What Is Normal? (Documentary)

I still find it very humbling and flattering that so many people have taken an interest in my adventures over the past few years, whether it be reading my blog, watching my videos, or seeing me speak at events. I’m very grateful to everyone for the support and encouragement, and I wouldn’t be doing this if nobody cared, so thank you.

I never imagined that I’d have a documentary made about me though. Yet that’s exactly what happened for the first time a few months ago. It was an exciting experience and I’m delighted with how it turned out.

I’ve held it back until now for various reasons. Firstly, whilst I have permission to post it regardless, I wanted to give a bit of space for its creators and sponsors, including a major charity, to publish it first if they so wished. But I also had a few things distracting me over the summer too, as regular followers will know, which has further delayed it.

But now’s a good time to release it, as it ties in nicely with the recent publication of my Aniridia Network Conference talk – Growing In Confidence With Aniridia – which  was filmed shortly after the documentary was completed. Soon after that I was also in a second documentary – See Differently by Yiwen Feng – which featured myself and others. You can find out more about my speech and that other film in my June Favourites. I was certainly getting my 15 minutes of fame around that time!

In this post, therefore, I want to share my first ever documentary with you, and give a behind-the-scenes insight into how it all came together. I hope you enjoy it, and please do share the film around on social media.

So without any further ado, I present my documentary debut – What Is Normal?

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July & August 2019 Favourites

Right then, I’m back. If you’ve seen my previous post, you’ll know why this instalment of my Favourites series is later than usual, because August wasn’t a particularly good month. It only had a few positive things I can mention, so I’ve decided to combine them with my long overdue July update.

There’s quite a bit to mention as usual, including a musical, a movie, a comedy show, museums, walks, events, my new computer and TV shows. So let’s crack straight on with it, bearing in mind the normal disclaimer that I’m not sponsored by any of the people and companies mentioned below. I hope you enjoy my latest post and video recap of what I enjoyed earlier this summer!

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June 2019 Favourites

We’ve reached the halfway point in the year, and summer is finally blessing us with decent weather. And I’ve had a very busy month!

Firstly, there have been some disability related developments, most of them positive. In particular, I’ve spoken at a conference, been a guest on a podcast, and I was filmed for another documentary. So my visual impairment led to a few great opportunities in quick succession, I’m happy to say.

On the downside, I’ve finally received the call-up letter to switch from Disability Living Allowance (DLA) to Personal Independence Payments (PIP). This basically means I have to fill out a huge form about how my disability affects me, and then have a face-to-face assessment with a health professional, so the government can decide if I’m entitled to benefit payments. It sounds relatively simple when worded like that, but most disabled people will tell you it’s anything but. So that’s going to be on my mind a lot over the next couple of months at least, and I’m not looking forward to the process. But I’ll let you know how it goes at a later date. I’m not going to bore you with a rant about it in this post!

Thankfully, apart from that, I’ve been able to enjoy the month in many other ways. I went on a lovely weekend break with my girlfriend, I’ve been out in London for more exhibitions and walks, my girlfriend and I enjoyed a new film at the cinema, and I’ve enjoyed new TV shows and music releases at home. So there’s plenty to get through. As always, I’m not sponsored by anyone mentioned here, I’m just sharing these things because I enjoyed them. And I hope you enjoy this month’s post and video!

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May 2019 Favourites

Hello again, and welcome to my latest monthly recap. I’ve been a bit quiet here this past month, and that’s because I had to take a step back while working on a couple of important things – neither of which I can give you a lot of detail about in this post, although I will briefly tease you about them.

A lot of my time was spent preparing for this year’s Aniridia Network Conference. Not only was I going to be capturing photos and video, but I also had to prepare and rehearse a talk of my own, about how I’ve grown in confidence with aniridia. So that was naturally on my mind a lot. The successful event took place on 1 June, and all of the talks were filmed, which I’ll be editing and uploading to the charity’s Youtube channel in the weeks to come. So I’ll share my talk with you at a later date. In the meantime, do also keep an eye out for Aniridia Day on 21 June, which will raise awareness of the condition worldwide, and show your support if you can.

I was also on camera during May itself though, for another exciting reason, because a mini documentary was made about me by a wonderful group of film students. I really enjoyed the experience, and I’m very pleased with how the film’s come out. I’ll tell you all about it in a separate post later, after the video has been published (although there is a sneaky preview in the video relating to this post). It was made for a major disability charity, so I’m waiting to see if they’ll post it first. But I have permission to publish it on my own channel as well, so it’ll end up there in due course. In any case, I’m really looking forward to sharing it with you!

Those events aside, there are still some other bits and pieces I can tell you about in this month’s post and video. As always, I’m not sponsored by anybody mentioned here, nothing has been gifted, and all opinions are my own. So let’s crack on with it, and I hope you enjoy as per usual!

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Naidex 2019

Naidex is Europe’s largest event showcasing the latest technology, products and services for disabled people, helping them to live, work and travel with greater independence and comfort. The event is now in its 45th year and it’s absolutely massive, occupying a large hall in the NEC Birmingham for 2 days.

I first went to the show last year, having never heard of it before, and enjoyed having a good look around over both days. I took in as much as I could, even things that weren’t particularly relevant to me, to get a good sense of what was there. So this year, now that I knew what to expect, I was able to prepare more, and only went for 1 day. I knew that would be enough time to see everything that was of most relevance and interest to me, and I think it was a wise move. Other people may find going for both days very beneficial though, it just depends how much you want to look at.

Also for the second year running, I was proud to be an ambassador for the show. That simply means we plug each other on social media, so I give them shoutouts and they promote my blog in return. Beyond that, I’ve not been gifted in any way to promote or mention the show, I paid all of my own expenses to attend, and I’m not obliged to give any kind of review. Likewise, I’m not sponsored by or affiliated with any companies mentioned in this post. I just want to go through what I saw and picked up information about, and all opinions are my own as always.

So let’s get on with it, and I hope you enjoy my rundown of Naidex 2019!

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January 2019 Favourites

2019 is already flying by isn’t it? I hope you’ve all had a lovely start to the year. January for me was pretty busy, particularly at work, which pushed me behind on my blogging a little bit. But I’ve got plenty of things I want to post about.

So today it’s time for my first monthly favourites post of the year. They seemed to work out well during 2018, as they’re a nice way to summarise things, and I notice they’ve inspired one or two other bloggers to do monthly updates. So I’m going to carry on with them, and I hope you enjoy this latest post and video summarising my activities.

As per my usual disclaimer, nothing in this post is sponsored or endorsed by any of the companies mentioned unless otherwise specified, and all opinions are my own.

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Conductive Coding At Tate Modern

During January I visited a few museums, which is always a good option when it’s cold and wet outside. And the most interesting event took place at the Tate Modern, involving a mixture of hand weaving and modern technology. It was an event run specifically for the visually impaired, including an audio described tour and a workshop, and it was a lovely day. So I wanted to tell you a bit about it.

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