After a long pandemic-enforced absence – during which madness threatened to take its toll, because time was anything but fleeting – it seems appropriate that my return to the glorious world of musical theatre was to the most infectious show of them all.
As a big fan of the film and the music, seeing Rocky Horror live has been on my bucket list for ages, as I’ve never had a good opportunity to go before. So when an audio described performance was announced by Sadler’s Wells as part of the current Rocky Horror tour, I was only too eager to jump to the left… I mean, at the chance… to lose my Rocky Horror virginity. So I bought myself a ticket, knowing that it was an afternoon out I was going to remember. For how long? For a very long time!
Autumn is now upon us, as is the second wave of the pandemic, and I know this will be a very difficult period for many, just as the whole year has been. So I hope you’re all continuing to keep safe and well as best you can.mu
For my part I’m still doing fine thus far, and still keeping myself occupied. I’ve been getting out and about more, and have continued to enjoy various forms of entertainment at home. So here’s my latest post and video roundup, in which nothing is sponsored or gifted as usual. I hope you enjoy!
Hello again, and welcome to my latest monthly recap. I’ve been a bit quiet here this past month, and that’s because I had to take a step back while working on a couple of important things – neither of which I can give you a lot of detail about in this post, although I will briefly tease you about them.
A lot of my time was spent preparing for this year’s Aniridia Network Conference. Not only was I going to be capturing photos and video, but I also had to prepare and rehearse a talk of my own, about how I’ve grown in confidence with aniridia. So that was naturally on my mind a lot. The successful event took place on 1 June, and all of the talks were filmed, which I’ll be editing and uploading to the charity’s Youtube channel in the weeks to come. So I’ll share my talk with you at a later date. In the meantime, do also keep an eye out for Aniridia Day on 21 June, which will raise awareness of the condition worldwide, and show your support if you can.
I was also on camera during May itself though, for another exciting reason, because a mini documentary was made about me by a wonderful group of film students. I really enjoyed the experience, and I’m very pleased with how the film’s come out. I’ll tell you all about it in a separate post later, after the video has been published (although there is a sneaky preview in the video relating to this post). It was made for a major disability charity, so I’m waiting to see if they’ll post it first. But I have permission to publish it on my own channel as well, so it’ll end up there in due course. In any case, I’m really looking forward to sharing it with you!
Those events aside, there are still some other bits and pieces I can tell you about in this month’s post and video. As always, I’m not sponsored by anybody mentioned here, nothing has been gifted, and all opinions are my own. So let’s crack on with it, and I hope you enjoy as per usual!
Welcome to my epic Christmas Favourites post for this year! I hope you’ve all had a lovely festive season, or found some support, solace, comfort and company if you needed it. And if you were working over the holidays, especially if you’re in the emergency services and other essential jobs, you have my utmost admiration and respect.
Also a very big thank you to everyone who has supported my blog and my adventures over what has been an incredible second year in London for me. It’s been full of even more amazing surprises and adventures than the first year. Raising £920 from my charity abseil for nystagmus research and giving a speech to primary school children about growing up with sight loss were my 2 biggest and most surprising achievements this year without a doubt. But there’s been so much more going on as well, as you can see from all of my Favourites posts for the past 12 months.
I really do feel like I’ve settled into London properly now. I’ll always want to experiment with new things and meet new people, that’s one of the many great things that living in such a wonderful city enables you to do. But the foundations I laid by doing that in 2017 definitely enabled me to have more confidence in 2018, so I had a much better idea of the things I enjoyed doing most, I was less shy around people, and I made more friends on an individual level beyond just going to social groups.
And my blogging has also gone well this year. It’s only ever been a hobby on the side really, so I’m delighted that people are taking an interest. And my efforts have already been far more rewarding than I could ever have anticipated, with all the wonderful opportunities and feedback I’ve received, and the friends I’ve made along the way. I’m getting far more success and satisfaction from this than I’d ever expected. So again, many thanks to everyone for your support. It’s greatly appreciated that you find my posts interesting, entertaining and inspiring.
So with all that in mind, I’m very much looking forward to seeing what 2019 brings, and I hope you’ll stick with me for it!
But first we need to wrap up 2018, and there’s a lot to tell you about, including theatre shows, light displays, walks, food, clothing, TV & radio shows, online entertainment, music and more. So I hope you enjoy this bumper post and video about my yuletide adventures!
When people first meet me or look at my blog or social media, it’s easy to focus on the fact that I have a disability, because of the different ways that I have to do things as a result.
However, my visual impairment is just one part of me. It does have an impact on me, sure, and is an important aspect of my life. But it doesn’t stop me from being happy and successful and exploring the world around me. So there is far more to me and my identity than just a couple of wonky eyes, as regular readers of my blog will know already.
So in this post I want to list some of the other key things that make me who I am, all of which seem to begin with the letter C now I think about it. I was tagged to do this by Holly at Life Of A Blind Girl, and the #WhatMakesMe tag was originally created by Gem Turner. So thank you to Gem for initiating it and Holly for nominating me, and I hope you all enjoy reading about what makes me who I am.
We’re deep into autumn now, with Christmas edging ever closer. And now that we’re well into the penultimate month of the year, it’s time for a look back at October to see what I got up to.
The major event, of course, was my charity abseil for nystagmus research, and you can find out all about it in my epic blog post and video. There are lots of photos and video highlights from the day, especially from the headcam I was wearing during my descent. So do go and check all of that out. Huge thanks to everyone who sponsored me!
But there were still other bits and pieces going on during October as well. So I’m going to tell you about them here, and there’s also a video to go with this post as usual. I hope you enjoy my latest recap!
Queen are my favourite band of all time. While the words ‘genius’ and ‘legend’ can be overused, they undoubtedly apply to Freddie Mercury, who was taken from us far too soon. And all of the members of the group are legends in their own right. I never get tired of hearing their amazing music.
And right now the band are experiencing yet another wave of well-deserved popularity and publicity thanks to the new Bohemian Rhapsody movie that came out recently. There were some hurdles in its development, it’s fair to say, but they got there in the end. And to help celebrate it, the shopping district of Carnaby in London have got lights up with lyrics from Bohemian Rhapsody and a special pop-up Queen shop that’s also a mini-museum.
So back in October I visited the Queen shop soon after it opened and got myself a few things. And then yesterday I went to see the film, and took another walk to Carnaby to see the lights. So in this post I’m going to tell you what I thought of the movie, share some photos of the Carnaby lights and the Queen shop, and show you what I bought. Nothing here is sponsored or gifted, and I hope you enjoy it!
Well, that’s an early Easter out of the way for this year, and I hope everyone had a great time. We had the typical bank holiday weather here in the UK – i.e. wet – but on the plus side we also had lots of treats to indulge on as well, so it’s been like another Christmas in that sense. Indeed, with the wintery weather still hanging around, you’d be forgiven for not realising it was spring yet. Still, just like February, once again the weather hasn’t stopped me from having another very successful month.
But before I get on to the details, I just want to very quickly mention a free event I’m attending in April that you might also be interested in. I’m not being paid to mention it, but I am one of their voluntary social media ambassadors. And regardless of that, I’m genuinely intrigued by the whole thing anyway, having never heard of it before, so it deserves a mention in any case. And I don’t want to bury it at the bottom of the post where nobody will see it.
So to quote them directly:
Naidex is Europe’s most exciting event dedicated to the disability, independent living and healthcare professional sectors. Taking place at the NEC Birmingham on the 25th and 26th April, this esteemed event provides cutting-edge exhibitors, world-class CPD accredited seminars, live demos, 1-2-1 advice and unparalleled networking opportunities, over two unforgettable days. And it’s absolutely free to attend! Register for your FREE ticket on naidex.co.uk!
There are bold claims there, I know, but in all fairness I’ve looked through the show guide listing the exhibitors, speakers and events, and it really is very exciting. Plus it is their 44th year, so they know what they’re doing. I’ll be there both days and will have no problem filling the time, and I will of course tell you all about it. But I recommend going too if you can – it’s free, so you just have to be able to get to Birmingham on at least one of those days, and you need to register for tickets on their website in advance. If you’re a fellow blogger who’s also going, and you want to say hello there or collaborate in some way in relation to it, you’re welcome to get in touch. And if you know others who might want to go, pass it on!
Ok, that’s all I have to say about it, I just felt it deserved a plug. Now let’s crack on with my latest favourites post and video, so you can see what I’ve been up to. I hope you enjoy it!
Update (March 1st) – I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂
Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.
1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.
There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.
This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.
Harry Potter has been cropping up with some regularity in my London itinerary over recent months. Back in October I saw The Cursed Child at the theatre, complete with a touch tour on stage and audio description during the show, which was amazing, And shortly after that I did the Tour For Muggles, which was a very enjoyable walking tour around filming locations in London. And later this month i’ll be going to the British Library’s History Of Magic exhibition.
But last weekend I did something which trumps all of that in the Harry Potter stakes, by visiting the Warner Bros Studio Tour: The Making Of Harry Potter. So in this extensive post I’m going to tell you all about my experience, including some of my thoughts from an accessibility perspective, and the merchandise I picked up.
Well Eye Never 
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