#WhatMakesMe

When people first meet me or look at my blog or social media, it’s easy to focus on the fact that I have a disability, because of the different ways that I have to do things as a result.

However, my visual impairment is just one part of me. It does have an impact on me, sure, and is an important aspect of my life. But it doesn’t stop me from being happy and successful and exploring the world around me. So there is far more to me and my identity than just a couple of wonky eyes, as regular readers of my blog will know already.

So in this post I want to list some of the other key things that make me who I am, all of which seem to begin with the letter C now I think about it. I was tagged to do this by Holly at Life Of A Blind Girl, and the #WhatMakesMe tag was originally created by Gem Turner. So thank you to Gem for initiating it and Holly for nominating me, and I hope you all enjoy reading about what makes me who I am.

Continue reading “#WhatMakesMe”

October 2018 Favourites

We’re deep into autumn now, with Christmas edging ever closer. And now that we’re well into the penultimate month of the year, it’s time for a look back at October to see what I got up to.

The major event, of course, was my charity abseil for nystagmus research, and you can find out all about it in my epic blog post and video. There are lots of photos and video highlights from the day, especially from the headcam I was wearing during my descent. So do go and check all of that out. Huge thanks to everyone who sponsored me, and you can still donate until 23 March 2019.

But there were still other bits and pieces going on during October as well. So I’m going to tell you about them here, and there’s also a video to go with this post as usual. I hope you enjoy my latest recap!

Continue reading “October 2018 Favourites”

Queen At The Cinema & Carnaby

Queen are my favourite band of all time. While the words ‘genius’ and ‘legend’ can be overused, they undoubtedly apply to Freddie Mercury, who was taken from us far too soon. And all of the members of the group are legends in their own right. I never get tired of hearing their amazing music.

And right now the band are experiencing yet another wave of well-deserved popularity and publicity thanks to the new Bohemian Rhapsody movie that came our recently. There were some hurdles in its development, it’s fair to say, but they got there in the end. And to help celebrate it, the shopping district of Carnaby in London have got lights up with lyrics from Bohemian Rhapsody and a special pop-up Queen shop that’s also a mini-museum.

So back in October I visited the Queen shop soon after it opened and got myself a few things. And then yesterday I went to see the film, and took another walk to Carnaby to see the lights. So in this post I’m going to tell you what I thought of the movie, share some photos of the Carnaby lights and the Queen shop, and show you what I bought. I hope you enjoy it!

Note: This post is not sponsored, and I’ve had no contact with anybody connected with Carnaby, Queen or the movie. I explored all of this purely as a fan, so all opinions are my own.

Continue reading “Queen At The Cinema & Carnaby”

March 2018 Favourites

Well, that’s an early Easter out of the way for this year, and I hope everyone had a great time. We had the typical bank holiday weather here in the UK – i.e. wet – but on the plus side we also had lots of treats to indulge on as well, so it’s been like another Christmas in that sense. Indeed, with the wintery weather still hanging around, you’d be forgiven for not realising it was spring yet. Still, just like February, once again the weather hasn’t stopped me from having another very successful month.

But before I get on to the details, I just want to very quickly mention a free event I’m attending in April that you might also be interested in. I’m not being paid to mention it, but I am one of their voluntary social media ambassadors. And regardless of that, I’m genuinely intrigued by the whole thing anyway, having never heard of it before, so it deserves a mention in any case. And I don’t want to bury it at the bottom of the post where nobody will see it.

So to quote them directly:

Naidex is Europe’s most exciting event dedicated to the disability, independent living and healthcare professional sectors. Taking place at the NEC Birmingham on the 25th and 26th April, this esteemed event provides cutting-edge exhibitors, world-class CPD accredited seminars, live demos, 1-2-1 advice and unparalleled networking opportunities, over two unforgettable days. And it’s absolutely free to attend! Register for your FREE ticket on naidex.co.uk!

There are bold claims there, I know, but in all fairness I’ve looked through the show guide listing the exhibitors, speakers and events, and it really is very exciting. PLus it is their 44th year, so they know what they’re doing. I’ll be there both days and will have no problem filling the time, and I will of course tell you all about it. But I recommend going too if you can – it’s free, so you just have to be able to get to Birmingham on at least one of those days, and you need to register for tickets on their website in advance. If you’re a fellow blogger who’s also going, and you want to say hello there or collaborate in some way in relation to it, you’re welcome to get in touch. And if you know others who might want to go, pass it on!

Ok, that’s all I have to say about it, I just felt it deserved a plug. Now let’s crack on with my latest favourites post and video, so you can see what I’ve been up to. I hope you enjoy it!

Continue reading “March 2018 Favourites”

Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

Continue reading “Rare Disease Day Photo Challenge”

Harry Potter Studio Tour Haul

Following on from my review of the Harry Potter Studio Tour, in this post and video I want to show you the merchandise I bought in relation to it.

Up until now, I only owned the audiobooks, the Ultimate Edition Blu-rays (which replaced earlier DVD version of the films I had), and downloads of the film soundtracks. So this is the first time I’ve really got into buying Harry Potter themed stuff apart from that – with one slight exception that I’ll mention later, but basically I’ve never bought any other merchandise before.

There’s so much to buy in relation to the tour, so I did end up spending quite a bit. But it’s worth it to get some unique and special souvenirs. Some of the items I bought at the attraction on the day, and some I bought later from their online store, because there was no way I could carry everything I wanted home from the tour, and there were a few things I couldn’t find in the gift shop there anyway. So I hope you enjoy seeing all the things that I bought.

Continue reading “Harry Potter Studio Tour Haul”

Christmas Q&A

MERRY CHRISTMAS!!! 🙂

I hope everyone’s having a wonderful time, with all the fun and food and festivities that Christmas brings!

If you’re working to keep services and utilities running, or you’re volunteering to help out those less fortunate e.g. the disabled, elderly, homeless, etc, then thank you so much for your efforts and commitment, as you don’t get as much gratitude as you deserve for it.

And if you’re not having a nice Christmas for whatever reason, then you have my sympathies, and I hope you’re able to find some support or company to help get you through the day. There are lots of options if you need someone to talk to.

For me, this Christmas is hugely significant, as it’s my first proper one as a resident of London. So I wanted to mark it with a couple of special posts.

Yesterday, therefore, I made an extensive post about my Christmas music collection, following the advent calendar music posts I’ve been making on social media this month.

And now today’s post is a Christmas Q&A , all about how I celebrate and enjoy Christmas, and I’ve also made a video to go with it. Everyone reading this is welcome to answer the questions as well, I tag everyone who wants to do it. So I hope you enjoy reading my festive posts, and finding out about how I celebrate Christmas!

Continue reading “Christmas Q&A”