April 2024 Favourites

Hey there, hope you’re all doing well. I’m good, although like all disabled people in the UK I feel great unease over the government’s proposed changes to our benefits. My PIP review still hasn’t been dealt with after 9 months as it is. I’m not going to rant about it here though – I’ve posted a brief thread and shared several other posts on my Twitter/X page if you want a wider sense of people’s reactions. But please do read the proposals and respond to the consultation if you can (by 22nd July), as it’s vitally important to have our voices heard at this early stage. Same goes for the separate consultation about fit notes (until 8th July) too.

But anyway, on to much nicer things, and there’s plenty that I’ve enjoyed during this past month, including a couple of exhibitions, a West End musical, a theatre workshop, stand-up gigs and other comedy shows. One of the exhibitions was a press invite for my journalist friend Emily, and I’m due to be paid for the workshop I took part in, but nothing is sponsored to be featured here and all opinions are my own as usual.

So let’s crack on with this month’s post and video, and I hope you enjoy!

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Paws On The Wharf

It goes without saying really, but guide dogs are beautiful, incredible and vitally important companions to many people with sight loss. And right now there’s a sculpture trail in London dedicated to these life-changing and life-saving animals. This post isn’t a sponsored ad for it, but it’s something I think is well worth exploring if you’re in the capital.

Paws On The Wharf has been organised by the Guide Dogs charity in association with Wild In Art (who were also behind Morph’s Epic Art Adventure & Walking With The Snowman that I saw last year).

It features 25 sculptures of guide dogs decorated in a variety of ways by different artists, which will be on display until 17 May, after which they’ll be auctioned off. It’s all about raising awareness and vital funds to ensure that people with sight loss will continue to be supported by these magnificent beasts.

I had fun hunting them all down, so in this post I’m going to share some of my photos of these pedigree chums, all of which I thought were beautiful, and I hope you enjoy looking through them!

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June 2023 Favourites

Half the year already gone, and what a year it’s proven to be already. My support worker job is continuing to go well, so I have a nice little update to share on that. Then there’s the usual mixture of theatre, museums, walks, TV, music, etc that I’ve been enjoying, some of which you’ll already be aware of from my posts over the last few weeks. And apart from a press trip, nothing here is gifted or sponsored. So let’s crack on with my latest roundup post and video, and I hope you enjoy it!

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April 2023 Favourites

Well, what a busy month that was! During April I attended a couple of theatre shows, went out and about with a couple of good friends, had some lovely walks to take advantage of the nice weather, and watched a variety of things at home too.

All of which means there’s plenty to get through in this latest post and video recap. And none of it is sponsored or gifted, apart from a little press event that I’ll mention, and all opinions are my own regardless. So let’s crack on with it, and I hope you enjoy!

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May 2021 Favourites

Hello again, hope you’re all doing well. May has been a mixed month for me health-wise, though the good outweighs the bad, especially now I’ve had both my Covid vaccinations and restrictions have been eased further. And in terms of entertainment I’m focusing more on paid streaming services again, having found my way out of the Youtube wormholes I happily got sucked into during the depths of lockdown, though there are still occasional things grabbing my attention there too of course.

So there are various things to mention as usual, none of which is sponsored or gifted, and I hope you enjoy this latest post and video roundup!

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Accessible Advent

Merry Christmas! 🎄🎅 It’s a strange one for us all this year, and will be very difficult for many, but I hope you’re able to find some happiness, comfort and support, and can immerse yourself in things that you enjoy.

Throughout this month I took part in Accessible Advent on social media, created by Ginny Butcher, where each day I highlighted something that would make life more accessible for me and other visually impaired people. So I thought I’d share the full list here as well. I hope you find it interesting and useful!

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What Is Normal? (Documentary)

I still find it very humbling and flattering that so many people have taken an interest in my adventures over the past few years, whether it be reading my blog, watching my videos, or seeing me speak at events. I’m very grateful to everyone for the support and encouragement, and I wouldn’t be doing this if nobody cared, so thank you.

I never imagined that I’d have a documentary made about me though. Yet that’s exactly what happened for the first time a few months ago. It was an exciting experience and I’m delighted with how it turned out.

I’ve held it back until now for various reasons. Firstly, whilst I have permission to post it regardless, I wanted to give a bit of space for its creators and sponsors, including a major charity, to publish it first if they so wished. But I also had a few things distracting me over the summer too, as regular followers will know, which has further delayed it.

But now’s a good time to release it, as it ties in nicely with the recent publication of my Aniridia Network Conference talk – Growing In Confidence With Aniridia – which  was filmed shortly after the documentary was completed. Soon after that I was also in a second documentary – See Differently by Yiwen Feng – which featured myself and others. You can find out more about my speech and that other film in my June Favourites. I was certainly getting my 15 minutes of fame around that time!

In this post, therefore, I want to share my first ever documentary with you, and give a behind-the-scenes insight into how it all came together. I hope you enjoy it, and please do share the film around on social media.

So without any further ado, I present my documentary debut – What Is Normal?

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TFL Access All Areas 2019

I feel very comfortable using the public transport in London, and generally have no problems getting around on it. I always plan my journeys as best I can, and feel confident travelling around the city by myself, because I find the public transport in London to be very accessible.

There is a Transport for London Accessibility Page giving lots of information to help you access public transport in the city. It’s well worth looking through everything there, even if you think you’re very familiar with the transport system, because you may well discover something you didn’t know about. There’s a recent article about accessibility that TfL have published as well.

But there is still lots of room for improvement, so TfL are constantly making efforts to improve accessibility, within the limits of funding and other resources available to them. And with that in mind, they held their Access All Areas event at ExCel London in March, to highlight the current accessibility options and services that are available, and to share future developments. It’s a great opportunity to hear from decision makers and engineers, and get to know a variety of organisations.

So I decided to go along and check it out, because it sounded very interesting. Plus it was free to attend, and just a short bus ride from my house. So in this post I want to show you some of the things I discovered there. I hope you enjoy reading about it.

Note: I am not sponsored by TfL or any of the other organisations mentioned here, and have received no incentives to mention them. I just want to tell you about what I saw at the event, and make you aware of things you might find useful. So all opinions are my own.

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Nystagmus Network Open Day 2018

Even though my abseil for nystagmus research has had to be postponed (it’ll now be on 21st October), nystagmus has still been the big topic this month, because on Saturday I attended the annual Open Day held by the Nystagmus Network.

This was my second time going to this event, following my experience last year when I gave my first public talk. So this year was much more relaxed, because I didn’t have to do anything! And it was a wonderful day, so I thought I’d give an overview of how it went.

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Fashioneyesta & The Five Murders

As well as the great Open House tours by VocalEyes, the other big highlight of last weekend was on Sunday evening, when I got to meet Emily Davison from Fashioneyesta for the second time. If you missed it, our first meeting was at Knole Park on the August Bank Holiday Monday (which Emily vlogged as well).

This time, the plan was to have something to eat and then go on a Jack The Ripper walking tour. And we had a lovely time.

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