019 Favourites

Those of you who have been following along recently will know that I had some issues in August that stopped me going out much. I was still able to do a July & August Favourites post, but the August part of that wasn’t very substantial.

September has continued to be rather mixed, as I’m still having an issue with my feet, so I didn’t get out too often. I think it might be hives of some sort, but the antihistamines are keeping them right down, so they’re not getting worse and are tolerable. It means I’m able to get around more easily, and also go out and about if I don’t overdo it. I’ve got a dermatologist appointment on 2nd November (which was thankfully moved forward from the original date of the 30th), so hopefully we can start sorting it out then.

And for those wondering about my Personal Independence Payments claim, no decision has come through yet. But I had 3 text messages to say they had the report from my face-to-face assessment, and then 2 letters in the post to say they have all the information they need to make a decision. So I just have to wait and see now.

Despite all of that, however, I’ve still ended up with a fair number of things to write about for September. I did manage to go out over the course of a weekend, when my foot was behaving, plus I’ve got some exciting videos and articles to share that I’ve been involved with, and there are some TV shows and music releases I want to mention. And as usual, no products in this post are gifted or sponsored, and all opinions are my own. So I apologise that there won’t be much in the way of London-specific stuff this month, but I still hope you enjoy this post and video as always.

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What Is Normal? (Documentary)

I still find it very humbling and flattering that so many people have taken an interest in my adventures over the past few years, whether it be reading my blog, watching my videos, or seeing me speak at events. I’m very grateful to everyone for the support and encouragement, and I wouldn’t be doing this if nobody cared, so thank you.

I never imagined that I’d have a documentary made about me though. Yet that’s exactly what happened for the first time a few months ago. It was an exciting experience and I’m delighted with how it turned out.

I’ve held it back until now for various reasons. Firstly, whilst I have permission to post it regardless, I wanted to give a bit of space for its creators and sponsors, including a major charity, to publish it first if they so wished. But I also had a few things distracting me over the summer too, as regular followers will know, which has further delayed it.

But now’s a good time to release it, as it ties in nicely with the recent publication of my Aniridia Network Conference talk – Growing In Confidence With Aniridia – which  was filmed shortly after the documentary was completed. Soon after that I was also in a second documentary – See Differently by Yiwen Feng – which featured myself and others. You can find out more about my speech and that other film in my June Favourites. I was certainly getting my 15 minutes of fame around that time!

In this post, therefore, I want to share my first ever documentary with you, and give a behind-the-scenes insight into how it all came together. I hope you enjoy it, and please do share the film around on social media.

So without any further ado, I present my documentary debut – What Is Normal?

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June 2019 Favourites

We’ve reached the halfway point in the year, and summer is finally blessing us with decent weather. And I’ve had a very busy month!

Firstly, there have been some disability related developments, most of them positive. In particular, I’ve spoken at a conference, been a guest on a podcast, and I was filmed for another documentary. So my visual impairment led to a few great opportunities in quick succession, I’m happy to say.

On the downside, I’ve finally received the call-up letter to switch from Disability Living Allowance (DLA) to Personal Independence Payments (PIP). This basically means I have to fill out a huge form about how my disability affects me, and then have a face-to-face assessment with a health professional, so the government can decide if I’m entitled to benefit payments. It sounds relatively simple when worded like that, but most disabled people will tell you it’s anything but. So that’s going to be on my mind a lot over the next couple of months at least, and I’m not looking forward to the process. But I’ll let you know how it goes at a later date. I’m not going to bore you with a rant about it in this post!

Thankfully, apart from that, I’ve been able to enjoy the month in many other ways. I went on a lovely weekend break with my girlfriend, I’ve been out in London for more exhibitions and walks, my girlfriend and I enjoyed a new film at the cinema, and I’ve enjoyed new TV shows and music releases at home. So there’s plenty to get through. As always, I’m not sponsored by anyone mentioned here, I’m just sharing these things because I enjoyed them. And I hope you enjoy this month’s post and video!

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