May was a lovely month. The weather’s been gorgeous lately, for the most part, and with no major events going on it’s been quite a relaxing few weeks .But there are still various bits and pieces I’ve enjoyed, and want to mention in this latest post and video update. So I hope you find this interesting.
To start with though, I just quickly want to plug a couple of upcoming events in June that will interest some of you. They’re for people all over the world to join in with, not just the UK. The more the merrier really, as it will help to spread vital awareness in both cases.
June 20th will be Nystagmus Awareness Day, which is its new permanent date, having moved from November. This year’s theme is Nystagmus In The Open, where people are being encouraged to do outdoor activities to raise funds and generate awareness. Sue, who runs the Nystagmus Network, is opening her garden for people to visit, for instance. People are also being invited to submit their stories online to show how amazing people with nystagmus are.
June 21st will then be Aniridia Day. This is the second time it’s been held, as it was a big success last year. This year’s awareness campaign is called Aniridia Sight, where we want people with aniridia to share a photo or video of a scene, and describe how they see it through their eyes. So the more people that get involved, the more we can show how varied the vision of people with aniridia is. And then there will hopefully be live webinars too, for people to discuss aniridia related topics e.g. doctors, researchers, people with aniridia, etc. If you’d be interested in doing a webinar on the day, please fill out the form to sign up.
So now that’s out of the way, let me tell you what I’ve been up to in May.
Continue reading “May 2018 Favourites”
Well, what a way to start a new month, with snow all over the place! Winter has seemed very reluctant to let Spring take over, but hopefully things will warm up in the coming weeks now.
And the cold weather didn’t stopped February from being an eventful month. Following on from my January 2018 Favourites, it’s now time to look through what I’ve been enjoying in February. And even though it’s the shortest month, I seem to have packed quite a bit in! So I hope you enjoy this post and video for February.
Continue reading “February 2018 Favourites”
Update (March 1st) – I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂
Happy Rare Disease Day! 🙂
Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.
1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.
There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.
This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.
Continue reading “Rare Disease Day Photo Challenge”
After a very eventful and successful 2017, I’ve been looking forward to seeing what 2018 would bring. And this year I want to try and get into the habit of doing monthly favourites posts, so you can get a good overview of what I’ve been enjoying, both out and about and at home. That way I can cover little things that I wouldn’t otherwise mention, as well as the bigger stuff that I’ve written longer posts on, which I’ll link to here.
So this is the first post, for January. This month I’ve been mostly doing things indoors given the cold weather outside. So I’ve been going out to various museums, and have also been to the theatre, while at home I’ve been watching a couple of the DVD sets I bought last year, to catch up on those. And I’m also making an effort to start listening to more audiobooks this year, as I only did one in 2017, which was bad of me (although, to be fair, book-reading wasn’t top of my to-do list having just moved to a huge city!).
So I’ve been keeping myself entertained in various ways, and I hope you enjoy this post and video recap of the month!
Continue reading “January 2018 Favourites”
It’s hard to believe, with all the advances in healthcare, science and technology, that cancer still exists today. Sure, we have made great strides in treating it and finding out more about it, which has helped to save and extend many lives, and for which we must be extremely grateful. But there are still far too many fatalities – just one is too many – and there is still so much more work to be done.
Of course, there is no single magic bullet that will cure it, especially as there are many different types of cancer that have to be treated in different ways. But the more research we can do, the more effective weapons we can develop and have in our arsenal to keep it at bay. No matter how stubborn and resilient it tries to be, we can tame it and beat it, and ultimately we will. It may take a great deal of time, money and effort, but it’s well worth it, because it will save and improve millions of lives.
Cancer has an impact on pretty much everybody at some point in their lives – even if you never get it yourself, chances are you’ll know someone who does. I’ve lost a good friend to the condition, and that’s what I want to tell you about here.
I made a post and a video about this a couple of years ago, for Stand Up To Cancer. But now I’ve improved as a blogger and Youtuber somewhat, I’ve decided to scrap those and extensively re-edit the text for a blog post that I can share in support of any cancer campaign, not just one specific one. And I’ve chosen today to do it, having become aware that the 4th of February is World Cancer Day. So I hope you find the post interesting. I know it’s not a nice or comfortable or entertaining subject to read about, but it is a very important one.
Continue reading “The Impact Of Cancer”
As well as the Harry Potter Studio Tour I explored earlier this month, I was also lucky enough to go to the British Library last Monday, for their exhibition on Harry Potter – A History Of Magic. This has proven to be extremely popular, because all of the tickets are now sold out online for the rest of the run (though it may be possible to get a ticket on the day you go to the library if you’re lucky). So I feel very fortunate to have had a chance to see it. Big thanks to Emily from Fashioneyesta for inviting me to explore it with her. We had a lovely afternoon, so that’s what I want to tell you about here.
Continue reading “Harry Potter – A History Of Magic”
Following on from my review of the Harry Potter Studio Tour, in this post and video I want to show you the merchandise I bought in relation to it.
Up until now, I only owned the audiobooks, the Ultimate Edition Blu-rays (which replaced earlier DVD version of the films I had), and downloads of the film soundtracks. So this is the first time I’ve really got into buying Harry Potter themed stuff apart from that – with one slight exception that I’ll mention later, but basically I’ve never bought any other merchandise before.
There’s so much to buy in relation to the tour, so I did end up spending quite a bit. But it’s worth it to get some unique and special souvenirs. Some of the items I bought at the attraction on the day, and some I bought later from their online store, because there was no way I could carry everything I wanted home from the tour, and there were a few things I couldn’t find in the gift shop there anyway. So I hope you enjoy seeing all the things that I bought.
Continue reading “Harry Potter Studio Tour Haul”