October 2017 Favourites

Hey there, welcome back for another big update on what I’ve been getting up to. As usual it’s been a very busy month, as I’ve enjoyed an audio described exhibition and theatre show, a couple of fun tours, events involving lots of chocolate, my first ever afternoon tea, a guest appearance in a special Youtube project on a football field, a craft show in a beautiful setting, a classic scary movie at the cinema, and more. So I hope you find this compilation interesting as usual!

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September 2017 Favourites

Hello again, nice to have you back for my next roundup. It’s been my most significant and eventful month of the year so far, with my first ever public speech, a holiday overseas, a walking tour and a meal with a fellow blogger, audio described tours of an art exhibition and a few special buildings, a day trip to another town, and a music and drama workshop. So I hope you enjoy!

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Building My New Social Network With A Visual Impairment

I’ve shared overviews of this story as guest posts on Scope’s community forum and the Nystagmus Network’s newsletter. Many thanks to them both for featuring me! And if you’ve found me via one of those articles or a social media promotion, hello and welcome! 🙂

On September 30th, I gave a talk at the Nystagmus Network’s Open Day about how I had been building a new social network for myself in London. It was my first time giving a public speech about myself, but it went really well. I spoke for about 15 minutes, then we had a group discussion for the next 15 minutes. It got a very positive response, and I got chatting to many people as a result of it, so I was very happy with it. And I’ve written blog posts about how I prepared for it and my experience at the Open Day.

So this post is a written version of that speech, and I’ve posted a video version that I filmed on the same evening. Both are longer than the actual speech I gave at the Open Day, as without constraints on time or length I’ve been able to explain things in a bit more detail. So the actual speech was a slightly more concise version of this, although 15 minutes was still quite a bit of time to fill!

Obviously my situation is unique to me, and everyone’s circumstances will be different in their own way. I’m just giving examples of the things I’ve done. The overall aim is to show that it’s important and worthwhile to try things that interest you and grasp opportunities when they arise, as you never know what will result from them. You may have to push yourself out of your comfort zone a bit, and I know that can be easier said than done. It was a challenge for me, and it still can be sometimes. But the more you try things, the more confident you’ll get, and you’ll soon start to reap the rewards of your efforts. Otherwise, you’ll always be asking yourself ‘what if’, which is never helpful.

So I hope you enjoy reading this. Thank you to Sue Ricketts and the Nystagmus Network for asking me to share my story at the Open Day, and to all those who responded to it so well.

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Speaking At The Nystagmus Network Open Day

On Saturday, I attended the Nystagmus Network‘s Open Day in Birmingham, the first time I’ve ever been to an event of this nature. The only time I’ve previously met a group who share one of my eye conditions was after Sight Village last year, when I got together with a handful of people with aniridia in a coffee shop. And that was wonderful, but this weekend’s event was on a much bigger scale. This time, I was going to a big conference for people with nystagmus with hundreds of people in attendance. And I was very much looking forward to.

However, I was also nervous, because I had been invited to be one of the speakers – making this the first time I would ever give a talk in public about myself. I wrote in my last post about how this came about, and how I prepared for it. So now I want to tell you about the day itself and how it went.

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Preparing For My First Public Talk

This weekend I was invited to attend the Nystagmus Network Open Day in Birmingham. Although I’ve been to things like Sight Village before, where I got to meet a handful of people with aniridia, I’ve never been to a large, dedicated conference for people with the same eye condition to network and find out information. So that in itself was going to be interesting.

But I wasn’t just a regular attendee – I was going to be one of the speakers! So that meant doing another first – publicly talking about myself and my life. This was naturally a daunting prospect, but exciting too. So I agreed to give it a go, it was worth a try.

And I wanted to write in detail about my experience, which I’m going to split over a couple of posts so it doesn’t get too long. I’m then going to publish a written article version of my speech here, and a video version on my Youtube channel, so you can see what I said, and maybe it will give you some inspiration and reassurance too. So I’ve got quite a bit to share!

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Losing My Veganity With Fashioneyesta

Last night I had my first ever vegetarian meal at the Redemption Bar in Shoreditch. And I had the privilege of dining there in the company of Emily Davison from Fashioneyesta, this now being our third meeting together since Knole Park and the Jack The Ripper tour recently. And again we had a lovely time.

Emily looked stunning as per usual, and you can see a detailed description and photos of her outfit and makeup in her blog post about the day.

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Fashioneyesta & The Five Murders

As well as the great Open House tours by VocalEyes, the other big highlight of last weekend was on Sunday evening, when I got to meet Emily Davison from Fashioneyesta for the second time. If you missed it, our first meeting was at Knole Park on the August Bank Holiday Monday (which Emily vlogged as well).

This time, the plan was to have something to eat and then go on a Jack The Ripper walking tour. And we had a lovely time.

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August 2017 Favourites

Hi there, welcome to my next update! My birthday month has been marked by a number of special outings, including my first meeting with one of my favourite Youtubers, my first audio description experiences at a theatre and a cinema, my first visits to a few places outside London, a park outing with a visually impaired social group, a music pub quiz, some talking statues, and a couple of other walks too. So yet again there’s a lot to cover here, with lots of photos and video footage accompanying it, and I hope you enjoy!

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Meeting Fashioneyesta

This Monday I finally got to meet one of my favourite Youtubers – Emily Davison from Fashioneyesta. We spent a delightful day together at Knole Park in Sevenoaks, and she’s posted a wonderful vlog about it on her second channel. So I wanted to blog about it from my own perspective as well, which I hope you enjoy!

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July 2017 Favourites

Hello again, hope you’re doing well! This has been another busy and very enjoyable month, most significantly including my first experiences of audio described museum tours, along with more social events, festivals and some other nice walks. So I hope you enjoy this latest roundup!

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