Category: Aniridia

August 2021 Favourites

Hello there, hope you’ve been having a safe and enjoyable summer, especially if you’ve been able to get out and about more.

I still haven’t been out anywhere special because of the ailments I’ve been dealing with over the past few months, which I admit has been difficult and frustrating sometimes, as it’s so hard to get any proper help at the moment. Hence this post is a bit late this time around, as I’ve only recently felt up to doing it. I think I might finally be getting somewhere, thanks to some help from an osteopath at a private clinic and figuring out a few changes I can make myself, but I’m not entirely sure yet. And even if I am right, it’s going to take a while for my body to settle down and repair itself anyway.

In any case, I do have a referral for physiotherapy on the NHS, but the earliest they could give me (when I booked in July) was a phone consultation in November. So I’m going to take it easy and see if I can hold out until then. But if I get worse, or if the NHS cancel due to Covid pressures and give me another long wait, then I’ll have to pay to go private again, as 1 in 5 people are having to do right now. It’s important to say that everybody who works for the NHS is amazing and wonderful, and they deserve all our praise, love and respect, but the fact remains that the system is so woefully under-funded and under-resourced that it makes life very hard for staff and patients alike. So we’ll see how things go. But thank you to all the friends who have been keeping in touch and checking in on me, it means a lot.

Still, enough of all that. There are much more interesting things to mention in this month’s post and video, including my birthday, sports and lots of entertainment as usual. None of it is sponsored or gifted as always, apart from my birthday presents of course. So I hope you enjoy!

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Thank You Tokyo – Olympics & Paralympics Review

They did it. After all the delays, controversies and restrictions that threatened to scupper their hopes and plans, Tokyo successfully managed to host the 2020 Olympic Games and Paralympic Games, a year later than scheduled. It’s not been without understandable criticism in these extraordinary times, with suggestions that it should have been delayed further, among various other issues, and there were a few athletes and other personnel who tested positive for Covid both before and during the competitions. And the absence of spectators, along with the widespread use of face masks, hand sanitiser and other safety protocols, gave the events a very different feel to usual.

Nevertheless, they still went ahead, and turned out to be a great success, treating us to a lot of incredible sporting action as a result. And it’s all the more impressive given that the competitors haven’t been able to train in the usual way over the past year, often being stuck at home instead of using the normal venues and facilities that would otherwise be available to them. Congratulations to all the athletes and teams who took part, and well done to the event organisers, staff and volunteers for making the events happen.

So I’ve really enjoyed watching the Games – especially the Paralympics of course, but the Olympics were great too. It’s all given us some welcome escapism from the pandemic, despite the constant reminders of its presence and impact. And so I thought I would share some of my favourite highlights in this post, as well as a Youtube playlist. I’m not sponsored by any organisations or people mentioned here, I just want to acknowledge and celebrate a few of the many amazing achievements of the athletes who I enjoyed watching.

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Christmas 2020 Favourites

Happy New Year! Well, as happy as it can be in the circumstances. Let’s face it, 2020 is the year that nobody wants to look back at. Referring to perfect vision as 20/20 will forever carry a certain irony with it now. And if you were to try and sum up the year with a word or phrase, there isn’t much that’s family-friendly that truly does it justice – other than dumpster fire perhaps, which I’ve seen a lot of people use very accurately.

But I did manage to find plenty to keep me occupied, as you can see from my many Favourites posts during the year. The major highlights for me were definitely being interviewed on the BBC’s In Touch programme, taking part in the CXcon Accessibility Panel Discussion, and being able to see at least a couple of my friends after such a long period apart. I also started publishing my old journal posts to fill the gap left by my lack of activity, which have had a surprising amount of interest, and my very in-depth reviews of Queen’s albums for their 50th anniversary. Both of those projects will continue to keep me busy on my blog throughout 2021.

Granted, 2021 hasn’t started off any better, but that’s because we’re still experiencing the fallout from the damage caused by its unruly predecessor. 2021 has its work cut out trying to repair that, and it will undoubtedly require the assistance of 2022 and beyond to achieve it. However, 2021 is giving us a lot of reason to be hopeful, so there is definitely light at the end of this long, dark tunnel we’ve all been stuck in.

But I need to wrap up 2020 nevertheless. It was a strange and difficult Christmas without a doubt, not the sort any of us wanted, and it’s going to be a hard winter for many, especially now we’re in lockdown again. There’s a big ray of hope with the rollout of the vaccines though, so the future’s looking good, and many thanks to all the health workers who are doing their utmost to dish them out as quickly as possible.

My thoughts also go to everyone in America after the recent terror attack amid the fallout from Trump’s defeat. Biden’s inauguration on January 20th can’t come soon enough. Best wishes from across the pond, stay safe!

Those challenges aside, however, I hope you were able to find some enjoyment and comfort during the festive period, insofar as the rules allowed in your part of the world.

Mum and I are doing fine, I’m pleased to say. We’ve enjoyed lots of nice treats, and have had plenty of fun things to watch and listen to, all of which has been a welcome distraction from the news. I continued to have a few long walks around my local area during December as well, as that was the only way I could get out and about, so it was important to make the most of it. Mum’s had a bit of fresh air too of course, but doesn’t go on the long hikes like I do, and we’ve made sure she stays well away from other people apart from her sister (and even then they keep their distance at the front door, she hasn’t been in the house).

So we did pretty well this Christmas despite the limitations, and here’s my festive post and video to round things up. I’m not going to mention absolutely everything we filled our stomachs with, or every little bit of entertainment we watched or listened to. I’m just going mention my favourite things, as is the purpose of these posts. Nothing here is sponsored as usual, and any gifts are just from friends, not the people behind the products. So I hope you enjoy!

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October 2020 Favourites

Here we go again. It’s time for Lockdown 2: Electric Avenue, so the cases don’t get higher. It’s not quite as severe as the first one, with education settings remaining open in particular, but there are still very tight restrictions nonetheless. And it had been inevitable for some time. The use of different ‘tiers’ to set regional rules was keeping the infection rate lower than it otherwise would have been, but it wasn’t quite doing enough to drive cases down. So we didn’t have a choice, sadly, as many other countries have found.

There are still lots of reasons to be optimistic, thanks to the ever-improving knowledge about the virus, the better treatments now available, the developments of mass testing, and the very promising results of vaccine trials. But right now we have to be vigilant to get through the winter safely, and it’s important to take care of ourselves and look after our mental health during this time.

I feel relatively calm about it thankfully, as I’m fortunate to have a steady job, priority grocery deliveries, family support, regular contact with friends, blogging projects, local walks, entertainment, etc to help pass the time. And we’ve pre-ordered our meat for Christmas from a farm we like, so that gives us peace of mind too. I still greatly miss seeing friends in person and visiting interesting places of course, nobody wants this. But right now my mother and I feel safe and comfortable, which is the important thing. We’re more prepared than the first time around, when the uncertainty and panic buying made it really difficult to begin with. So we know we can get through it, having done it once already.

But for many other people it’s going to be a lot harder, due to physical and mental health issues, loneliness, loss of employment and business, financial worries, family and domestic problems, the loss of loved ones from the virus or other causes, and so on. So please do help others if you can, either by direct support or by charitable donations, because every little bit helps.

And if you’re in a position where you’re struggling, then my thoughts are with you, and please know that you’re not alone. And don’t be afraid to seek help or support, there’s absolutely no shame in that. If you’re unable or too anxious to talk to someone you know, then there’s lots of advice and support available from the Samaritans, counsellors, mental health charities, other charities relevant to disabilities and health conditions, support groups on social media, etc. I know it’s easier said than done – I’ve had to confide in friends about difficult things in the past, most of us have to at some point in our lives. But having any kind of support network, even if it’s just one person you can reach out and talk to when you need it, is a massive lifeline. Use it.

And to my American friends, who are going through a stressful period with their election right now, we’re all thinking of you too. You’ve had enough to deal with in 2020 on top of the pandemic as it is, without this in the mix as well. At the time of publishing this post, the outcome is still not clear, but I sincerely hope that common sense and decency prevails in the end. Stay safe out there.

But anyway, with all that said and done, let’s get into my latest monthly update, which is what you came here for in the first place. In this post and video for October there’s plenty to mention as usual, including my latest appearance on national radio, my walks out and about, and the various bits of entertainment I’ve been enjoying. None of it’s sponsored or gifted as usual, and I hope you find it interesting!

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Lockdown Favourites – Weeks 13-16

Hello again. Miraculously we’ve made it past the halfway point in the year, although admittedly it feels like a lot more time has passed. Months effectively haven’t existed for a little while now, with all the weeks just blurring into one continuous sequence.

It’s also strange to think that we passed 100 days of lockdown in week 15. That seems to have gone by quicker than I’d expected, although I know for many that time will have dragged terribly, and certainly early on I found it difficult like everyone else. But I’m glad I’ve been able to settle into a new routine and adapt during that time. Connecting with friends, homeworking, blogging, music, TV and film have all got me through it, and are continuing to do so.

So I hope you’re all continuing to keep safe and well. Our lockdown measures here in England have been eased significantly further again, and the government have ended their daily briefings, but as the virus is still in circulation we all have to remain very cautious. There will inevitably be local outbreaks, which may lead to lockdowns of certain towns and cities as and when necessary (as Leicester have already found), but we just have to hope the entire country won’t be shut down again. The most vulnerable people who are still shielding will have to remain indoors until early August, when they can finally go out again if they feel ready to do so.

Regular readers will know that my mother and I have been voluntarily shielding, even though we’re not explicitly required to do so, for my mother’s safety in particular. In recent weeks I have been getting out a little bit more though, and Mum’s been out once, as I explain during this post. It’s just around the local area though – I still don’t intend to use public transport for the time being, even though there are safety measures in place for train travel, as the risks still feel too great and there isn’t anywhere that I need to go.

So here’s my latest update on the things I’ve been doing and enjoying over the last few weeks, with accompanying videos for weeks 13-14 & 15-16. None of it is sponsored to appear here, but I was paid to attend the CXcon event as you’ll see. I hope you enjoy looking through it all!

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Lockdown Favourites – Weeks 9-12

Hello again, I hope you’re continuing to keep safe and well. It’s been a strange few weeks for me. It started with the loss of my uncle over the Bank Holiday weekend, although fortunately he didn’t have the virus, and my mother and I are hoping to go to the funeral to support my aunt if the rules allow. And then of course we’ve had the Dominic Cummings scandal, which I’m not going to rant about, suffice to say there’s been a major misjudgement of the public mood by him and the government, they’ve lost a lot of trust and goodwill.

On the plus side, however, our lockdown has been eased in various ways, including the re-opening of non-essential shops, the compulsory use of face coverings on public transport, and the partial re-opening of schools. But many scientists feel too much is being done too soon – and if the experts are wary then so am I, because I trust their judgement the most. So I’m happy to continue staying locked down, because I have no compelling reason to go out anyway, and my priority is still protecting Mum by not bringing the virus home.

Best wishes to my friends and followers in the USA as well, all our thoughts are with you right now. Black Lives Matter, and those taking advantage of peaceful protests to cause destruction and misery have no respect for peace and equality. I sincerely hope that stability and civility is restored very soon. We should all be pulling together at all times, but it’s more important than ever during this pandemic.

Anyway, apart from all that, I’m doing fine and have been quite productive, and I’ve continued to find lots of pleasant distractions. So let’s get into my latest post about what I’ve been enjoying, and there are accompanying videos for week 9, week 10 and weeks 11-12. Apart from the Def Leppard box set noted in the music section, nothing else is sponsored or gifted here, and all opinions are my own. So I hope you find it interesting!

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Lockdown Favourites – Weeks 1-4

Hello there. I hope you’re all keepinng safe and well, and that you had a nice break over Easter, with plenty of chocolate goodies or whatever you like to indulge on.

I think we’ve all earned a few treats at the moment, given that things have felt very strange since we went into lockdown on 23 March. Like everybody else, I was very anxious about the situation at first, and it’s still going to be a concern for a while, because all of the changes to our lives are a lot to get used to. But I know that we’re doing it for the right reasons, to save lives.

I do also feel that my mother and I have been adjusting as well as can be expected, we feel relatively relaxed at the moment. It also helps that I’m not checking news and social media updates as often as I was initially, and I’ve muted certain phrases and blocked various accounts to make browsing social media a calmer experience. Things like that certainly make a big difference to one’s mindset.

I’m already a homeworker too, so that’s made things easier. Although, as it happened, I didn’t fully go back to work straightaway, because by chance I had already booked the first 2 weeks of lockdown off to use up my annual leave quota (after an illness last year meant I couldn’t use as much holiday as I’d hoped). Granted, I couldn’t use that holiday time to go anywhere nice, except the local park, but the time was very useful to ensure that Mum and I were stocked up and could start settling into this temporary new way of living. So it’s only been the last couple of weeks that I’ve started getting into a proper routine again (and even then Easter ensured that I had 2 four-day weeks).

But of course, many people have far more important, difficult and stressful jobs than I do. So if you’re a key worker – including employees and volunteers in the health service, social care, retail sectors and local authorities, among many others – then thank you!

It’s a very uncertain time, and we don’t know how long this will last, but I want to keep myself occupied as best I can. There are certainly lots of options for things to do, so I’ll try my best not to get bored. Indeed, it feels like time is moving more quickly again, after the month of March felt like a year. Maybe it’s because I was already used to homeworking and spending a lot of time at home, and because I’m finding plenty of ways to stay busy and entertained.

So with that in mind, here’s my first lockdown post about the things that have been keeping me occupied. There are 3 videos to go with this – for weeks 1-2, week 3 & week 4 – because with more free time I’ve been able to produce videos a bit more frequently, at least for a little while. So I hope you enjoy looking through this selection.

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February & March 2020 Favourites

Well, what a year this has turned out to be, huh? Perhaps we should just rename it 2019B or 2019.5 and start 2020 again next January. It’s like we’ve had a faulty software update in the calendar that needs serious debugging and virus-checking before it’s rolled out again.

Obviously I’m not dismissing the tragic side of things by saying that. My heart goes out to everybody who has lost loved ones or been severely affected in some other way, and I sincerely hope you all stay safe and well as best you can. Please follow the guidelines on hygiene, distancing, isolation, etc, because it really will save many lives. It will take a few weeks at least before we start seeing the impact of such measures, but they will help, and we will get through this. Huge thanks to all our incredible health and care staff, as well as the many other people providing essential products and services.

Beyond this introduction, I have no desire or intent to write posts about the situation, as it’s not nice and there’s enough about it online already. However, I have created a Covid Resources page, where you’ll find many links for information, advice and support, plus many ways to stay connected and entertained at home, which I hope you find useful.

Clearly this is going to change what I’m able to do and post about for a while. So in this post and video I want to wrap up my recent museum and theatre visits, as well as disability related updates and TV favourites, for both February and March. That way, I can move forward with a clean slate as I settle into a temporary new routine.

All of which means there’s a fair amount to cover here, making it a good distraction from everything that’s going on. I haven’t been sponsored or gifted by anyone to mention them, and all opinions are my own. So I hope you enjoy!

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Sight Village 2019

Last week I had a great time at the Sight Village South East event in Kensington Town Hall. It’s an annual exhibition showcasing the latest technology, products and services for blind and visually impaired people, and is one of a few Sight Village events held around the UK by Queen Alexandra College every year.

I’ve attended previously in 2016 & 2017, so having missed last year’s event it felt like a good idea to go back this time. But this occasion was slightly different, because although I did have a little look around, I actually spent most of the day working on one of the stands. So it was very interesting to be on the other side of the desk, as it were, talking to curious visitors rather than being one of them myself. So I just thought I’d give you a quick rundown of the day and who the exhibitors were.

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September 2019 Favourites

Those of you who have been following along recently will know that I had some issues in August that stopped me going out much. I was still able to do a July & August Favourites post, but the August part of that wasn’t very substantial.

September has continued to be rather mixed, as I’m still having an issue with my feet, so I didn’t get out too often. I think it might be hives of some sort, but the antihistamines are keeping them right down, so they’re not getting worse and are tolerable. It means I’m able to get around more easily, and also go out and about if I don’t overdo it. I’ve got a dermatologist appointment on 2nd November (which was thankfully moved forward from the original date of the 30th), so hopefully we can start sorting it out then.

And for those wondering about my Personal Independence Payments claim, no decision has come through yet. But I had 3 text messages to say they had the report from my face-to-face assessment, and then 2 letters in the post to say they have all the information they need to make a decision. So I just have to wait and see now.

Despite all of that, however, I’ve still ended up with a fair number of things to write about for September. I did manage to go out over the course of a weekend, when my foot was behaving, plus I’ve got some exciting videos and articles to share that I’ve been involved with, and there are some TV shows and music releases I want to mention. And as usual, no products in this post are gifted or sponsored, and all opinions are my own. So I apologise that there won’t be much in the way of London-specific stuff this month, but I still hope you enjoy this post and video as always.

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