Raised by Visionally Impaired Parents: An Interview with Glen from Well Eye Never!

Here’s my most recent guest post to share with you all. This time I was interviewed by Chelsey from VI Blind Resources about what it’s like for me to have visually impaired parents. I hope you enjoy reading it! This brings me up to date at the moment, but I have another interview with another blogger coming soon, so keep an eye out for that.

While I’m here, thank you so much to everyone who has donated to my charity abseil and/or shared my tweets about it. It’s all very much appreciated. I’m now up to £765, thanks in particular to an astonishing £250 (plus £62.50 Gift Aid) donation from TV’s own Richard Osman this morning, which I’m still in shock about! That is extremely generous, so massive thanks to you sir! Everyone who has donated is credited on my Thank You page, including quite a few fellow bloggers now.

There are still 3 days to go before the abseil takes place, so if you want to give me your support before then, you can donate at JustGiving.com/WellEyeNever, or in the UK you can also text WENA80 plus a space and your amount to 70070 (e.g. WENA80 £5). You can donate £1, £2, £3, £4, £5 or £10 by text message. Thanks for your support! 🙂

VIBlindResources

by Chelsey Zumpano

Glin is a fellow Blogger and YouTuber, he’s also visionally impaired, but unlike me he has been raised by parents who also happend to be visionally impaired. So I asked him some questions about what it was like growing up.

1 Do you have the same visual impairment as your parents and either way what is the name/names of it?

I have the same conditions as my mother – aniridia and nystagmus. Aniridia means I don’t have an iris (the coloured circle) in my eye, so my eyes don’t adjust to changes in light properly. As a result, I’m very sensitive to glare and I find it hard to adjust in the dark. Nystagmus means my eyes shake and wobble all the time. This makes it harder for me to focus on things, unless they’re close up or enlarged.

My mother’s sight got a lot worse over…

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July 2018 Favourites

Time for another monthly favourites post and video, looking back at July. Things were very busy and successful on the blog and social media this month, I enjoyed some fun social events, museum visits and other entertainment, and I even got a bit sporty for once, all while enjoying the sweltering heatwave. So it was a pretty good month, and I hope you enjoy my review of it.

And if you do enjoy reading about the things I get up to, I would love it if you would consider sponsoring my charity abseil in September. That would mean a lot to me. A massive thank you to my amazing sponsors so far! I’ll keep updating that shoutouts page as donations come in, including links for fellow bloggers, so do chip in if you want a mention. You’ll also get mentions in my videos as well, as a couple of people have done in this case. Quite a few people have donated since I filmed the video last week!

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Nightmares At The Theatre

Over the past couple of months I’ve seen a couple of theatre shows which are in complete contrast to each other – one a dramatic play (A Monster Calls), the other an interactive comedy (Knightmare Live). Yet both feature monsters and scary situations in their own way. So as I’ve only had the chance to write about them now, I thought I’d put them together in one post, because they’re so different.

So I hope you like reading about them. They’ve both finished their runs at their respective venues, but they may well appear elsewhere. So I recommend keeping an eye out for them, as I did enjoy them both. And if this post does entertain you, please consider sponsoring my upcoming charity abseil – that will be a bit scary for me, but I’m very excited about it too!

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March 2018 Favourites

Well, that’s an early Easter out of the way for this year, and I hope everyone had a great time. We had the typical bank holiday weather here in the UK – i.e. wet – but on the plus side we also had lots of treats to indulge on as well, so it’s been like another Christmas in that sense. Indeed, with the wintery weather still hanging around, you’d be forgiven for not realising it was spring yet. Still, just like February, once again the weather hasn’t stopped me from having another very successful month.

But before I get on to the details, I just want to very quickly mention a free event I’m attending in April that you might also be interested in. I’m not being paid to mention it, but I am one of their voluntary social media ambassadors. And regardless of that, I’m genuinely intrigued by the whole thing anyway, having never heard of it before, so it deserves a mention in any case. And I don’t want to bury it at the bottom of the post where nobody will see it.

So to quote them directly:

Naidex is Europe’s most exciting event dedicated to the disability, independent living and healthcare professional sectors. Taking place at the NEC Birmingham on the 25th and 26th April, this esteemed event provides cutting-edge exhibitors, world-class CPD accredited seminars, live demos, 1-2-1 advice and unparalleled networking opportunities, over two unforgettable days. And it’s absolutely free to attend! Register for your FREE ticket on naidex.co.uk!

There are bold claims there, I know, but in all fairness I’ve looked through the show guide listing the exhibitors, speakers and events, and it really is very exciting. PLus it is their 44th year, so they know what they’re doing. I’ll be there both days and will have no problem filling the time, and I will of course tell you all about it. But I recommend going too if you can – it’s free, so you just have to be able to get to Birmingham on at least one of those days, and you need to register for tickets on their website in advance. If you’re a fellow blogger who’s also going, and you want to say hello there or collaborate in some way in relation to it, you’re welcome to get in touch. And if you know others who might want to go, pass it on!

Ok, that’s all I have to say about it, I just felt it deserved a plug. Now let’s crack on with my latest favourites post and video, so you can see what I’ve been up to. I hope you enjoy it!

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Growing Up With Sight Loss

When I started my blog and Youtube channel, I assumed that the only talking I’d be doing for people about my disability was purely from the comfort of my own home, reaching people through their computers and smart devices. But then, last year, I ended up giving my first ever public talk to adults at the Nystagmus Network Open Day, about building my new social network. It was a complete surprise and a completely new experience for me, and one that I assumed was going to be a one-off.

However, earlier this month I had the opportunity to give another talk, this time for a very different audience – primary school children, around 9 to 11 years old.  I won’t name the school or the people involved – they’re awesome and know who they are anyway – but what I want to do here is give you an overview of what I said. I wanted to take the time to write it down for posterity anyway, as I went over it in my head beforehand rather than writing a script.

So I figured you might find it interesting to read as well (or watch my video if you prefer), as it gives another perspective on my journey through life to date.

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Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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50 Random Facts About Me

This is an idea I’ve seen elsewhere that I thought might be fun to do, so you can find out a bit more about me. A few of these facts you’ll know from elsewhere in my blog, but most I’ve never mentioned here before.

Since posting this, I’ve also made a video, which contains some of the same information as this post, but also some different facts as well, so do check it out:

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