The Sunshine Blogger Award

I enjoy doing Q&A tag posts, whether they’re disability related or on other topics, as they’re a nice way to connect with other bloggers so we can get to know each other better, and it’s also lovely to be invited to participate in them.

And this time around, appropriately for summer, I’ve been very kindly nominated for the Sunshine Blogger Award. This award is given by bloggers to other bloggers, to recognise and celebrate the creativity, positivity and inspiration in their work.

So to be nominated just once by anybody is a great honour. But over the last few weeks I’ve been nominated THREE times, which is extremely flattering! So thank you very much indeed to Holly (Life of a Blind Girl), Luke Sam Sowden & Carol (The Invisible Vision Project), it’s very generous of you all to nominate me! They’ve all asked completely different questions too, which is wonderful. So I hope you enjoy reading my answers to them all.

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May 2018 Favourites

May was a lovely month. The weather’s been gorgeous lately, for the most part, and with no major events going on it’s been quite a relaxing few weeks .But there are still various bits and pieces I’ve enjoyed, and want to mention in this latest post and video update. So I hope you find this interesting.

To start with though, I just quickly want to plug a couple of upcoming events in June that will interest some of you. They’re for people all over the world to join in with, not just the UK. The more the merrier really, as it will help to spread vital awareness in both cases.

Sue Ricketts talking to a lady at the Nystagmus Network table ,with a tall poster next to it giving details of the charity.June 20th will be Nystagmus Awareness Day, which is its new permanent date, having moved from November. This year’s theme is Nystagmus In The Open, where people are being encouraged to do outdoor activities to raise funds and generate awareness. Sue, who runs the Nystagmus Network, is opening her garden for people to visit, for instance. People are also being invited to submit their stories online to show how amazing people with nystagmus are.

The Aniridia Day logo is a cartoon style image of the Earth, wearing sunglasses, smiling and giving a double thumbs up. Curving over the top, in yellow text with black outline, are the words “Aniridia Day”. Below the Earth in bold black text is 21 June, and below that the address for aniridiaday.org.June 21st will then be Aniridia Day. This is the second time it’s been held, as it was a big success last year. This year’s awareness campaign is called Aniridia Sight, where we want people with aniridia to share a photo or video of a scene, and describe how they see it through their eyes. So the more people that get involved, the more we can show how varied the vision of people with aniridia is. And then there will hopefully be live webinars too, for people to discuss aniridia related topics e.g. doctors, researchers, people with aniridia, etc. If you’d be interested in doing a webinar on the day, please fill out the form to sign up.

So now that’s out of the way, let me tell you what I’ve been up to in May.

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2017 Review – Entertainment Favourites

As well as having adventures in London, I’ve also been enjoying lots of TV shows, radio programmes, podcasts, films and music this year. And yet I’ve only wrote about some of it. So I wanted to bring that side of things up to date. Then in 2018 I want to start doing monthly favourites posts, like other bloggers do.

I’ve also done a video on this topic as well, although this post will mention a few things that I forgot to mention in that clip too.

Be aware that this generally doesn’t include anything I watched over Christmas (with a couple of notable exceptions), as there’s going to be a separate post about my Christmas favourites from this year. I’ll also be doing a separate post listing the DVDs I’ve bought during the year, as I haven’t done an update on those for ages, so this post won’t mention those either.

So I hope you enjoy looking through this list of what I’ve enjoyed during 2017. Feel free to let me know your favourites too!

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Preparing For My First Public Talk

This weekend I was invited to attend the Nystagmus Network Open Day in Birmingham. Although I’ve been to things like Sight Village before, where I got to meet a handful of people with aniridia, I’ve never been to a large, dedicated conference for people with the same eye condition to network and find out information. So that in itself was going to be interesting.

But I wasn’t just a regular attendee – I was going to be one of the speakers! So that meant doing another first – publicly talking about myself and my life. This was naturally a daunting prospect, but exciting too. So I agreed to give it a go, it was worth a try.

And I combined this with yet another first – recording a proper travel vlog, the pilot episode of “Glen Cam”! I didn’t film inside the event, but I recorded myself before and after. I’m currently editing it all together, so you’ll be able to see that on my Youtube channel very soon.

But I wanted to write in detail about my experience as well, which I’m going to split over a couple of posts so it doesn’t get too long. I’m then going to publish a written article version of my speech here, and a video version on my Youtube channel, so you can see what I said, and maybe it will give you some inspiration and reassurance too. So I’ve got quite a bit to share!

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