Update (March 1st) – I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂
Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.
1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.
There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.
This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.
After a very eventful and successful 2017, I’ve been looking forward to seeing what 2018 would bring. And for this first month of the year I’ve been mostly doing things indoors, given the cold weather outside.
So I’ve been going out to various museums, and have also been to the theatre, while at home I’ve been watching a couple of the DVD sets I bought last year. I’m also making an effort to start listening to more audiobooks this year, as I only did one in 2017, which was bad of me – although, to be fair, book-reading wasn’t top of my to-do list having just moved to a huge city!
So I’ve been keeping myself entertained in various ways, and I hope you enjoy this recap, for which I’ve also produced a video as well.
Happy New Year everybody! I hope you all had a lovely Christmas, and that 2018 is a joyful and prosperous year for you. 🙂
This Christmas marked my first anniversary of moving to London. It’s hard to believe it’s been that long already. And 2017 has been an amazing year! Although I was already used to getting around the city from my previous visits, it was still a leap into the unknown in many respects to actually live here. I had no idea how well it would work out, how safe or comfortable I would feel, how accessible events and attractions would be, and how easy it would be to make friends.
But it’s been more than worth the effort, and I’m extremely happy with how well it’s gone, given all the friends I’ve made, places I’ve explored, new things I’ve tried, and the opportunities I’ve taken up. A year ago I never imagined that I would be doing many of the things that have transpired in the months since.
I’m also pleased that my blog, Youtube, Instagram, Facebook and Twitter pages have had a steady increase in followers over the year. Sure, I don’t have big numbers compared to the bigger bloggers out there, but relative to where I was a year ago it’s been a substantial leap. And my goals for this haven’t been about the numbers anyway. Making connections, sharing my experiences and spreading a bit of awareness was always my aim, and I’ve been achieving that. It’s resulted in numerous opportunities and new experiences, including guest posts, a public speech (with another planned for next year), participating in a research study (which is continuing next year), being interviewed by a journalist, and more. My efforts have been paying off more than I could ever have imagined, and I’m loving it.
But above all, thank you so much to everyone I’ve met and interacted with during the year, whether it be in person or online. By reading, liking and sharing my content, leaving comments, asking questions, sending me private messages and emails, giving me opportunities for guest posts and public talks, and even meeting up in person, you’ve helped to make this year a very special one for me. Especially Aniridia Network UK, Nystagmus Network, London Vision, Thinking Bob, VocalEyes, RNIB, Scope, Fashioneyesta, Life Of A Blind Girl, My Blurred World, Luke Sam Sowden & All The Stations, but also everyone else that I’ve had any kind of contact with during the year.
Everyone has been very positive and supportive, and your involvement has enabled me to start this new chapter in my life with confidence and comfort, and fun and friendship. And for that I’ll always be very grateful. 2017 will forever be one of the most significant and happy of my life, nothing will take that away.
And I’ve had a lovely Christmas to finish it off in style, so I wanted to bring you up to date with how it went and the various things I enjoyed. This is quite an epic post as a result, and I’ve also filmed a video that mentions some of the stuff here along with my general reflections on 2017 as a whole. So I hope you enjoy!
Having not been to a pantomime for quite a long time, and with plenty of them taking place across London, it’s been fun to attend a couple of them during my first proper Christmas as a resident of the city. Especially as both shows had audio description as well.
So I figured I’d combine my reviews of them into one post, and I hope you enjoy reading about them!
This is the last in my triple bill of tag response posts to finish off the year. And this is the Colours Of The Rainbow tag by Luke Sam Sowden, which asks for the meanings that you associate with various colours. So I thought it would be something different and fun to do, and I tag anyone else who wants to respond to it as well. I hope you enjoy my answers!
This week I finally went to my first concert since moving to London. I’ve been to a few musicals this year, but not an actual concert. And this was in arguably the most iconic concert venue in London – The Royal Albert Hall. I went there with the family in my youth for a Christmas concert, though I don’t remember it now of course. So going to a Christmas concert there this year felt like the first time really. And it was all for a good cause too.
Last year I was nominated for the Liebster Award, which was very surprising and flattering considering I was a relatively new blogger at the time. It’s a fun way of showing your fellow blogging friends that you appreciate and enjoy their work, by giving them valuable exposure and promotion.
If you’re nominated, the rules are simply to thank the blogger who nominated you and answer the 11 questions they’ve set you, and then set a list of 11 new questions and nominate 11 other bloggers to respond to them.
And this year I’ve been nominated for the second time, with huge thanks to Holly at Life Of A Blind Girl! Holly recently graduated from university, which is fantastic, so congratulations to her! I remember how wonderful that feeling is, seems a long time now since my own graduation. Anyway, Holly writes lots of wonderful posts about her experiences being visually impaired, as well as advocating and educating around sight loss and disability, and posting about other things she enjoys too. So do go and check her out, there’s a lot of great stuff to read there.
I’ve been meaning to write my response post for a while, and I’m sorry it’s taken so long. But here are my answers to Holly’s questions, and I hope you enjoy. Thanks again Holly! 🙂
Hey there, welcome back for another big update on what I’ve been getting up to. As usual it’s been a very busy month, as I’ve enjoyed an audio described exhibition and theatre show, a couple of fun tours, events involving lots of chocolate, my first ever afternoon tea, a guest appearance in a special Youtube project on a football field, a craft show in a beautiful setting, a classic scary movie at the cinema, and more. So I hope you find this compilation interesting as usual!
Hello again, nice to have you back for my next roundup. It’s been my most significant and eventful month of the year so far, with my first ever public speech, a holiday overseas, a walking tour and a meal with a fellow blogger, audio described tours of an art exhibition and a few special buildings, a day trip to another town, and a music and drama workshop. So I hope you enjoy!
Hi there, welcome to my next update! My birthday month has been marked by a number of special outings, including my first meeting with one of my favourite Youtubers, my first audio description experiences at a theatre and a cinema, my first visits to a few places outside London, a park outing with a visually impaired social group, a music pub quiz, some talking statues, and a couple of other walks too. So yet again there’s a lot to cover here, with lots of photos and video footage accompanying it, and I hope you enjoy!
Well Eye Never 
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