Lockdown Favourites – Weeks 15-16

Hello again, I hope you’re all keeping well. Or if you’re not doing great at the moment, as is the case for a couple of my friends (who by strange coincidence have the same name), then I hope things improve very soon. And if you’re enjoying the greater freedoms that have been granted to us recently, then please continue to be careful and safe. As proven by Leicester here in the UK, which has had to revert to a strict lockdown again, we can’t afford to be complacent.

It’s also strange to think that we passed 100 days of lockdown in week 15. That seems to have gone by quicker than I’d expected – although I know for many that time will have dragged terribly, and certainly early on I found it difficult like everyone else. But I’m glad I’ve been able to settle into a new routine and adapt during that time. I did look into things like gaming, quizzing and exercising but, as I’d rather expected, they soon fell by the wayside! Connecting with friends, homeworking, blogging, music, TV and film have all got me through it, and are continuing to do so. And now it’s reasonably safe to go out and about again to some extent, which is good as well.

So here’s my latest post and video update for the past couple of weeks, with news on disability events and my first outings in months, along with films, comedy and music that I’ve been enjoying. None of it is sponsored to appear here, but I was paid to attend one event as you’ll see. I hope you enjoy looking through it all!

Continue reading “Lockdown Favourites – Weeks 15-16”

Lockdown Favourites – Weeks 13-14

Miraculously we’ve made it to the halfway point in the year, although admittedly it feels like a lot more time has passed. Months effectively haven’t existed for a little while now, with all the weeks just blurring into one continuous sequence. If weren’t for the titles of these posts, I would have lost complete track of how much time had passed since lockdown started!

So I hope you’re all continuing to keep safe and well. Our lockdown measures here in England are going to be eased significantly further from next week, and the government have ended their daily briefings, but as the virus is still in circulation we all have to remain very cautious. There will inevitably be local outbreaks, which may lead to lockdowns of certain towns and cities as and when necessary, but we just have to hope the entire country won’t be shut down again. The most vulnerable people who are still shielding will have to remain indoors until early August, when they can finally go out again if they feel ready to do so.

Regular readers will know that my mother and I have been voluntarily shielding, even though we’re not explicitly required to do so, for my mother’s safety in particular. The last time I went out, to do a little bit of shopping to top-up an online delivery, was just over 7 weeks ago. And that’s only the second such outing I’ve had over the past 14 weeks. Mum hasn’t been out at all since lockdown began.

However, by the time you read this, we will both have been out together to attend my Uncle’s funeral with my Aunt, so I’ll let you know how that went in my next post. I’m also starting to feel that the time is right to venture out for local walks soon for some much-needed exercise, as it does seem to be the case that being outdoors, socially distanced from others, is relatively safe. But I still don’t intend to use public transport for the time being, even though there are safety measures in place for train travel, as the risks still feel too great and there isn’t anywhere that I need to go. Some museums are reopening, but I’d rather continue to wait before I visit them again, and support them online in the meantime.

So that’s where I’m at currently. But now let’s look back at the past couple of weeks in my latest post and video, to see what’s kept me occupied and entertained, none of it sponsored or gifted as usual. I hope you enjoy!

Continue reading “Lockdown Favourites – Weeks 13-14”

Lockdown Favourites – Weeks 11-12

Hey there, hope you’re all continuing to keep safe and well! Here in the UK lockdown has been eased further, including the re-opening of non-essential shops, the compulsory use of face coverings on public transport, and the partial re-opening of schools. So some small sense of normality is returning, albeit with lots of distancing and hygiene measures in place.

I’m still happy staying at home though, because I have no compelling reason to go out and my priority is still protecting Mum by not bringing the virus home. Our shopping’s being delivered every week, and despite the new rules public transport is still a no-go, as it’s only for essential journeys and distancing is much harder on a Tube train or bus. So there’s little incentive to go anywhere. Mum and I will be leaving the house to attend my uncle’s funeral with my aunt in a couple of week’s time, and I’m starting to feel more open to having a socially distanced outdoor meeting or picnic with a friend or two, as that appears to be relatively safe having been aware of others who have done it. But that’s about it.

In any case, I’ve been keeping myself very busy lately. I’ve actually been using Zoom for the first time recently, to talk to workmates, some friends and other people I’ll mention a bit later in this post. It’s strange how I didn’t get asked to do any video calls for the first 2 months of lockdown, then had one last month, followed by loads in June, about half of which are on Zoom. It’ll probably go quiet again in July!

And I’m also busy on my blog too. Hopefully you’ve already seen my Def Leppard – London To Vegas Unboxing, which I produced after they very kindly set me a copy of the box set to review. But if you haven’t seen it yet, do go and check it out. It’s the first time I’ve ever been sent a product to review, and I had no hesitation in accepting the offer as it’s from one of my favourite bands! I also have some other blog posts I’m working on too, by which I mean a couple of big series that should guarantee me regular posts over the summer and beyond. So I’m in no danger of running out of content just yet!

And of course my Favourites posts will continue, now on a fortnightly basis for the time being, as that frees up my time much more. So here’s my latest recap, with plenty to cover, including disability events & discussions, theatre, Blu-rays, comedy, music and more. So let’s get on with it, and I hope you enjoy my latest post and video!

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February & March 2020 Favourites

Well, what a year this has turned out to be, huh? Perhaps we should just rename it 2019B or 2019.5 and start 2020 again next January. It’s like we’ve had a faulty software update in the calendar that needs serious debugging and virus-checking before it’s rolled out again.

Obviously I’m not dismissing the tragic side of things by saying that. My heart goes out to everybody who has lost loved ones or been severely affected in some other way, and I sincerely hope you all stay safe and well as best you can. Please follow the guidelines on hygiene, distancing, isolation, etc, because it really will save many lives. It will take a few weeks at least before we start seeing the impact of such measures, but they will help, and we will get through this. Huge thanks to all our incredible health and care staff, as well as the many other people providing essential products and services.

Beyond this introduction, I have no desire or intent to write posts about the situation, as it’s not nice and there’s enough about it online already. However, I have created a Lockdown Resources page, where you’ll find many links for information, advice and support, plus many ways to stay connected and entertained at home, which I hope you find useful.

Clearly this is going to change what I’m able to do and post about for a while. So in this post and video I want to wrap up my recent museum and theatre visits, as well as disability related updates and TV favourites, for both February and March. That way, I can move forward with a clean slate as I settle into a temporary new routine.

All of which means there’s a fair amount to cover here, making it a good distraction from everything that’s going on. I haven’t been sponsored or gifted by anyone to mention them, and all opinions are my own. So I hope you enjoy!

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The Reality of Aniridia & Nystagmus – Guest Post by Glen

I’m delighted to be featured in Ami’s Undercover Superhero blog, as part of her excellent series raising awareness of different disabilities! Check out my guest post about how I live with aniridia & nystagmus, and have a look through the other posts in the series too. Thank you for featuring me Ami! 🙂

Undercover Superhero

Glen’s guest post is the 47th post in the segment on my blog, called “The Reality Of…” which gives others the ability to share their story and raise awareness of the disabilities, illnesses, impairments and invisible illnesses that they have.

Meet Glen!

Hi! My name is Glen, I’m 36 years old, and I’ve been living in London for the past 3 years since relocating from Devon. I’ve continued to provide IT support for my Devon employer as a homeworker, while in my spare time I enjoy musicals, comedies, museums, eating out, walking, travelling, socialising and blogging.

Glen has his side to the camera, he is wearing dark sunglasses and has a pair of white earphones in his ears. A large church/cathedral is in the background. People who are walking past are very blurred.

My Story

I was born with the genetic condition, Aniridia, which means I don’t have irises (the coloured circles) in my eyes. In my case it’s congenital, because it was inherited from my mother. But for some the condition can be sporadic, meaning the particular gene (PAX6) gets corrupted purely by chance. It affects…

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September 2019 Favourites

Those of you who have been following along recently will know that I had some issues in August that stopped me going out much. I was still able to do a July & August Favourites post, but the August part of that wasn’t very substantial.

September has continued to be rather mixed, as I’m still having an issue with my feet, so I didn’t get out too often. I think it might be hives of some sort, but the antihistamines are keeping them right down, so they’re not getting worse and are tolerable. It means I’m able to get around more easily, and also go out and about if I don’t overdo it. I’ve got a dermatologist appointment on 2nd November (which was thankfully moved forward from the original date of the 30th), so hopefully we can start sorting it out then.

And for those wondering about my Personal Independence Payments claim, no decision has come through yet. But I had 3 text messages to say they had the report from my face-to-face assessment, and then 2 letters in the post to say they have all the information they need to make a decision. So I just have to wait and see now.

Despite all of that, however, I’ve still ended up with a fair number of things to write about for September. I did manage to go out over the course of a weekend, when my foot was behaving, plus I’ve got some exciting videos and articles to share that I’ve been involved with, and there are some TV shows and music releases I want to mention. And as usual, no products in this post are gifted or sponsored, and all opinions are my own. So I apologise that there won’t be much in the way of London-specific stuff this month, but I still hope you enjoy this post and video as always.

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What Is Normal? (Documentary)

I still find it very humbling and flattering that so many people have taken an interest in my adventures over the past few years, whether it be reading my blog, watching my videos, or seeing me speak at events. I’m very grateful to everyone for the support and encouragement, and I wouldn’t be doing this if nobody cared, so thank you.

I never imagined that I’d have a documentary made about me though. Yet that’s exactly what happened for the first time a few months ago. It was an exciting experience and I’m delighted with how it turned out.

I’ve held it back until now for various reasons. Firstly, whilst I have permission to post it regardless, I wanted to give a bit of space for its creators and sponsors, including a major charity, to publish it first if they so wished. But I also had a few things distracting me over the summer too, as regular followers will know, which has further delayed it.

But now’s a good time to release it, as it ties in nicely with the recent publication of my Aniridia Network Conference talk – Growing In Confidence With Aniridia – which  was filmed shortly after the documentary was completed. Soon after that I was also in a second documentary – See Differently by Yiwen Feng – which featured myself and others. You can find out more about my speech and that other film in my June Favourites. I was certainly getting my 15 minutes of fame around that time!

In this post, therefore, I want to share my first ever documentary with you, and give a behind-the-scenes insight into how it all came together. I hope you enjoy it, and please do share the film around on social media.

So without any further ado, I present my documentary debut – What Is Normal?

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February 2019 Favourites

The time has come for another favourites post and video, looking back at February. It’s the shortest month of the year, and this is going to be one of my shorter favourites posts, because there’s been a lot of behind the scenes stuff going on, in a good way.

In particular, I’ve been spending quality time with my girlfriend Claire, and of course we celebrated Valentine’s Day together, as well as meeting up regularly in general. So naturally I’m not going to write about anything personal here.

But also, a sudden influx of wonderful opportunities have come my way over the past few weeks that have filled up my calendar for March. I can’t say too much yet, but keep an eye out for some guest posts on Disabled Access Day on March 16th, a review of the Transport For London Access Day that I’m going to on March 19th, and later on some special cultural reviews. My blogging efforts have really been paying off lately it seems!

Also don’t forget to claim your free tickets for Naidex, Europe’s largest show dedicated to disability and independent living, on 26th & 27th March in Birmingham. You’ll see me posting a lot about it on social media as it approaches, because I’m an ambassador for them. This just means we exchange posts promoting each other, I’m not paid or gifted to mention them. I just really enjoyed the show last year, so I’m looking forward to going again.

Back to February though, and there are still some things I am able to write about, mainly focusing on museums and entertainment. As always, there’s a video to go with this post, and I’m not affiliated with or sponsored by anybody I mention here. So I hope you enjoy my latest roundup!

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2018 Review

My second year in London has flown by, and what an incredible year it’s been, full of even bigger surprises and adventures than the first. Raising £920 from my charity abseil for nystagmus research and giving a speech to primary school children about growing up with sight loss were 2 of my biggest and most surprising achievements this year without a doubt, but there’s been so much more going on as well.

I really do feel like I’ve settled in properly now. I’ll always want to experiment with new things and meet new people, that’s one of the many great things that living in such a wonderful city enables you to do. But the foundations I laid by doing that in 2017 definitely enabled me to have more confidence in 2018, so I had a much better idea of the things I enjoyed doing most, I was less shy around people, and I made more friends on an individual level beyond just going to social groups.

My blogging has also gone well this year. It’s only ever been a hobby on the side – I’m not after fame or money or PR opportunities or anything like that – so I’ve never been worried about the numbers. But it is nice to check the figures at the end of the year, and I’m delighted that my subscriber counts have gone up so well:

  • Blog = 132 followers (more than doubled from 60 last year).
  • Youtube = 400 subscribers (doubled from 200).
  • Twitter = 570 followers (nearly doubled from 300).
  • Instagram = 300 followers (more than trebled from 90).
  • Facebook = 63 followers (my page was still very new back in 2017, so I didn’t note the figure back then).

They may not be huge numbers compared to some, but they’re great for me, and my efforts have already been far more rewarding than I ever could have anticipated. I’ve continued to get many amazing opportunities and lots of wonderful feedback, been invited to do various guests posts, and have made wonderful friends in person as well as online, all as a direct result of my posts and videos. So I’m getting far more success and satisfaction from this than I’d ever expected or could have hoped for, and if things continue to go so well then I’ll be very happy!

So thank you ever so much to everyone who has followed and supported my adventures, whether you’ve joined over the past year or have been with me since I started this blog nearly 3 years ago. It’s greatly appreciated that you find my posts interesting, entertaining and inspiring, and I hope you’ll continue to follow me in 2019.

But before we get into the new year, here’s a look back at what I’ve been up to in 2018. I’ve published Favourites posts and videos for every month, which you can get to by clicking the monthly headings below. And you can also see more in-depth posts, photos and videos about particular things linked throughout the text in bold (but there will be even more links in the Favourites posts themselves of course).

So I hope you enjoy this recap of the year, and thank you again for being a part of it and sharing it with me. And a very Happy New Year too! I hope that 2019 is a great one for you! 🙂

Continue reading “2018 Review”

Out Of Orbit – My Charity Nystagmus Abseil!

Updated April 2019, to mark the closure of my donation page.

We did it! 🙂 On Sunday 21 October, after a month’s delay due to the typical British weather, I finally got to do my charity abseil down the ArcelorMittal Orbit Tower in aid of nystagmus research. That’s a drop of 80 metres (262 feet) from the UK’s tallest sculpture!

It was my first ever fundraising challenge and my first ever abseil, and therefore a big deal for a beginner like me. And it was an amazing experience, which I’m excited to tell you about in this post. I’ve also made a video that includes headcam footage from my descent, so do check that out as well.

Donations closed on 23 March 2019, and I raised £920 (+ £143 Gift Aid)! Thank you all SO much! Everyone who donated prior to the initial publication of this post is listed at the end, and are also in the credits of my video (unless you were anonymous of course). But if you’d like to donate even though the deadline has passed, please feel free to donate to Nystagmus Network and/or Moorfields Eye Charity directly. Thanks!

So I hope you enjoy reading about my abseil adventure, including my fundraising achievements and what happened on the day itself! Thanks again for your support!

Continue reading “Out Of Orbit – My Charity Nystagmus Abseil!”