Category: London

The Wallace Collection

Last weekend I took my first ever visit to The Wallace Collection, which is a museum full of paintings, sculptures and furniture collected by multiple generations of the same family. When I was younger I had no idea this was just behind Oxford Street, and a lot of shoppers in that area have probably been blissfully unaware of its existence. Of course, even if I had known back then, I wouldn’t have been interested, as I was never into art as a child, and didn’t pay it much attention for a while as I got older.

However, since moving to London, I’ve been able to start exploring and developing an appreciation for artworks and visiting galleries, particularly thanks to guided tours and other interactive and accessible methods of exploring such spaces. As very much an art novice, I am enjoying learning about it and seeing some of the delights on offer. It’s like a fascinating new world, more so than I’d initially expected perhaps. So that was one reason I was looking forward to this visit.

This was also the third and final outing I was doing as part of a PhD study into museum accessibility for the visually impaired, being worked on by Rafie Cecilia. Our previous visits were at the Victoria & Albert Museum last year, and the Museum of London in February. I also met her again during the ultrahaptics testing at the V&A earlier this month, but that was for a different study. It’s always a pleasure meeting her, and it’s wonderful that she’s putting so much time and effort into this work, to support people like myself who find it harder to explore museums compared to normally sighted people. And now she and her colleague Maryam Bandukda have set up the Disability Innovation Research Society, bringing together researchers to discuss disability innovation and accessible technology, which is great. So I was glad to be meeting Rafie again.

And talking of accessibility, that sounded really good in this museum as well, with the website stating that they had an audio guide for the visually impaired, plus Rafie had recommended a special app I could use to find out more about the artworks. So that was another big reason for me to go. I’d heard very good things about the Wallace Collection, and getting information about the various exhibits sounded like it would be pretty easy. So now I want to tell you how it all went.

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My First Aniridia Network Conference

One of the first people I met after moving to London last year was James, a trustee at the Aniridia Network. He got in touch after he saw me writing about aniridia on my blog, and noticed that we had other things in common too. So we met up and became friends, which was a great welcome to London in my early days here.

Over the months since then, I’ve became a voluntary communications officer for the charity, which involves helping out with blog posts, social media content and email newsletters, as and when time permits. One of the first things we did together was to edit the promo video for the first Aniridia Day last year, which was very successful.

And now the latest project has been recording and publishing material relating to the Aniridia Network Conference, which took place on 14 April. It’s their flagship annual event, bringing together people with aniridia, parents of children with the condition, medical professionals, researchers, etc, for a day of presentations, activities, socialising and information gathering.

And this was my first time at the conference, so I was really looking forward to it. Not only would I be helping out with filming, but I was also asked to give a speech there as well, so it looked set to be a very busy day!

So in this post I want to tell you how it went. And this is just my own personal perspective, this isn’t part of my social media work for the charity. They are of course welcome to quote from this post, but they haven’t asked or sponsored me to write this. You can see their own updates about the event, including photos, videos and feedback, on their website, Facebook, Twitter and Youtube pages, with much more to share over the coming days and weeks. But for now, here’s my own experience of the day.

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Something In The Air At The V&A

Earlier this month I made another visit to the Victoria & Albert Museum. The first time I went there last year was with a lady called Rafie Cecilia, to see how accessible it was as a visually impaired person for her PhD study. And this time I met her at the museum again, but this time it was for a focus group accessibility study organised by some of her colleagues from University College London (UCL), and there were 3 other participants as well as me. The ladies from UCL (Lydia Porter, Jessica Andrich & Nicola Flüchter) were running a few of these sessions over a couple of days, and this one had sounded very intriguing to me. Quite literally ‘sounded’ in fact, given that it involved some clever use of ultrasound!

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Motown The Musical

Although I was born in the early 80’s, I grew up with a lot of 60’s music, because my parents enjoyed it and so had plenty of it in the house. So I’ve always enjoyed listening to tracks from that era, including the hits of Motown. So many amazing and timeless artists and songs have come out of the Motown movement, that people still enjoy today, and that still influences many musicians today.

So it’s only right and fitting that we now have Motown The Musical to celebrate it, and I got to see it this week at the Shaftesbury Theatre, with my friends at East London Vision, for an accessible performance organised by those wonderful folks at VocalEyes. So I hope you enjoy this review of my experience!

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March 2018 Favourites

Well, that’s an early Easter out of the way for this year, and I hope everyone had a great time. We had the typical bank holiday weather here in the UK – i.e. wet – but on the plus side we also had lots of treats to indulge on as well, so it’s been like another Christmas in that sense. Indeed, with the wintery weather still hanging around, you’d be forgiven for not realising it was spring yet. Still, just like February, once again the weather hasn’t stopped me from having another very successful month.

But before I get on to the details, I just want to very quickly mention a free event I’m attending in April that you might also be interested in. I’m not being paid to mention it, but I am one of their voluntary social media ambassadors. And regardless of that, I’m genuinely intrigued by the whole thing anyway, having never heard of it before, so it deserves a mention in any case. And I don’t want to bury it at the bottom of the post where nobody will see it.

So to quote them directly:

Naidex is Europe’s most exciting event dedicated to the disability, independent living and healthcare professional sectors. Taking place at the NEC Birmingham on the 25th and 26th April, this esteemed event provides cutting-edge exhibitors, world-class CPD accredited seminars, live demos, 1-2-1 advice and unparalleled networking opportunities, over two unforgettable days. And it’s absolutely free to attend! Register for your FREE ticket on naidex.co.uk!

There are bold claims there, I know, but in all fairness I’ve looked through the show guide listing the exhibitors, speakers and events, and it really is very exciting. Plus it is their 44th year, so they know what they’re doing. I’ll be there both days and will have no problem filling the time, and I will of course tell you all about it. But I recommend going too if you can – it’s free, so you just have to be able to get to Birmingham on at least one of those days, and you need to register for tickets on their website in advance. If you’re a fellow blogger who’s also going, and you want to say hello there or collaborate in some way in relation to it, you’re welcome to get in touch. And if you know others who might want to go, pass it on!

Ok, that’s all I have to say about it, I just felt it deserved a plug. Now let’s crack on with my latest favourites post and video, so you can see what I’ve been up to. I hope you enjoy it!

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An Evening Of Unnecessary Detail

Following my trip to The Comedy Store last week, this Tuesday I went to another comedy club – this time the Backyard Comedy Club in Bethnal Green, for a show called An Evening Of Unnecessary Detail, produced by the team at Festival Of The Spoken Nerd. I’d heard a little bit about them before, so had been curious about going to one of their shows. So when my friend James invited me to go along with him, I happily took up the opportunity.

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Companions, Cuisine, Cinema & Comedy

This has been a fun week, because I got to spend time with some good friends who were visiting London for a few days, one of whom was celebrating their 30th birthday. They packed plenty in to their short break, having planned things out very well beforehand, and they really enjoyed themselves. I didn’t get to spend quite as much time with them as I was hoping to, but I did meet up with them on each of the 3 days they were here. So I thought I’d tell you about it, as we did a variety of fun things!

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February 2018 Favourites

Well, what a way to start a new month, with snow all over the place! Winter has seemed very reluctant to let Spring take over, but hopefully things will warm up in the coming weeks now.

And the cold weather didn’t stopped February from being an eventful month. Following on from my January 2018 Favourites, it’s now time to look through what I’ve been enjoying in February. And even though it’s the shortest month, I seem to have packed quite a bit in! So I hope you enjoy this post and video for February.

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Rare Disease Day Photo Challenge

Update (March 1st) – I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

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Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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Museum Of London

To escape from the freezing weather at the weekend, I spent a couple of afternoons looking around the Museum Of London, which I haven’t yet been to since moving here. I think I may have been there once as a kid, but I don’t recall it in any detail. It’s a really interesting place though, covering the entire history of London through a huge variety of exhibits. So I was really looking forward to exploring it, as I’ve always loved the city since I was a child visiting relatives here, and I’m now very happy to be actually living here.

My first visit on Saturday afternoon had a dual purpose, as I was helping a lovely lady called Rafie Cecilia from University College London with her PhD study into assistive technology for visually impaired people at museums. This basically involved me wearing a camera on my chest to record what I was looking at, while Rafie followed me around and took notes on what I was doing, and then she recorded an interview with me afterwards about my experience. She’s very friendly and professional, and it’s wonderful that she’s looking into this kind of thing, so I enjoyed the experience. This is our second of 3 meetings in fact, having first got together at the Victoria & Albert Museum in December, and I’m looking forward to meeting her again at the Wallace Collection soon. And I know she’ll be reading this, so hello! 🙂

I had only intended to visit for one day this weekend, but as I didn’t get to see the entire first floor on Saturday, I decided to go back and finish it off on Sunday. That only took another hour though, which was quicker than I thought it would be. So I ended up going downstairs and looking through all of that floor as well. Sure, I didn’t read or view everything along the way, as I couldn’t see it all clearly enough, for reasons I’ll get to later in this post. But I did get to see a lot of lovely things, and took hundreds of photos along the way, so I got a lot out of it overall.

So in this post I want to tell you about my visit, and show you just a handful of the many photos I took. I hope you enjoy!

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