Disabled Blogger Tag

This Q&A tag is a wonderful creation by Elin at My Blurred World who recognised that, in amongst all of the many blogger tags out there, disabled bloggers didn’t have a tag for themselves. I’m one of the people she nominated to do it, and I’ve also been nominated by The Invisible Vision Project, Amanda Gene and Life Of A Blind Girl, so thank you to all of you! 🙂

So here are my answers, as a post and a video. I hope you enjoy it and find it interesting!

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Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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January 2018 Favourites

After a very eventful and successful 2017, I’ve been looking forward to seeing what 2018 would bring. And this year I want to try and get into the habit of doing monthly favourites posts, so you can get a good overview of what I’ve been enjoying, both out and about and at home. That way I can cover little things that I wouldn’t otherwise mention, as well as the bigger stuff that I’ve written longer posts on, which I’ll link to here.

So this is the first post, for January. This month I’ve been mostly doing things indoors given the cold weather outside. So I’ve been going out to various museums, and have also been to the theatre, while at home I’ve been watching a couple of the DVD sets I bought last year, to catch up on those. And I’m also making an effort to start listening to more audiobooks this year, as I only did one in 2017, which was bad of me (although, to be fair, book-reading wasn’t top of my to-do list having just moved to a huge city!).

So I’ve been keeping myself entertained in various ways, and I hope you enjoy this post and video recap of the month!

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2017 Review – Blog & Youtube Statistics

This is a slightly nerdy post, so ignore this if you want to see my full review of my year in London, which I’ll be posting shortly after this. I’m only a small and amateur blogger and Youtuber. But given that fact, I feel I’ve done really well this year, as it’s been really interesting to look at some of the statistics. So as I was looking through the analytics pages, I thought I would share some of the key figures with you as well, so you can see which of my posts and videos were most popular, and if you’re the type of person who enjoys statistical things.

Thank you so much to everyone who has viewed, liked, shared and commented on my content during 2017. I wouldn’t bother doing any of this if nobody was interested, so it means a great deal to have so many loyal followers, and I hope you’ll stick around to see more of my adventures in 2018! If there’s anything you particularly want to see from me, then please do let me know, and I’ll see what I can do. But for now, here’s how things have gone this year.

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Blogger Recognition Award

As if nominating me for the Liebster Award wasn’t generous enough, Holly from Life Of A Blind Girl has also nominated me for the Blogger Recognition Award twice this year, in January and October, which is very kind indeed, thank you Holly! Do go and check out Holly’s blog, as she publishes lots of great posts about visual impairment, disability awareness and her hobbies and interests.

The Blogger Recognition Award simply requires you to write a bit about your blog and give advice to new bloggers, and then nominate other bloggers to do the same, to share the love and give them some exposure and recognition. So that’s what I’m going to do here. Thanks again to Holly for nominating me!

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Building My New Social Network With A Visual Impairment

I’ve shared overviews of this story as guest posts on Scope’s community forum and the Nystagmus Network’s newsletter. Many thanks to them both for featuring me! And if you’ve found me via one of those articles, hello and welcome! 🙂

On September 30th, I gave a talk at the Nystagmus Network’s Open Day about how I had been building a new social network for myself in London. It was my first time giving a public speech about myself, but it went really well. I spoke for about 15 minutes, then we had a group discussion for the next 15 minutes. It got a very positive response, and I got chatting to many people as a result of it, so I was very happy with it. And I’ve written blog posts about how I prepared for it and my experience at the Open Day.

So this post is a written version of that speech, and I’ve posted a video version that I filmed on the same evening. Both are longer than the actual speech I gave at the Open Day, as without constraints on time or length I’ve been able to explain things in a bit more detail. So the actual speech was a slightly more concise version of this, although 15 minutes was still quite a bit of time to fill!

Obviously my situation is unique to me, and everyone’s circumstances will be different in their own way. I’m just giving examples of the things I’ve done. The overall aim is to show that it’s important and worthwhile to try things that interest you and grasp opportunities when they arise, as you never know what will result from them. You may have to push yourself out of your comfort zone a bit, and I know that can be easier said than done. It was a challenge for me, and it still can be sometimes. But the more you try things, the more confident you’ll get, and you’ll soon start to reap the rewards of your efforts. Otherwise, you’ll always be asking yourself ‘what if’, which is never helpful.

So I hope you enjoy reading this. Thank you to Sue Ricketts and the Nystagmus Network for asking me to share my story at the Open Day, and to all those who responded to it so well.

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New Year, New Start

Happy New Year everybody! I hope it turns out to be a happy, comfortable and prosperous one for you. If you’re currently going through any difficult times, then I hope the coming year brings some positive vibes and fortune for you.

For me, 2017 is going to be very interesting, as shortly before Christmas my mother and I moved to London! Hence I’ve been very quiet in this blog over the last few weeks. Relocating has been the plan for some time, but thanks to curveballs of one kind or another being thrown our way, it’s only during the past year that it’s finally come to fruition. It does feel like now is the right time though, that it’s been worth the wait to get this much needed fresh start.

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