Category: Collaborations

Lockdown Favourites – Weeks 1-4

Hello there. I hope you’re all keepinng safe and well, and that you had a nice break over Easter, with plenty of chocolate goodies or whatever you like to indulge on.

I think we’ve all earned a few treats at the moment, given that things have felt very strange since we went into lockdown on 23 March. Like everybody else, I was very anxious about the situation at first, and it’s still going to be a concern for a while, because all of the changes to our lives are a lot to get used to. But I know that we’re doing it for the right reasons, to save lives.

I do also feel that my mother and I have been adjusting as well as can be expected, we feel relatively relaxed at the moment. It also helps that I’m not checking news and social media updates as often as I was initially, and I’ve muted certain phrases and blocked various accounts to make browsing social media a calmer experience. Things like that certainly make a big difference to one’s mindset.

I’m already a homeworker too, so that’s made things easier. Although, as it happened, I didn’t fully go back to work straightaway, because by chance I had already booked the first 2 weeks of lockdown off to use up my annual leave quota (after an illness last year meant I couldn’t use as much holiday as I’d hoped). Granted, I couldn’t use that holiday time to go anywhere nice, except the local park, but the time was very useful to ensure that Mum and I were stocked up and could start settling into this temporary new way of living. So it’s only been the last couple of weeks that I’ve started getting into a proper routine again (and even then Easter ensured that I had 2 four-day weeks).

But of course, many people have far more important, difficult and stressful jobs than I do. So if you’re a key worker – including employees and volunteers in the health service, social care, retail sectors and local authorities, among many others – then thank you!

It’s a very uncertain time, and we don’t know how long this will last, but I want to keep myself occupied as best I can. There are certainly lots of options for things to do, so I’ll try my best not to get bored. Indeed, it feels like time is moving more quickly again, after the month of March felt like a year. Maybe it’s because I was already used to homeworking and spending a lot of time at home, and because I’m finding plenty of ways to stay busy and entertained.

So with that in mind, here’s my first lockdown post about the things that have been keeping me occupied. There are 3 videos to go with this – for weeks 1-2, week 3 & week 4 – because with more free time I’ve been able to produce videos a bit more frequently, at least for a little while. So I hope you enjoy looking through this selection.

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AD | 10 Top Tips to Care for Disabled and Special Needs Children

This is a paid advertisement. I am very selective about featuring such content, but I feel this article fits very well with the disability and visual impairment themes of my blog, and features a lot of useful information for parents, who form a significant part of my audience. So I really hope you find it of interest.

It’s no secret that disabled and special needs children require different methods of parenting, but how can you support your child in the best way possible? Find out more, here…

Looking after a child with a disability or special needs is not always the easiest job. You have all the usual difficulties parents go through and, on top of that, you have to find ways to do your best for your disabled child.

Disabled and special needs children require constant support and supervision from their parents in their early life. The child may also require additional support from compensation, if their disability was caused by some sort of medical negligence. Here, the help provided by lawyers, for example erb’s palsy and cerebral palsy solicitors, will really come into play.

In this post we are going to cover the definition of a special needs child under the law, so you know whether you child is covered. We’ll also be sharing our top tips on how you can care for your disabled or special needs children.

CaringForDisabledChildren1
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February & March 2020 Favourites

Well, what a year this has turned out to be, huh? Perhaps we should just rename it 2019B or 2019.5 and start 2020 again next January. It’s like we’ve had a faulty software update in the calendar that needs serious debugging and virus-checking before it’s rolled out again.

Obviously I’m not dismissing the tragic side of things by saying that. My heart goes out to everybody who has lost loved ones or been severely affected in some other way, and I sincerely hope you all stay safe and well as best you can. Please follow the guidelines on hygiene, distancing, isolation, etc, because it really will save many lives. It will take a few weeks at least before we start seeing the impact of such measures, but they will help, and we will get through this. Huge thanks to all our incredible health and care staff, as well as the many other people providing essential products and services.

Beyond this introduction, I have no desire or intent to write posts about the situation, as it’s not nice and there’s enough about it online already. However, I have created a Covid Resources page, where you’ll find many links for information, advice and support, plus many ways to stay connected and entertained at home, which I hope you find useful.

Clearly this is going to change what I’m able to do and post about for a while. So in this post and video I want to wrap up my recent museum and theatre visits, as well as disability related updates and TV favourites, for both February and March. That way, I can move forward with a clean slate as I settle into a temporary new routine.

All of which means there’s a fair amount to cover here, making it a good distraction from everything that’s going on. I haven’t been sponsored or gifted by anyone to mention them, and all opinions are my own. So I hope you enjoy!

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January 2020 Favourites

2020 has got off to an enjoyable and eventful start, meaning there’s plenty to tell you about for this past month, including a musical, a comedy show, museum tours, research projects, walks, social events and entertainment.

As ever, I haven’t been sponsored or gifted by anybody in order to mention them here, and these are all my own opinions. I’ve also produced a video to go with this post as usual. So I hope you enjoy!

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Disability & Sunshine Blogger Awards

Rather than finish the year with a dull post about a scam email, I actually wanted to do a quick post to tie up a couple of loose ends, before I get on to doing my Christmas Favourites and a general look back at the year gone by to kickstart 2020.

As many of you know, people in the blogging community often nominate each other for “awards”, which is an opportunity to promote other bloggers that you like and ask them questions. And I was very kindly nominated for two of these awards back in October, but didn’t get around to responding at the time. So I wanted to acknowledge them and answer the questions that were put to me.

If you want to answer these questions yourself, then please feel free to do so. I always nominate everyone on my long lists of bloggers by default, as I always find it difficult to narrow it down to a select few!

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November 2019 Favourites

I seem to have gone from one extreme to another lately. After a relatively relaxed October, November has been really busy, and in a good way. I appeared on TV and radio to raise awareness of digital accessibility, promoted audio description at a trade exhibition, learnt a great deal about Ancient Greece, explored London’s illuminated bridges, highlighted more scam emails, bought some new Blu-rays and music, and enjoyed various things on TV.

So there’s plenty to cover this month, and I hope you enjoy this post and video summary of it all. As always, I haven’t received any gifts or payments by anyone mentioned in this post, and all opinions are my own.

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The Big Business Of Digital Accessibility

The internet is an amazing resource, enabling people to instantly access products, services, information, communication, entertainment, etc, anywhere and at any time. And it’s especially useful and important for disabled people, for whom such a direct connection with the world around them plays a vital role.

However, there are still many websites, social media feeds and apps, and other technologies such as self-service checkouts and kiosks, that are partly or wholly unusable by disabled people, due to poor accessibility. This means they cannot access information and purchase products from many retailers and service providers, as they are unjustly hindered or prevented from doing so. As a result, they either don’t buy anything at all, or find accessible competitors instead. Which means many businesses are missing out on the benefits of a huge market worth £274 billion a year!

The same logic also applies when disabled people are prevented from gaining physical access to buildings, facilities, transport, etc, which is a vitally important and huge issue in itself. But for this post I’m focusing on the digital side.

Disability charity Scope have therefore released the findings of their survey on inclusive design, which illustrates the impact of poor digital access. This is to help them publicise The Big Hack, a comprehensive online resource advising businesses on best practice for digital accessibility and inclusion. And to help with the promotion, Scope invited me to take part in some media coverage, which included my first ever TV appearance! Check out my little bits of stardom here:

So in this long post, I want to explain a bit about the awareness campaign, address a few myths and misconceptions, highlight some of my own accessibility issues, and tell you about my media appearances. There’s a table of contents below to help you jump to the various sections.

For clarity, I have not been paid or gifted for my interviews or this post. This is just a topic I feel strongly about, so I was happy to take part in the media coverage, and all opinions here are my own. I also encourage you to research the subject of accessibility further, including the resources on The Big Hack, as there is no way I can cover everything, and no single person is a complete authority on the subject. I’m just talking about things from my own personal perspective, so I hope my thoughts and experiences are useful.

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September 2019 Favourites

Those of you who have been following along recently will know that I had some issues in August that stopped me going out much. I was still able to do a July & August Favourites post, but the August part of that wasn’t very substantial.

September has continued to be rather mixed, as I’m still having an issue with my feet, so I didn’t get out too often. I think it might be hives of some sort, but the antihistamines are keeping them right down, so they’re not getting worse and are tolerable. It means I’m able to get around more easily, and also go out and about if I don’t overdo it. I’ve got a dermatologist appointment on 2nd November (which was thankfully moved forward from the original date of the 30th), so hopefully we can start sorting it out then.

And for those wondering about my Personal Independence Payments claim, no decision has come through yet. But I had 3 text messages to say they had the report from my face-to-face assessment, and then 2 letters in the post to say they have all the information they need to make a decision. So I just have to wait and see now.

Despite all of that, however, I’ve still ended up with a fair number of things to write about for September. I did manage to go out over the course of a weekend, when my foot was behaving, plus I’ve got some exciting videos and articles to share that I’ve been involved with, and there are some TV shows and music releases I want to mention. And as usual, no products in this post are gifted or sponsored, and all opinions are my own. So I apologise that there won’t be much in the way of London-specific stuff this month, but I still hope you enjoy this post and video as always.

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What Is Normal? (Documentary)

I still find it very humbling and flattering that so many people have taken an interest in my adventures over the past few years, whether it be reading my blog, watching my videos, or seeing me speak at events. I’m very grateful to everyone for the support and encouragement, and I wouldn’t be doing this if nobody cared, so thank you.

I never imagined that I’d have a documentary made about me though. Yet that’s exactly what happened for the first time a few months ago. It was an exciting experience and I’m delighted with how it turned out.

I’ve held it back until now for various reasons. Firstly, whilst I have permission to post it regardless, I wanted to give a bit of space for its creators and sponsors, including a major charity, to publish it first if they so wished. But I also had a few things distracting me over the summer too, as regular followers will know, which has further delayed it.

But now’s a good time to release it, as it ties in nicely with the recent publication of my Aniridia Network Conference talk – Growing In Confidence With Aniridia – which was filmed shortly after the documentary was completed. Soon after that I was also in a second documentary – See Differently by Yiwen Feng – which featured myself and others. You can find out more about my speech and that other film in my June Favourites. I was certainly getting my 15 minutes of fame around that time!

In this post, therefore, I want to share my first ever documentary with you, and give a behind-the-scenes insight into how it all came together. I hope you enjoy it, and please do share the film around on social media.

So without any further ado, I present my documentary debut – What Is Normal?

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June 2019 Favourites

We’ve reached the halfway point in the year, and summer is finally blessing us with decent weather. And I’ve had a very busy month!

Firstly, there have been some disability related developments, most of them positive. In particular, I’ve spoken at a conference, been a guest on a podcast, and I was filmed for another documentary. So my visual impairment led to a few great opportunities in quick succession, I’m happy to say.

On the downside, I’ve finally received the call-up letter to switch from Disability Living Allowance (DLA) to Personal Independence Payments (PIP). This basically means I have to fill out a huge form about how my disability affects me, and then have a face-to-face assessment with a health professional, so the government can decide if I’m entitled to benefit payments. It sounds relatively simple when worded like that, but most disabled people will tell you it’s anything but. So that’s going to be on my mind a lot over the next couple of months at least, and I’m not looking forward to the process. But I’ll let you know how it goes at a later date. I’m not going to bore you with a rant about it in this post!

Thankfully, apart from that, I’ve been able to enjoy the month in many other ways. I went on a lovely weekend break with my girlfriend, I’ve been out in London for more exhibitions and walks, my girlfriend and I enjoyed a new film at the cinema, and I’ve enjoyed new TV shows and music releases at home. So there’s plenty to get through. As always, I’m not sponsored by anyone mentioned here, I’m just sharing these things because I enjoyed them. And I hope you enjoy this month’s post and video!

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