Lockdown Favourites – Weeks 1-4

Hello there. I hope you’re all keepinng safe and well, and that you had a nice break over Easter, with plenty of chocolate goodies or whatever you like to indulge on.

I think we’ve all earned a few treats at the moment, given that things have felt very strange since we went into lockdown on 23 March. Like everybody else, I was very anxious about the situation at first, and it’s still going to be a concern for a while, because all of the changes to our lives are a lot to get used to. But I know that we’re doing it for the right reasons, to save lives.

I do also feel that my mother and I have been adjusting as well as can be expected, we feel relatively relaxed at the moment. It also helps that I’m not checking news and social media updates as often as I was initially, and I’ve muted certain phrases and blocked various accounts to make browsing social media a calmer experience. Things like that certainly make a big difference to one’s mindset.

I’m already a homeworker too, so that’s made things easier. Although, as it happened, I didn’t fully go back to work straightaway, because by chance I had already booked the first 2 weeks of lockdown off to use up my annual leave quota (after an illness last year meant I couldn’t use as much holiday as I’d hoped). Granted, I couldn’t use that holiday time to go anywhere nice, except the local park, but the time was very useful to ensure that Mum and I were stocked up and could start settling into this temporary new way of living. So it’s only been the last couple of weeks that I’ve started getting into a proper routine again (and even then Easter ensured that I had 2 four-day weeks).

But of course, many people have far more important, difficult and stressful jobs than I do. So if you’re a key worker – including employees and volunteers in the health service, social care, retail sectors and local authorities, among many others – then thank you!

It’s a very uncertain time, and we don’t know how long this will last, but I want to keep myself occupied as best I can. There are certainly lots of options for things to do, so I’ll try my best not to get bored. Indeed, it feels like time is moving more quickly again, after the month of March felt like a year. Maybe it’s because I was already used to homeworking and spending a lot of time at home, and because I’m finding plenty of ways to stay busy and entertained.

So with that in mind, here’s my first lockdown post about the things that have been keeping me occupied. There are 3 videos to go with this – for weeks 1-2, week 3 & week 4 – because with more free time I’ve been able to produce videos a bit more frequently, at least for a little while. So I hope you enjoy looking through this selection.

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January 2019 Favourites

2019 is already flying by isn’t it? I hope you’ve all had a lovely start to the year. January for me was pretty busy, particularly at work, which pushed me behind on my blogging a little bit. But I’ve got plenty of things I want to post about.

So today it’s time for my first monthly favourites post of the year. They seemed to work out well during 2018, as they’re a nice way to summarise things, and I notice they’ve inspired one or two other bloggers to do monthly updates. So I’m going to carry on with them, and I hope you enjoy this latest post and video summarising my activities.

As usual, nothing in this post is sponsored or endorsed by any of the companies mentioned unless otherwise specified, and all opinions are my own.

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October 2018 Favourites

We’re deep into autumn now, with Christmas edging ever closer. And now that we’re well into the penultimate month of the year, it’s time for a look back at October to see what I got up to.

The major event, of course, was my charity abseil for nystagmus research, and you can find out all about it in my epic blog post and video. There are lots of photos and video highlights from the day, especially from the headcam I was wearing during my descent. So do go and check all of that out. Huge thanks to everyone who sponsored me!

But there were still other bits and pieces going on during October as well. So I’m going to tell you about them here, and there’s also a video to go with this post as usual. I hope you enjoy my latest recap!

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Out Of Orbit – My Charity Nystagmus Abseil!

We did it! 🙂 On Sunday 21 October, after a month’s delay due to the typical British weather, I finally got to do my charity abseil down the ArcelorMittal Orbit Tower in aid of nystagmus research. That’s a drop of 80 metres (262 feet) from the UK’s tallest sculpture!

It was my first ever fundraising challenge and my first ever abseil, and therefore a big deal for a beginner like me. And it was an amazing experience, which I’m excited to tell you about in this post. I’ve also made a video that includes headcam footage from my descent, so do check that out as well.

Donations closed on 23 March 2019, and I raised £920 (+ £143 Gift Aid)! Thank you all SO much! Everyone who donated prior to the initial publication of this post is listed at the end, and are also in the credits of my video (unless you were anonymous of course). But if you’d like to donate even though the deadline has passed, please feel free to donate to Nystagmus Network and/or Moorfields Eye Charity directly. Thanks!

So I hope you enjoy reading about my abseil adventure, including my fundraising achievements and what happened on the day itself! Thanks again for your support!

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My Assistive iPhone 6 Features & Apps

Thank you to everybody for the lovely reactions to my previous post about My Visual Impairment Aids & Gadgets, especially after the RNIB kindly shared it on Facebook and Twitter, where it got a particularly big response. I’m very glad it’s proven so useful, and it’s been great to see other people sharing what they use as a result.

So this post and video is a follow-up to that, looking at the accessibility features and favourite apps I use on my iPhone. I’m not sponsored by anyone to do this or affiliated with any companies mentioned here, I just wanted to share the things that I use and enjoy. So I hope you find this post interesting, and feel free to share the features and apps that you use too.

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February 2018 Favourites

Well, what a way to start a new month, with snow all over the place! Winter has seemed very reluctant to let Spring take over, but hopefully things will warm up in the coming weeks now.

And the cold weather didn’t stopped February from being an eventful month. Following on from my January 2018 Favourites, it’s now time to look through what I’ve been enjoying in February. And even though it’s the shortest month, I seem to have packed quite a bit in! So I hope you enjoy this post and video for February.

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Rare Disease Day Photo Challenge

Update (March 1st) – I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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January 2018 Favourites

After a very eventful and successful 2017, I’ve been looking forward to seeing what 2018 would bring. And for this first month of the year I’ve been mostly doing things indoors, given the cold weather outside.

So I’ve been going out to various museums, and have also been to the theatre, while at home I’ve been watching a couple of the DVD sets I bought last year. I’m also making an effort to start listening to more audiobooks this year, as I only did one in 2017, which was bad of me – although, to be fair, book-reading wasn’t top of my to-do list having just moved to a huge city!

So I’ve been keeping myself entertained in various ways, and I hope you enjoy this recap, for which I’ve also produced a video as well.

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The Impact Of Cancer

It’s hard to believe, with all the advances in healthcare, science and technology, that cancer still exists today. Sure, we have made great strides in treating it and finding out more about it, which has helped to save and extend many lives, and for which we must be extremely grateful. But there are still far too many fatalities – just one is too many – and there is still so much more work to be done.

Of course, there is no single magic bullet that will cure it, especially as there are many different types of cancer that have to be treated in different ways. But the more research we can do, the more effective weapons we can develop and have in our arsenal to keep it at bay. No matter how stubborn and resilient it tries to be, we can tame it and beat it, and ultimately we will. It may take a great deal of time, money and effort, but it’s well worth it, because it will save and improve millions of lives.

Cancer has an impact on pretty much everybody at some point in their lives – even if you never get it yourself, chances are you’ll know someone who does. I’ve lost a good friend to the condition, and that’s what I want to tell you about here.

I made a post and a video about this a couple of years ago, for Stand Up To Cancer. But now I’ve improved as a blogger and Youtuber somewhat, I’ve decided to scrap those and extensively re-edit the text for a blog post that I can share in support of any cancer campaign, not just one specific one. And I’ve chosen today to do it, having become aware that the 4th of February is World Cancer Day. So I hope you find the post interesting. I know it’s not a nice or comfortable or entertaining subject to read about, but it is a very important one.

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Harry Potter – A History Of Magic

As well as the Harry Potter Studio Tour I explored earlier this month, I was also lucky enough to go to the British Library last Monday, for their exhibition on Harry Potter: A History Of Magic. This has proven to be extremely popular, because all of the tickets are now sold out online for the rest of the run (though it may be possible to get a ticket on the day you go to the library if you’re lucky). So I feel very fortunate to have had a chance to see it. Big thanks to Emily Davison from Fashioneyesta for inviting me to explore it with her, as we had a lovely afternoon.

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