February 2018 Favourites

Well, what a way to start a new month, with snow all over the place! Winter has seemed very reluctant to let Spring take over, but hopefully things will warm up in the coming weeks now.

And the cold weather didn’t stopped February from being an eventful month. Following on from my January 2018 Favourites, it’s now time to look through what I’ve been enjoying in February. And even though it’s the shortest month, I seem to have packed quite a bit in! So I hope you enjoy this post and video for February.

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Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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Harry Potter Studio Tour Review

Harry Potter has been cropping up with some regularity in my London itinerary over recent months. Back in October I saw The Cursed Child at the theatre, complete with a touch tour on stage and audio description during the show, which was amazing, And shortly after that I did the Tour For Muggles, which was a very enjoyable walking tour around filming locations in London. And now this month I’ve also had a couple of things booked into my diary, including the British Library’s History Of Magic exhibition that I’ll be going to very soon.

But last weekend I did something which trumps all of that in the Harry Potter stakes – the Warner Bros Studio Tour – The Making Of Harry Potter. So in this post and video I’m going to tell you all about my experience, including some of my thoughts from an accessibility perspective.

I’ve also been posting photos on my Instagram during the week, and I’ve now uploaded a nmore extensive Facebook album as well. I’ve also posted a video showing the footage I recorded at the studios, and I’ve made a haul post about the merchandise I bought there. So I’ve got plenty to get through, and I hope you enjoy looking through it all!

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2017 Review – Christmas Favourites

Happy New Year everybody! I hope you all had a lovely Christmas, and that 2018 is a joyful and prosperous year for you. 🙂

I’m very much looking forward to the year ahead after an eventful and successful 2017, which you can read about in my 2017 review post. I posted quite a bit over the holiday period in fact, including my entertainment favourites for the year, and a big Christmas Q&A about how I spend Christmas in general, with photos and video footage of me enjoying Christmas as a child. So do go back and check my recent posts if you were busy celebrating and missed them.

For this post I just wanted to quickly bring you up to date with how my Christmas went. I’ve also filmed a video to go with this, which has my general reflections on 2017 as well. If you’ve been following me on Instagram you’ll have seen some of the photos I posted over Christmas – and I’m going to try and make more use of Instagram this year if I can as well. So I hope you enjoy my little Christmas update, tying up the loose ends before I enjoy the year ahead!

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2017 Review – My First Year In London

As I mentioned in a recent blog post, this Christmas marked my first anniversary of moving to London, and 2017 has been an amazing year.

I said it in that post, but it’s worth saying again – thank you so much to everyone I’ve met and interacted with during the year, whether it be in person or online. By reading, liking and sharing my content, leaving comments, asking questions, sending me private messages and emails, giving me opportunities for guest posts and public talks, and even meeting up in person, you’ve helped to make this year a very special one for me. Especially Fashioneyesta, Aniridia Network UK, Nystagmus Network, East London Vision, South East London Vision, Thinking Bob, VocalEyesRNIB, Scope, Life Of A Blind Girl, My Blurred World, Luke Sam Sowden and All The Stations, but also everyone else that I’ve had any kind of contact with during the year.

Everyone has been very positive and supportive, and your involvement has enabled me to start this new chapter in my life with confidence and comfort, and fun and friendship. And for that I’ll always be very grateful. 2017 will forever be one of the most significant and happy of my life, nothing will take that away. I hope everyone else has had a good 2017 too, and I hope 2018 is a very prosperous and Happy New Year for you!

So I wanted to do an overview post, running through the things I’ve been up to in the busiest year of my life to date. It’ll give you a good sense of how things developed, and will allow you to check out any blog posts or videos you may have missed if you only found me relatively recently. You can also check out a comprehensive list of places I’ve visited on my Out & About Adventure page at any time. I also recommend you look back through my Youtube videos, especially my London videos and disability videos as there’s no way I can list everything here. And there are loads of Instagram photos you can enjoy as well. So I hope you enjoy my little journey down a very busy memory lane!

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Christmas With The Stars

This week I finally went to my first concert since moving to London. I’ve been to a few musicals this year, but not an actual concert. And this was in arguably the most iconic concert venue in London – The Royal Albert Hall. I went there with the family in my youth for a Christmas concert, though I don’t remember it now of course. So going to a Christmas concert there this year felt like the first time really. And it was all for a good cause too.

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Victoria & Albert Museum

The Victoria & Albert (V&A) Museum is one of the most well-known and exciting museums in the city, because of the huge variety of fascinating historical objects it holds in its many galleries. So it was one of the places I was really looking forward to visiting when I moved to London.

So I’ve now been there twice this year. I first visited back in April, but never got around to blogging about it at the time. And then I went back again last weekend. The most recent trip is the most significant that I want to talk about, but I’ll briefly fill you in on my first visit too, as it’s a good opportunity to do so.

Chandelier in the main hall of the V&A Museum. It has many curved intertwining tubes with bulbous ends, in a mixture of blue and green colours, forming a teardrop-like shape overall.

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