Farewell Queen Elizabeth II

It’s the end of an era, no doubt about that. As if leaving my first job and Liz Truss becoming Prime Minister haven’t been big enough changes to kick off the month, the ultimate career change has just taken place over the past couple of weeks. It’s been beautiful, celebratory and moving, and has brought an enormous number of people together in grief, reflection and gratitude. So I felt it only right to pay my respects in this blog as well.

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January 2021 Favourites

Well, that month was a long year, wasn’t it? I thought January might be relatively quiet compared to December, but it was clearly very difficult for 2021 to get steady on its feet amongst the fallout from 2020, for reasons that we’re all too familiar with from the news.

January also marked a significant milestone for me, as it’s now 10 years since my father passed away. It’s amazing how quickly that time’s gone, when it inevitably dragged so much at first. And after all these years, not a day goes by when he doesn’t come to mind for one reason or another, he’s always present. I get my sense of humour from him, and he was always supportive and encouraging and fun to be around. That’s him you can see behind little me in the header image for this post. As I haven’t had any reason to take interesting photos myself lately, it seemed appropriate to use one of him on this occasion, and I dedicate this post to his memory.

And in the present, Captain Sir Tom Moore has very sadly passed away at the age of 100. He was one of the brightest lights of the pandemic, raising nearly £40 million for NHS charities, and his positive attitude to life filled us all with hope and motivation at a time when we really needed it the most. So he will be very dearly missed, and his charity foundation will undoubtedly continue to do lots of great work in his honour in the years to come. Condolences to all of his family and friends and everyone who came into contact with him. And thank you Captain Tom for everything you’ve done. We will walk on through the storm, with our heads up high and hope in our hearts, thanks to you. RIP.

Still, despite all of that, there is also much to be happy about. Green shoots of hope and positivity are breaking through, and I have some good news of my own to share in this post, along with the usual rundown of entertaining things that I’ve been enjoying. And none of it is sponsored or gifted as usual. So let’s crack on with it, and I hope you enjoy this month’s post and video!

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Lockdown Favourites – Weeks 15-16

Hello again, I hope you’re all keeping well. Or if you’re not doing great at the moment, as is the case for a couple of my friends (who by strange coincidence have the same name), then I hope things improve very soon. And if you’re enjoying the greater freedoms that have been granted to us recently, then please continue to be careful and safe. As proven by Leicester here in the UK, which has had to revert to a strict lockdown again, we can’t afford to be complacent.

It’s also strange to think that we passed 100 days of lockdown in week 15. That seems to have gone by quicker than I’d expected – although I know for many that time will have dragged terribly, and certainly early on I found it difficult like everyone else. But I’m glad I’ve been able to settle into a new routine and adapt during that time. I did look into things like gaming, quizzing and exercising but, as I’d rather expected, they soon fell by the wayside! Connecting with friends, homeworking, blogging, music, TV and film have all got me through it, and are continuing to do so. And now it’s reasonably safe to go out and about again to some extent, which is good as well.

So here’s my latest post and video update for the past couple of weeks, with news on disability events and my first outings in months, along with films, comedy and music that I’ve been enjoying. None of it is sponsored to appear here, but I was paid to attend one event as you’ll see. I hope you enjoy looking through it all!

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Lockdown Favourites – Week 7

Hello again! I hope you’re continuing to keep safe and well – and also staying alert, as is the new watchword here in England.

As I see it, the current small changes to our lockdown, as part of the government’s long term recovery plan, are basically urging people to use their common sense, as the virus is still circulating. We must continue to stay at home and work from home if at all possible, avoid other people’s homes, wash our hands and disinfect surfaces often, and stay 2 metres away from everyone. But provided those rules are adhered to, we have a bit more freedom – people in selected industries can go back to work, we can use outdoor spaces like parks more freely, we can walk or cycle or drive further to exercise, and face coverings are advised if social distancing isn’t possible (to protect others in case you’re asymptomatic).

So I hope people will continue to be careful and sensible, as we’re nowhere near out of the woods yet. And obviously for disabled people things are more complicated – it’s impossible to socially distance if you can’t see, for example, so you have to rely on others around you to stay away. Lucy Edwards has chatted with a couple of her fellow blind activists in a recent video about the new rules, if you want to hear their reactions to the new rules.

As for me though, my mother and I are still doing fine, touch wood. Last week I went out for the first time in over 5 weeks, as a couple of essential items were missing from our online shopping delivery. So I was very pleased to find that there were hardly any people and very few cars about, and that I was able to use the priority hour for disabled people at the supermarket, which was fully stocked and had social distancing measures very well enforced. So my risk of exposure was hopefully minimal.

But otherwise I’m still staying at home for the safety of my mother as well as myself, and I’ve continued to keep myself entertained in various ways. So let’s crack on with this week’s post and video to update you on my latest discoveries. As usual nothing is sponsored and all opinions are my own. So I hope you enjoy!

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Rare Disease Day Photo Challenge

Update (March 1st) – I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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Journal – Christmas 2016 (Moving To London)

Finally, after nearly 120 journal posts – and thank you so much for reading if you’ve gone through some or all of them – my mother and I have now moved away from Devon into my Nan’s house in London, which we inherited when she passed away.

So in this post you’ll find out how we’ve settled in over the festive period, sorting through various bits and pieces, having problems with BT, going shopping and taking some nice walks. I also got to see my best mate and his wife who were visiting the city, signed up for some social events in January, watched a lot of TV, and was shocked to hear about the deaths of 3 very popular entertainers.

Going forward, I’ll be sharing my (hopefully many) adventures in London in a monthly roundup format, as I’ll explain at the end. But for now, I hope you enjoy this bumper post about my long-awaited arrival in the capital!

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Journal – October-November 2016 (London Visit)

Welcome back to my latest journal posts. There wasn’t anything worth writing about in September, but recent weeks have been pretty eventful.

Down in Devon I’ve been to a stand-up comedy show with some work colleagues, and there are updates on our house sale too. I’ve also paid another visit to our new place in London, where my Aunt gave me a little tour of the local area, I went to the Sight Village exhibition and an aniridia meetup, I oversaw the installation of a broadband line for homeworking, and I made contact with a fellow blogger I’ve been following for a while. So I hope you enjoy it all!

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Journal – July 2016 (London Visit)

Welcome back to my journal. This month I stayed with a friend in London for a few days, at my Nan’s house that my mother and I are soon hoping to move into, and there are some updates on our relocation plans as well. So I hope you enjoy!

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Journal – April 2013

Welcome to my next set of journal entries. This month my mother and I made another trip up to London for Easter, although we didn’t end up doing a great deal, and our plans for moving have taken another step forward. Plus there are some more jokes that were sent to me, and there have been a couple of much less cheerful news stories dominating the headlines. So I hope you find this interesting as always.

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Journal – March 2013

Welcome to the next instalment from my journal. There wasn’t anything to report in February, as things were much quieter after all the travelling of previous months. But this month I’m able to give an update on my Nan’s house and inheritance, as well as telling you new DVDs and Blu-rays I’ve bought. Plus there have been big scandals in the news about Oscar Pistorius and horse meat, and I was sent some jokes about the latter. So I hope you enjoy looking through it all.

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