May 2018 Favourites

May was a lovely month. The weather’s been gorgeous lately, for the most part, and with no major events going on it’s been quite a relaxing few weeks .But there are still various bits and pieces I’ve enjoyed, and want to mention in this latest post and video update. So I hope you find this interesting.

To start with though, I just quickly want to plug a couple of upcoming events in June that will interest some of you. They’re for people all over the world to join in with, not just the UK. The more the merrier really, as it will help to spread vital awareness in both cases.

Sue Ricketts talking to a lady at the Nystagmus Network table ,with a tall poster next to it giving details of the charity.June 20th will be Nystagmus Awareness Day, which is its new permanent date, having moved from November. This year’s theme is Nystagmus In The Open, where people are being encouraged to do outdoor activities to raise funds and generate awareness. Sue, who runs the Nystagmus Network, is opening her garden for people to visit, for instance. People are also being invited to submit their stories online to show how amazing people with nystagmus are.

The Aniridia Day logo is a cartoon style image of the Earth, wearing sunglasses, smiling and giving a double thumbs up. Curving over the top, in yellow text with black outline, are the words “Aniridia Day”. Below the Earth in bold black text is 21 June, and below that the address for aniridiaday.org.June 21st will then be Aniridia Day. This is the second time it’s been held, as it was a big success last year. This year’s awareness campaign is called Aniridia Sight, where we want people with aniridia to share a photo or video of a scene, and describe how they see it through their eyes. So the more people that get involved, the more we can show how varied the vision of people with aniridia is. And then there will hopefully be live webinars too, for people to discuss aniridia related topics e.g. doctors, researchers, people with aniridia, etc. If you’d be interested in doing a webinar on the day, please fill out the form to sign up.

So now that’s out of the way, let me tell you what I’ve been up to in May.

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Happy Star Wars Day!

If you don’t know what that title means, it’s because of the date – May the 4th be with you.  🙂

This is my 30th post already, and I just wanted to say a quick thank you to those who have been reading, commenting, liking and following this collection of randomness so far. It’s my first foray into blogging, and I’m not trying to do anything fancy or change the world with it. I mainly just felt inspired to share some of my experiences, thoughts, favourite things, etc, having enjoyed the blogs and Youtube videos of various others. If it interests and entertains people, then that’s awesome. I have been jotting down ideas for various posts I could do here, meaning there’s potential for me to keep wittering on for some time yet!

I’ve also been very flattered to get a mention in two other blogs in the space of a week recently – Life of a Blind Girl and Luke Sam Sowden. Thank you so much to Holly and Luke for including me in their lists of recommended bloggers, that’s really very kind of you! 🙂 I’ve also put together my own list of bloggers and vloggers I follow – I’ve had that page in my blog’s top menu bar for a while, but I’ve expanded it with very brief descriptions of each blog or Youtube channel, along with links to the bloggers’ pages on Twitter, Facebook, etc that I know about. So do check them out and see if any take your fancy.

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An Awkward Bus Trip

Recently a friend and I went to see the new Star Wars film (The Force Awakens). The Star Wars films involve a lot of travelling across the galaxies, but we had a difficult journey ourselves trying to get to see it.

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