Thank you to everybody for the lovely reactions to my previous post about My Visual Impairment Aids & Gadgets, especially after the RNIB kindly shared it on Facebook and Twitter, where it got a particularly big response. I’m very glad it’s proven so useful, and it’s been great to see other people sharing what they use as a result.
So this post and video is a follow-up to that, looking at the accessibility features and favourite apps I use on my iPhone. I’m not sponsored by anyone to do this or affiliated with any companies mentioned here, I just wanted to share the things that I use and enjoy. So I hope you find this post interesting, and feel free to share the features and apps that you use too.
I use various things to assist me in my day-to-day life as a visually impaired person, just to make things easier or more accessible. It means I can be independent and do many things that normal people do. So in other words, I’m still leading a normal life, it’s just that I dcao some things a bit differently to people with regular sight.
Naturally my iPhone is a huge help these days, but I’ll talk about the features and apps I use there in a separate post. In the meantime, you can see a list of my apps here, with an older video about them that I’ll update when I do a new post.
So in this post and video I’m going to tell you about various other aids and gadgets that I use, and a few used by my mother as well, as she’s blind. I’m not affiliated with or sponsored by any companies mentioned here, and these are all my own opinions.
So I hope you find this post interesting. And let me know if there are any particular aids or gadgets that you use a lot, or if there’s anything you recommend I should check out.
“My impairment’s just a dropped stitch in life’s rich tapestry. I’m successful, independent, it’s no barrier to me.”
I’m rather proud of that motto, which I came up with this week. It’s adapted from a quote in my favourite sitcom (Only Fools And Horses). Del Boy and Rodney are trapped in a lift, with Rodney understandably distraught about his wife Cassandra’s miscarriage, and Del Boy tells him “it’s just a dropped stitch in life’s tapestry”. It’s a line that’s stuck with me ever since for some reason, I just think it’s lovely.
I created the quote to go with a guest post this week, which has had a massive reaction, way beyond what I could have expected. So I wanted to do a post to explain it and give it a bit of a plug, especially for those who haven’t seen it yet.
For the visually impaired and other disabled people, the processes involved in claiming and retaining benefits and support can cause a lot of stress. Some are left feeling that their conditions and needs are not understood by those making the decisions. and by wider society in general for that matter. And there is some truth in that unfortunately. Although awareness is improving, there is still a lot of work to be done.
A new play called Libby’s Eyes is hoping to increase that awareness. It’s written by visually impaired playwright Amy Bethan Evans, and stars visually impaired actress Georgie Morrell as Libby. It’s not often at all that you see a disabled character played by a person with that disability, so that delighted and intrigued me when I heard about the production, as well as the overview of the story itself. So I went to see it on Thursday night with my friend Claire, and I wanted to give you my thoughts on it.
Happy Aniridia Day! Following the shining success of last year’s launch event, this year it’s back and there’s loads going on today.
For starters, there are hours of live webinars taking place all day, with talks and Q&A sessions by patients, parents, doctors and researchers from all over the world. And I’m involved in one of them, because myself and James Buller will be discussing living with aniridia. So do join us if you can!
But the other major part of the day is the Aniridia Sight campaign, where people post a photo of a scene, and then describe how they see the same scene from the same position – i.e. when they take the place of the camera, what can they see with their own eyes?
So in this post, I’m going to share my contribution to the Aniridia Sight campaign. And you can do the same, by sharing your Aniridia Sight photos and descriptions to the Aniridia Day Facebook group, or posting on social media with hashtag #AniridiaSight and tagging @AniridiaDay. I hope you all have a great day, and you find the following description about my sight interesting.
I’d love to go on a cruise one day, it’s one of those bucket list items for me. I know a few friends who have done it and enjoyed it, and I love the idea of relaxing in a massive floating hotel… well, they can be entire floating cities in effect… with all the entertainment on board, and visiting a variety of interesting places. One day it’ll happen I’m sure.
But I got a nice taste for it on Saturday, and in particular learned about a lot of the history of it, with the Victoria & Albert Museum’s exhibition Ocean Liners – Speed & Style. This was the last weekend of the exhibition, so I just got around to seeing it before it closed. And I made a new friend in the process. So it was a lovely day, and I thought I’d tell you a bit about it.
This weekend I took my mother to see another theatre show – Peter Pan at the Regent’s Park Open Air Theatre. It’s another venue we’d never been to before, and we loved the idea of watching a show in the outdoors. And, as usual, we had chosen an accessible performance that included a touch tour and audio description from the wonderful folks at VocalEyes. I’m pleased to say we had a lovely time, and the weather also behaved itself, so I thought I’d tell you about it.
May was a lovely month. The weather’s been gorgeous lately, for the most part, and with no major events going on it’s been quite a relaxing few weeks. But there are still various bits and pieces I’ve enjoyed, and want to mention in this latest post and video update. So I hope you find this interesting.
To start with though, I just quickly want to plug a couple of upcoming events in June that will interest some of you. They’re for people all over the world to join in with, not just the UK. The more the merrier really, as it will help to spread vital awareness in both cases.
June 20th will be Nystagmus Awareness Day, which is its new permanent date, having moved from November. This year’s theme is Nystagmus In The Open, where people are being encouraged to do outdoor activities to raise funds and generate awareness. Sue, who runs the Nystagmus Network, is opening her garden for people to visit, for instance. People are also being invited to submit their stories online to show how amazing people with nystagmus are.
June 21stwill then be Aniridia Day. This is the second time it’s been held, as it was a big success last year. This year’s awareness campaign is called Aniridia Sight, where we want people with aniridia to share a photo or video of a scene, and describe how they see it through their eyes. So the more people that get involved, the more we can show how varied the vision of people with aniridia is. And then there will hopefully be live webinars too, for people to discuss aniridia related topics e.g. doctors, researchers, people with aniridia, etc.
So now that’s out of the way, let me tell you what I’ve been up to in May.
Time for another monthly favourites post, and April was very busy for me. There were a couple of big important events, a couple of interesting museum visits, vanother theatre trip, and a few nice walks now that the weather’s improving. So I hope you enjoy this little post and video recap of what I got up to.
On the 25th and 26th of April I went to the Naidex show for the first time, which was held in the Birmingham NEC. It’s Europe’s biggest event dedicated to disability and independent living, and is full of companies showcasing the latest technology, products and services they have to offer, along with seminars and panel discussions, a mobility test track, a sporting arena for people to try out different activities, a moving and handling lab offering training for healthcare professionals, and more. And it’s completely free to attend, which makes it very worthwhile going to check it all out.
I’d never heard of the event before, so I was very intrigued to see what it was all about. I became aware of it because I was one of various bloggers contacted by Cláudia from the Prysm Group marketing team. As well as telling me about the event, she asked if I wanted to be an ambassador for it – which basically involved me giving them a plug on my social media channels, and they would promote my blog in return. I was happy to do that, given my interest in the event, so that’s what we did. Hence you will have seen me mentioning them every so often over the past month, and they did indeed share the link to my blog on Facebook and Twitter a couple of times as well. I didn’t receive any payments or gifts for it, we were literally just exchanging posts to promote each other.
And the event itself was great, I really enjoyed exploring it over both days. So I want to give you a comprehensive review of the event, and tell you about the various companies, products and services that I became aware of. As a result, this is quite a long post, but it is divided into headings with a contents list if it’s helpful. So I hope you enjoy reading about it!
Note: Footage from the event can be seen in my April Favourites video. I also discussed my Naidex visit with Fern Lulham on AMI Audio‘s Kelly & Company show on 24 May 2018.
Well Eye Never 
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