Blogger Interview – Amanda Gene

This is a new type of post for me – an interview exchange with another blogger! Amanda Gene came to me with the idea, having interviewed some other bloggers already, and I was of course very flattered and happy to take part!

Amanda has already published her interview with me, so do go and check that out:

An Interview With Glen

I’d love to do more posts like this too. I think it’s a really nice way to learn about other people, for the same reason that tag posts are so enjoyable. Plus it’s very important to support and promote each other in the blogging community, especially as disabled bloggers get overlooked somewhat (which is why I’ve created lists of bloggers who post about sight loss, disability, London & entertainment). So if anybody wants to do an exchange of Q&As like this, feel free to get in touch, either via Facebook or Twitter messages, or emailing welleyenever@icloud.com

Anyway, here is the interview I did with Amanda. I hope you enjoy it. Do give her a follow if you can, all of her social links are at the end of the post. Thank you so much to Amanda for featuring me on her blog and for answering my questions here as well! She gives great advice on blogging and interacting with disabled people, and it’s really interesting to get an insight into her disability and the things she enjoys.

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July 2018 Favourites

Time for another monthly favourites post and video, looking back at July. Things were very busy and successful on the blog and social media this month, I enjoyed some fun social events, museum visits and other entertainment, and I even got a bit sporty for once, all while enjoying the sweltering heatwave. So it was a pretty good month, and I hope you enjoy my review of it.

And if you do enjoy reading about the things I get up to, I would love it if you would consider sponsoring my charity abseil in September. That would mean a lot to me. A massive thank you to my amazing sponsors so far! I’ll keep updating that shoutouts page as donations come in, including links for fellow bloggers, so do chip in if you want a mention. You’ll also get mentions in my videos as well, as a couple of people have done in this case. Quite a few people have donated since I filmed the video last week!

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June 2018 Favourites

Time for another monthly favourites post and video, this time looking back over June. It was a significant month on social media for a few reasons, plus I also got to see 2 theatre shows, went out to a few museums and did a few walking tours in the nice weather. So there’s plenty to mention.

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Yoocan Do It

“My impairment’s just a dropped stitch in life’s rich tapestry.
I’m successful, independent, it’s no barrier to me.”

I’m rather proud of that motto, which I came up with this week. It’s adapted from a quote in my favourite sitcom (Only Fools And Horses). Del Boy and Rodney are trapped in a lift, with Rodney understandably distraught about his wife Cassandra’s miscarriage, and Del Boy tells him “it’s just a dropped stitch in life’s tapestry”. It’s a line that’s stuck with me ever since for some reason, I just think it’s lovely.

I created the quote to go with a guest post this week, which has had a massive reaction, way beyond what I could have expected. So I wanted to do a post to explain it and give it a bit of a plug, especially for those who haven’t seen it yet.

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Aniridia Day – My Aniridia Sight

Happy Aniridia Day! Following the shining success of last year’s launch event, this year it’s back and there’s loads going on today.

For starters, there are hours of live webinars taking place all day, with talks and Q&A sessions by patients, parents, doctors and researchers from all over the world. And I’m involved in one of them, because myself and James Buller will be discussing living with aniridia. So do join us if you can!

But the other major part of the day is the Aniridia Sight campaign, where people post a photo of a scene, and then describe how they see the same scene from the same position – i.e. when they take the place of the camera, what can they see with their own eyes?

So in this post, I’m going to share my contribution to the Aniridia Sight campaign. And you can do the same, by sharing your Aniridia Sight photos and descriptions to the Aniridia Day Facebook group, or posting on social media with hashtag #AniridiaSight and tagging @AniridiaDay. I hope you all have a great day, and you find the following description about my sight interesting.

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May 2018 Favourites

May was a lovely month. The weather’s been gorgeous lately, for the most part, and with no major events going on it’s been quite a relaxing few weeks .But there are still various bits and pieces I’ve enjoyed, and want to mention in this latest post and video update. So I hope you find this interesting.

To start with though, I just quickly want to plug a couple of upcoming events in June that will interest some of you. They’re for people all over the world to join in with, not just the UK. The more the merrier really, as it will help to spread vital awareness in both cases.

Sue Ricketts talking to a lady at the Nystagmus Network table ,with a tall poster next to it giving details of the charity.June 20th will be Nystagmus Awareness Day, which is its new permanent date, having moved from November. This year’s theme is Nystagmus In The Open, where people are being encouraged to do outdoor activities to raise funds and generate awareness. Sue, who runs the Nystagmus Network, is opening her garden for people to visit, for instance. People are also being invited to submit their stories online to show how amazing people with nystagmus are.

The Aniridia Day logo is a cartoon style image of the Earth, wearing sunglasses, smiling and giving a double thumbs up. Curving over the top, in yellow text with black outline, are the words “Aniridia Day”. Below the Earth in bold black text is 21 June, and below that the address for aniridiaday.org.June 21st will then be Aniridia Day. This is the second time it’s been held, as it was a big success last year. This year’s awareness campaign is called Aniridia Sight, where we want people with aniridia to share a photo or video of a scene, and describe how they see it through their eyes. So the more people that get involved, the more we can show how varied the vision of people with aniridia is. And then there will hopefully be live webinars too, for people to discuss aniridia related topics e.g. doctors, researchers, people with aniridia, etc. If you’d be interested in doing a webinar on the day, please fill out the form to sign up.

So now that’s out of the way, let me tell you what I’ve been up to in May.

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April 2018 Favourites

Time for another monthly favourites post, and April was very busy for me. There were a couple of big important events, a couple of interesting museum visits, another theatre trip, and a few nice walks now that the weather’s improving. So I hope you enjoy this little post and video recap of what I got up to.

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