Christmas 2020 Favourites

Happy New Year! Well, as happy as it can be in the circumstances. Let’s face it, 2020 is the year that nobody wants to look back at. Referring to perfect vision as 20/20 will forever carry a certain irony with it now. And if you were to try and sum up the year with a word or phrase, there isn’t much that’s family-friendly that truly does it justice – other than dumpster fire perhaps, which I’ve seen a lot of people use very accurately.

But I did manage to find plenty to keep me occupied, as you can see from my many Favourites posts during the year. The major highlights for me were definitely being interviewed on the BBC’s In Touch programme, taking part in the CXcon Accessibility Panel Discussion, and being able to see at least a couple of my friends after such a long period apart. I also started publishing my old journal posts to fill the gap left by my lack of activity, which have had a surprising amount of interest, and my very in-depth reviews of Queen’s albums for their 50th anniversary. Both of those projects will continue to keep me busy on my blog throughout 2021.

Granted, 2021 hasn’t started off any better, but that’s because we’re still experiencing the fallout from the damage caused by its unruly predecessor. 2021 has its work cut out trying to repair that, and it will undoubtedly require the assistance of 2022 and beyond to achieve it. However, 2021 is giving us a lot of reason to be hopeful, so there is definitely light at the end of this long, dark tunnel we’ve all been stuck in.

But I need to wrap up 2020 nevertheless. It was a strange and difficult Christmas without a doubt, not the sort any of us wanted, and it’s going to be a hard winter for many, especially now we’re in lockdown again. There’s a big ray of hope with the rollout of the vaccines though, so the future’s looking good, and many thanks to all the health workers who are doing their utmost to dish them out as quickly as possible.

My thoughts also go to everyone in America after the recent terror attack amid the fallout from Trump’s defeat. Biden’s inauguration on January 20th can’t come soon enough. Best wishes from across the pond, stay safe!

Those challenges aside, however, I hope you were able to find some enjoyment and comfort during the festive period, insofar as the rules allowed in your part of the world.

Mum and I are doing fine, I’m pleased to say. We’ve enjoyed lots of nice treats, and have had plenty of fun things to watch and listen to, all of which has been a welcome distraction from the news. I continued to have a few long walks around my local area during December as well, as that was the only way I could get out and about, so it was important to make the most of it. Mum’s had a bit of fresh air too of course, but doesn’t go on the long hikes like I do, and we’ve made sure she stays well away from other people apart from her sister (and even then they keep their distance at the front door, she hasn’t been in the house).

So we did pretty well this Christmas despite the limitations, and here’s my festive post and video to round things up. I’m not going to mention absolutely everything we filled our stomachs with, or every little bit of entertainment we watched or listened to. I’m just going mention my favourite things, as is the purpose of these posts. Nothing here is sponsored as usual, and any gifts are just from friends, not the people behind the products. So I hope you enjoy!

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August 2020 Favourites

Hello again. Hope you’re all keeping well and have been enjoying the summer safely. Thank you for the many birthday wishes too, they were much appreciated. I went out to celebrate the occasion, and bought a few things to treat myself, which I’ll mention during this post.

Apart from that, I’ve been out for a few walks, and have continued to keep myself occupied and entertained in various ways at home. So as always there’s plenty to mention for the month in this latest post and video, none of which is sponsored or gifted. I hope you enjoy!

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Lockdown Favourites – Weeks 13-16

Hello again. Miraculously we’ve made it past the halfway point in the year, although admittedly it feels like a lot more time has passed. Months effectively haven’t existed for a little while now, with all the weeks just blurring into one continuous sequence.

It’s also strange to think that we passed 100 days of lockdown in week 15. That seems to have gone by quicker than I’d expected, although I know for many that time will have dragged terribly, and certainly early on I found it difficult like everyone else. But I’m glad I’ve been able to settle into a new routine and adapt during that time. Connecting with friends, homeworking, blogging, music, TV and film have all got me through it, and are continuing to do so.

So I hope you’re all continuing to keep safe and well. Our lockdown measures here in England have been eased significantly further again, and the government have ended their daily briefings, but as the virus is still in circulation we all have to remain very cautious. There will inevitably be local outbreaks, which may lead to lockdowns of certain towns and cities as and when necessary (as Leicester have already found), but we just have to hope the entire country won’t be shut down again. The most vulnerable people who are still shielding will have to remain indoors until early August, when they can finally go out again if they feel ready to do so.

Regular readers will know that my mother and I have been voluntarily shielding, even though we’re not explicitly required to do so, for my mother’s safety in particular. In recent weeks I have been getting out a little bit more though, and Mum’s been out once, as I explain during this post. It’s just around the local area though – I still don’t intend to use public transport for the time being, even though there are safety measures in place for train travel, as the risks still feel too great and there isn’t anywhere that I need to go.

So here’s my latest update on the things I’ve been doing and enjoying over the last few weeks, with accompanying videos for weeks 13-14 & 15-16. None of it is sponsored to appear here, but I was paid to attend the CXcon event as you’ll see. I hope you enjoy looking through it all!

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Lockdown Favourites – Weeks 9-12

Hello again, I hope you’re continuing to keep safe and well. It’s been a strange few weeks for me. It started with the loss of my uncle over the Bank Holiday weekend, although fortunately he didn’t have the virus, and my mother and I are hoping to go to the funeral to support my aunt if the rules allow. And then of course we’ve had the Dominic Cummings scandal, which I’m not going to rant about, suffice to say there’s been a major misjudgement of the public mood by him and the government, they’ve lost a lot of trust and goodwill.

On the plus side, however, our lockdown has been eased in various ways, including the re-opening of non-essential shops, the compulsory use of face coverings on public transport, and the partial re-opening of schools. But many scientists feel too much is being done too soon – and if the experts are wary then so am I, because I trust their judgement the most. So I’m happy to continue staying locked down, because I have no compelling reason to go out anyway, and my priority is still protecting Mum by not bringing the virus home.

Best wishes to my friends and followers in the USA as well, all our thoughts are with you right now. Black Lives Matter, and those taking advantage of peaceful protests to cause destruction and misery have no respect for peace and equality. I sincerely hope that stability and civility is restored very soon. We should all be pulling together at all times, but it’s more important than ever during this pandemic.

Anyway, apart from all that, I’m doing fine and have been quite productive, and I’ve continued to find lots of pleasant distractions. So let’s get into my latest post about what I’ve been enjoying, and there are accompanying videos for week 9, week 10 and weeks 11-12. Apart from the Def Leppard box set noted in the music section, nothing else is sponsored or gifted here, and all opinions are my own. So I hope you find it interesting!

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February & March 2020 Favourites

Well, what a year this has turned out to be, huh? Perhaps we should just rename it 2019B or 2019.5 and start 2020 again next January. It’s like we’ve had a faulty software update in the calendar that needs serious debugging and virus-checking before it’s rolled out again.

Obviously I’m not dismissing the tragic side of things by saying that. My heart goes out to everybody who has lost loved ones or been severely affected in some other way, and I sincerely hope you all stay safe and well as best you can. Please follow the guidelines on hygiene, distancing, isolation, etc, because it really will save many lives. It will take a few weeks at least before we start seeing the impact of such measures, but they will help, and we will get through this. Huge thanks to all our incredible health and care staff, as well as the many other people providing essential products and services.

Beyond this introduction, I have no desire or intent to write posts about the situation, as it’s not nice and there’s enough about it online already. However, I have created a Covid Resources page, where you’ll find many links for information, advice and support, plus many ways to stay connected and entertained at home, which I hope you find useful.

Clearly this is going to change what I’m able to do and post about for a while. So in this post and video I want to wrap up my recent museum and theatre visits, as well as disability related updates and TV favourites, for both February and March. That way, I can move forward with a clean slate as I settle into a temporary new routine.

All of which means there’s a fair amount to cover here, making it a good distraction from everything that’s going on. I haven’t been sponsored or gifted by anyone to mention them, and all opinions are my own. So I hope you enjoy!

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September 2019 Favourites

Those of you who have been following along recently will know that I had some issues in August that stopped me going out much. I was still able to do a July & August Favourites post, but the August part of that wasn’t very substantial.

September has continued to be rather mixed, as I’m still having an issue with my feet, so I didn’t get out too often. I think it might be hives of some sort, but the antihistamines are keeping them right down, so they’re not getting worse and are tolerable. It means I’m able to get around more easily, and also go out and about if I don’t overdo it. I’ve got a dermatologist appointment on 2nd November (which was thankfully moved forward from the original date of the 30th), so hopefully we can start sorting it out then.

And for those wondering about my Personal Independence Payments claim, no decision has come through yet. But I had 3 text messages to say they had the report from my face-to-face assessment, and then 2 letters in the post to say they have all the information they need to make a decision. So I just have to wait and see now.

Despite all of that, however, I’ve still ended up with a fair number of things to write about for September. I did manage to go out over the course of a weekend, when my foot was behaving, plus I’ve got some exciting videos and articles to share that I’ve been involved with, and there are some TV shows and music releases I want to mention. And as usual, no products in this post are gifted or sponsored, and all opinions are my own. So I apologise that there won’t be much in the way of London-specific stuff this month, but I still hope you enjoy this post and video as always.

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What Is Normal? (Documentary)

I still find it very humbling and flattering that so many people have taken an interest in my adventures over the past few years, whether it be reading my blog, watching my videos, or seeing me speak at events. I’m very grateful to everyone for the support and encouragement, and I wouldn’t be doing this if nobody cared, so thank you.

I never imagined that I’d have a documentary made about me though. Yet that’s exactly what happened for the first time a few months ago. It was an exciting experience and I’m delighted with how it turned out.

I’ve held it back until now for various reasons. Firstly, whilst I have permission to post it regardless, I wanted to give a bit of space for its creators and sponsors, including a major charity, to publish it first if they so wished. But I also had a few things distracting me over the summer too, as regular followers will know, which has further delayed it.

But now’s a good time to release it, as it ties in nicely with the recent publication of my Aniridia Network Conference talk – Growing In Confidence With Aniridia – which was filmed shortly after the documentary was completed. Soon after that I was also in a second documentary – See Differently by Yiwen Feng – which featured myself and others. You can find out more about my speech and that other film in my June Favourites. I was certainly getting my 15 minutes of fame around that time!

In this post, therefore, I want to share my first ever documentary with you, and give a behind-the-scenes insight into how it all came together. I hope you enjoy it, and please do share the film around on social media.

So without any further ado, I present my documentary debut – What Is Normal?

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June 2019 Favourites

We’ve reached the halfway point in the year, and summer is finally blessing us with decent weather. And I’ve had a very busy month!

Firstly, there have been some disability related developments, most of them positive. In particular, I’ve spoken at a conference, been a guest on a podcast, and I was filmed for another documentary. So my visual impairment led to a few great opportunities in quick succession, I’m happy to say.

On the downside, I’ve finally received the call-up letter to switch from Disability Living Allowance (DLA) to Personal Independence Payments (PIP). This basically means I have to fill out a huge form about how my disability affects me, and then have a face-to-face assessment with a health professional, so the government can decide if I’m entitled to benefit payments. It sounds relatively simple when worded like that, but most disabled people will tell you it’s anything but. So that’s going to be on my mind a lot over the next couple of months at least, and I’m not looking forward to the process. But I’ll let you know how it goes at a later date. I’m not going to bore you with a rant about it in this post!

Thankfully, apart from that, I’ve been able to enjoy the month in many other ways. I went on a lovely weekend break with my girlfriend, I’ve been out in London for more exhibitions and walks, my girlfriend and I enjoyed a new film at the cinema, and I’ve enjoyed new TV shows and music releases at home. So there’s plenty to get through. As always, I’m not sponsored by anyone mentioned here, I’m just sharing these things because I enjoyed them. And I hope you enjoy this month’s post and video!

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May 2019 Favourites

Hello again, and welcome to my latest monthly recap. I’ve been a bit quiet here this past month, and that’s because I had to take a step back while working on a couple of important things – neither of which I can give you a lot of detail about in this post, although I will briefly tease you about them.

A lot of my time was spent preparing for this year’s Aniridia Network Conference. Not only was I going to be capturing photos and video, but I also had to prepare and rehearse a talk of my own, about how I’ve grown in confidence with aniridia. So that was naturally on my mind a lot. The successful event took place on 1 June, and all of the talks were filmed, which I’ll be editing and uploading to the charity’s Youtube channel in the weeks to come. So I’ll share my talk with you at a later date. In the meantime, do also keep an eye out for Aniridia Day on 21 June, which will raise awareness of the condition worldwide, and show your support if you can.

I was also on camera during May itself though, for another exciting reason, because a mini documentary was made about me by a wonderful group of film students. I really enjoyed the experience, and I’m very pleased with how the film’s come out. I’ll tell you all about it in a separate post later, after the video has been published (although there is a sneaky preview in the video relating to this post). It was made for a major disability charity, so I’m waiting to see if they’ll post it first. But I have permission to publish it on my own channel as well, so it’ll end up there in due course. In any case, I’m really looking forward to sharing it with you!

Those events aside, there are still some other bits and pieces I can tell you about in this month’s post and video. As always, I’m not sponsored by anybody mentioned here, nothing has been gifted, and all opinions are my own. So let’s crack on with it, and I hope you enjoy as per usual!

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Christmas 2017 Favourites

Happy New Year everybody! I hope you all had a lovely Christmas, and that 2018 is a joyful and prosperous year for you. 🙂

This Christmas marked my first anniversary of moving to London. It’s hard to believe it’s been that long already. And 2017 has been an amazing year! Although I was already used to getting around the city from my previous visits, it was still a leap into the unknown in many respects to actually live here. I had no idea how well it would work out, how safe or comfortable I would feel, how accessible events and attractions would be, and how easy it would be to make friends.

But it’s been more than worth the effort, and I’m extremely happy with how well it’s gone, given all the friends I’ve made, places I’ve explored, new things I’ve tried, and the opportunities I’ve taken up. A year ago I never imagined that I would be doing many of the things that have transpired in the months since.

I’m also pleased that my blog, Youtube, Instagram, Facebook and Twitter pages have had a steady increase in followers over the year. Sure, I don’t have big numbers compared to the bigger bloggers out there, but relative to where I was a year ago it’s been a substantial leap. And my goals for this haven’t been about the numbers anyway. Making connections, sharing my experiences and spreading a bit of awareness was always my aim, and I’ve been achieving that. It’s resulted in numerous opportunities and new experiences, including guest posts, a public speech (with another planned for next year), participating in a research study (which is continuing next year), being interviewed by a journalist, and more. My efforts have been paying off more than I could ever have imagined, and I’m loving it.

But above all, thank you so much to everyone I’ve met and interacted with during the year, whether it be in person or online. By reading, liking and sharing my content, leaving comments, asking questions, sending me private messages and emails, giving me opportunities for guest posts and public talks, and even meeting up in person, you’ve helped to make this year a very special one for me. Especially Aniridia Network UK, Nystagmus Network, London Vision, Thinking Bob, VocalEyesRNIB, Scope, Fashioneyesta, Life Of A Blind Girl, My Blurred World, Luke Sam Sowden & All The Stations, but also everyone else that I’ve had any kind of contact with during the year.

Everyone has been very positive and supportive, and your involvement has enabled me to start this new chapter in my life with confidence and comfort, and fun and friendship. And for that I’ll always be very grateful. 2017 will forever be one of the most significant and happy of my life, nothing will take that away.

And I’ve had a lovely Christmas to finish it off in style, so I wanted to bring you up to date with how it went and the various things I enjoyed. This is quite an epic post as a result, and I’ve also filmed a video that mentions some of the stuff here along with my general reflections on 2017 as a whole. So I hope you enjoy!

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