About Me


Hey there, thank you for stopping by! 🙂

To cover the basics – my name is Glen, I live in London, I’m in my 30s, I work as an IT developer, and I enjoy going out and about, socialising, comedy, sci-fi & fantasy, and classic rock & pop music.

Oh, and I have slightly dodgy eyesight, as a result of Aniridia and Nystagmus – but they’ve never stopped me doing the things I enjoy. I may need help or find things a bit frustrating sometimes, bu ton the whole I’m very independent. To me, my vision is normal, as I’ve had my condition since birth. I don’t know any different. So don’t worry about my sight, because I don’t – my sense of humour’s much worse! 😉

In this blog and on my Youtube channel you’ll find posts and videos about my disabilitymy adventures out and aboutmy favourite music and various other topics. All videos containing speech have closed captions, and discussion videos usually have an equivalent text post in this blog, so you have a choice of how to enjoy them.

You can also find me on Twitter and Instagram, so do follow me there too!

So please enjoy looking around, there should be something for everyone:

  • If you’re visually impaired or disabled, or you look after such an individual, I hope my experiences are of some interest and support to you.
  • If you’re not disabled, I hope my disability posts help to clear up some false assumptions and misconceptions, and give you some useful insights and advice.
  • And apart from that, I hope people find things among my music, TV and film tastes that they also like, and enjoy reading about my travel experiences and other things.

Do feel free to comment on my posts and videos with any respectful opinions, questions or suggestions you may have. You’re also very welcome to tweet me of course, while private contact can be made by Twitter DMs (if we follow each other) or via email (welleyenever@icloud.com). Thanks again for visiting! 🙂

6 thoughts on “About Me”

  1. Hi Glen —

    I found your blog through Aniridia Network UK. Our daughter, Ruby (6 months old) was born with Aniridia, Nystagmus, Glaucoma, Foveal Hypoplasia, and Cataracts in both eyes. It’s so encouraging to read about your story. So often the first response it to focus on the disability — what Ruby won’t see or do — but doing so is one dimensional. There are so many other things about her that will have much more influence on who she becomes and what she chooses to do in life, as is apparent in your story too. Thank you for sharing your abilities and talents with the world.

    I just spent some time going through and subscribing to many of your recommended blogs — thanks for those too!

    We’ve started our own blog – https://rarestruby.wordpress.com/ (obviously the parent’s perspective — Ruby’s not quite proficient at typing yet ;)).

    Happy to “meet” you!

    – Sarah (from Canada)

    Liked by 1 person

    1. Thank you Sarah, lovely to meet you too! 🙂 You’re very correct in what you say – people do tend to focus on the negatives when they hear words like ‘disability’ and ‘impairment’, and it’s easy to forget that there’s still plenty the person CAN do. Just because a condition makes it trickier to do certain things, it doesn’t mean you can’t adapt, especially with technology as advanced as it is these days. And if certain things do prove to be impossible for Ruby, there are still plenty of other things that she can do. Having a sight problem need not stop you from being a human being and living a successful life.

      I’m not saying Ruby’s journey will be trouble-free – of course there will be bumps in the road for her and for you, which will make it hard sometimes. It’s inevitable when your child needs additional help and support like that. But if you all have a good support network around you, and a generally positive and persistent attitude, you’ll be fine. I’m following your blog now, it’ll be interesting to read about Ruby’s journey. I hope it goes well for all of you. 🙂

      Like

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