Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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50 Random Facts About Me

This is an idea I’ve seen elsewhere that I thought might be fun to do, so you can find out a bit more about me. A few of these facts you’ll know from elsewhere in my blog, but most I’ve never mentioned here before.

Since posting this, I’ve also made a video, which contains some of the same information as this post, but also some different facts as well, so do check it out:

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The VIP Daily Living Tag

There’s a new Visually Impaired Persons Tag doing the rounds at the moment, initiated by My Blurred World and Life of a Blind Girl, and Fashioneyesta has also responded to it at the time of writing. They’re all superb posts by superb bloggers, so they’re worth checking out. Although I’ve not been tagged myself, I’m going to jump on the bandwagon and join in anyway, as I do think they’re great questions. So hopefully nobody will mind. 🙂

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Growing In Confidence

A summary of this post was featured in Scope’s blog for Anti-Bullying Week.

Today I wanted to look back at how my confidence has developed over the years, after a difficult start. At home it’s never been a problem – my parents are both visually impaired, so they and my relatives have always been understanding and supportive from the outset. But away from the family, it hasn’t always been as easy. I’ve also made a video about my school days which relates closely to this post.

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