We’ve reached the halfway point in the year, and summer is finally blessing us with decent weather. And I’ve had a very busy month!
Firstly, there have been some disability related developments, most of them positive. In particular, I’ve spoken at a conference, been a guest on a podcast, and I was filmed for another documentary. So my visual impairment led to a few great opportunities in quick succession, I’m happy to say.
On the downside, I’ve finally received the call-up letter to switch from Disability Living Allowance (DLA) to Personal Independence Payments (PIP). This basically means I have to fill out a huge form about how my disability affects me, and then have a face-to-face assessment with a health professional, so the government can decide if I’m entitled to benefit payments. It sounds relatively simple when worded like that, but most disabled people will tell you it’s anything but. So that’s going to be on my mind a lot over the next couple of months at least, and I’m not looking forward to the process. But I’ll let you know how it goes at a later date. I’m not going to bore you with a rant about it in this post!
Thankfully, apart from that, I’ve been able to enjoy the month in many other ways. I went on a lovely weekend break with my girlfriend, I’ve been out in London for more exhibitions and walks, my girlfriend and I enjoyed a new film at the cinema, and I’ve enjoyed new TV shows and music releases at home. So there’s plenty to get through. As always, I’m not sponsored by anyone mentioned here, I’m just sharing these things because I enjoyed them. And I hope you enjoy this month’s post and video!
Continue reading “June 2019 Favourites”
Naidex is Europe’s largest event showcasing the latest technology, products and services for disabled people, helping them to live, work and travel with greater independence and comfort. The event is now in its 45th year and it’s absolutely massive, occupying a large hall in the NEC Birmingham for 2 days.
I first went to the show last year, having never heard of it before, and enjoyed having a good look around over both days. I took in as much as I could, even things that weren’t particularly relevant to me, to get a good sense of what was there. So this year, now that I knew what to expect, I was able to prepare more, and only went for 1 day. I knew that would be enough time to see everything that was of most relevance and interest to me, and I think it was a wise move. Other people may find going for both days very beneficial though, it just depends how much you want to look at.
Also for the second year running, I was proud to be an ambassador for the show. That simply means we plug each other on social media, so I give them shoutouts and they promote my blog in return. Beyond that, I’ve not been gifted in any way to promote or mention the show, I paid all of my own expenses to attend, and I’m not obliged to give any kind of review. Likewise, I’m not sponsored by or affiliated with any companies mentioned in this post. I just want to go through what I saw and picked up information about, and all opinions are my own as always.
So let’s get on with it, and I hope you enjoy my rundown of Naidex 2019!
Continue reading “Naidex 2019”
Even though my abseil for nystagmus research has had to be postponed (it’ll now be on 21st October), nystagmus has still been the big topic this month, because on Saturday I attended the annual Open Day held by the Nystagmus Network.
This was my second time going to this event, following my experience last year when I gave my first public talk. So this year was much more relaxed, because I didn’t have to do anything! And it was a wonderful day, so I thought I’d give an overview of how it went.
Continue reading “Nystagmus Network Open Day 2018”
On the 25th and 26th of April I went to the Naidex show for the first time, which was held in the Birmingham NEC. It’s Europe’s biggest event dedicated to disability and independent living, and is full of companies showcasing the latest technology, products and services they have to offer, along with seminars and panel discussions, a mobility test track, a sporting arena for people to try out different activities, a moving and handling lab offering training for healthcare professionals, and more. And it’s completely free to attend, which makes it very worthwhile going to check it all out.
I’d never heard of the event before, so I was very intrigued to see what it was all about. I became aware of it because I was one of various bloggers contacted by Cláudia from the Prysm Group marketing team. As well as telling me about the event, she asked if I wanted to be an ambassador for it – which basically involved me giving them a plug on my social media channels, and they would promote my blog in return. I was happy to do that, given my interest in the event, so that’s what we did. Hence you will have seen me mentioning them every so often over the past month, and they did indeed share the link to my blog on Facebook and Twitter a couple of times as well. I didn’t receive any payments or gifts for it, we were literally just exchanging posts to promote each other.
And the event itself was great, I really enjoyed exploring it over both days. I’ve already written about my travel and hotel stay in another post, so now I want to give you a comprehensive review of the event itself, and tell you about the various companies, products and services that I became aware of. As a result, this is quite a long post, but it is divided into headings if it’s helpful. So I hope you enjoy reading about it!
Note: Footage from the event can be seen in my April Favourites video. I also discussed my Naidex visit with Fern Lulham on AMI Audio‘s Kelly & Company show on 24 May 2018.
Continue reading “Naidex 2018”
Recently I went to the Naidex event in Birmingham – Europe’s largest show dedicated to disability and independent living – which you may have seen me mentioning on social media recently. I explain more in my full review of the show in my next post. But here I thought I’d tell you about my travel to Birmingham and review my hotel stay, to get that out of the way.
And to be clear, I paid for everything out of my own money, I didn’t have any special arrangements with Naidex or anyone involved with it. I helped to promote them a bit on social media, in return for them promoting my blog, but that was as far as our connection went. So I hope you enjoy this post, before I get on to my epic show review!
Continue reading “Travelling to Birmingham for Naidex”
On Saturday, I attended the Nystagmus Network‘s Open Day in Birmingham, the first time I’ve ever been to an event of this nature. The only time I’ve previously met a group who share one of my eye conditions was after Sight Village last year, when I got together with a handful of people with aniridia in a coffee shop. And that was wonderful, but this weekend’s event was on a much bigger scale. This time, I was going to a big conference for people with nystagmus with hundreds of people in attendance. And I was very much looking forward to.
However, I was also nervous, because I had been invited to be one of the speakers – making this the first time I would ever give a talk in public about myself. I wrote in my last post about how this came about, and how I prepared for it. So now I want to tell you about the day itself and how it went.
Continue reading “Speaking at the Nystagmus Network Open Day”
This weekend I was invited to attend the Nystagmus Network Open Day in Birmingham. Although I’ve been to things like Sight Village before, where I got to meet a handful of people with aniridia, I’ve never been to a large, dedicated conference for people with the same eye condition to network and find out information. So that in itself was going to be interesting.
But I wasn’t just a regular attendee – I was going to be one of the speakers! So that meant doing another first – publicly talking about myself and my life. This was naturally a daunting prospect, but exciting too. So I agreed to give it a go, it was worth a try.
And I wanted to write in detail about my experience, which I’m going to split over a couple of posts so it doesn’t get too long. I’m then going to publish a written article version of my speech here, and a video version on my Youtube channel, so you can see what I said, and maybe it will give you some inspiration and reassurance too. So I’ve got quite a bit to share!
Continue reading “Preparing For My First Public Talk”
April 2021 Introduction:
It’s time to rewind 15 years exactly as we look at another set of entries from my old journal. This was the month we got broadband at home for the first time, I got some equipment to help me do my job from Access To Work, and I attended another printing trade show with my work colleagues. There were also more DVD and music purchases, the return of Doctor Who for its second series, and various other bits and pieces as usual. So I hope you enjoy this latest look back!
Continue reading “Journal – April 2006”
February 2021 Introduction:
Welcome to another set of my old journal entries. It’s fair to say this was a month of mixed fortunes for the UK, particularly in London, and especially in the first week when so much happened in quick succession. I wasn’t living in London at the time, I was far away in Devon, but the events were so significant and dominated the news so heavily that I naturally wrote a lot about them.
On the one hand London hosted one of the massive worldwide Live 8 concerts, that gave us a lot of entertainment while sending an important message. Plus the city won the bid to host the 2012 Olympics, which was fantastic news. But all of that was quickly overshadowed by the bomb attacks on London’s transport network. And if reading about those is likely to upset you, then please feel free to skip some or all of this post as you feel necessary.
There are little updates about me in amongst all of that as well though, relating to my career and entertainment, and there are other bits of news I mention too. So even though some of this isn’t cheerful, I hope you find it an interesting look back nonetheless.
Continue reading “Journal – July 2005”