Well, what a year this has turned out to be, huh? Perhaps we should just rename it 2019B or 2019.5 and start 2020 again next January. It’s like we’ve had a faulty software update in the calendar that needs serious debugging and virus-checking before it’s rolled out again.
Obviously I’m not dismissing the tragic side of things by saying that. My heart goes out to everybody who has lost loved ones or been severely affected in some other way, and I sincerely hope you all stay safe and well as best you can. Please follow the guidelines on hygiene, distancing, isolation, etc, because it really will save many lives. It will take a few weeks at least before we start seeing the impact of such measures, but they will help, and we will get through this. Huge thanks to all our incredible health and care staff, as well as the many other people providing essential products and services.
Beyond this introduction, I have no desire or intent to write posts about the situation, as it’s not nice and there’s enough about it online already. However, I have created a Coronavirus resources page, where you’ll find links providing information, advice and support, plus many ways to stay connected and entertained during these difficult times, which I hope you find useful.
Clearly this is going to change what I’m able to do and post about for a while. So in this post and video I want to wrap up my recent museum and theatre visits, as well as disability related updates and TV favourites, for both February and March. That way, I can move forward with a clean slate as I settle into a temporary new routine.
All of which means there’s a fair amount to cover here, making it a good distraction from everything that’s going on. I haven’t been sponsored or gifted by anyone to mention them, and all opinions are my own. So I hope you enjoy!
Continue reading “February & March 2020 Favourites”
2019 was a bit of a rollercoaster year for me, but it worked out well overall. I was very busy and active for the first half, then there was a dip during the summer with various things that came up all at once, before the final few months that gave me a chance to recharge and get back to normal, while also throwing in one or two surprises.
So as is traditional, I thought I’d quickly go back over the year, to recap on the many things that happened. Click on the headings for each month to see the Favourites post in each case, while there are links to more detailed review posts throughout the text as well. I hope you enjoy looking back at it all with me.
Continue reading “2019 Review”
Those of you who have been following along recently will know that I had some issues in August that stopped me going out much. I was still able to do a July & August Favourites post, but the August part of that wasn’t very substantial.
September has continued to be rather mixed, as I’m still having an issue with my feet, so I didn’t get out too often. I think it might be hives of some sort, but the antihistamines are keeping them right down, so they’re not getting worse and are tolerable. It means I’m able to get around more easily, and also go out and about if I don’t overdo it. I’ve got a dermatologist appointment on 2nd November (which was thankfully moved forward from the original date of the 30th), so hopefully we can start sorting it out then.
And for those wondering about my Personal Independence Payments claim, no decision has come through yet. But I had 3 text messages to say they had the report from my face-to-face assessment, and then 2 letters in the post to say they have all the information they need to make a decision. So I just have to wait and see now.
Despite all of that, however, I’ve still ended up with a fair number of things to write about for September. I did manage to go out over the course of a weekend, when my foot was behaving, plus I’ve got some exciting videos and articles to share that I’ve been involved with, and there are some TV shows and music releases I want to mention. And as usual, no products in this post are gifted or sponsored, and all opinions are my own. So I apologise that there won’t be much in the way of London-specific stuff this month, but I still hope you enjoy this post and video as always.
Continue reading “September 2019 Favourites”
I still find it very humbling and flattering that so many people have taken an interest in my adventures over the past few years, whether it be reading my blog, watching my videos, or seeing me speak at events. I’m very grateful to everyone for the support and encouragement, and I wouldn’t be doing this if nobody cared, so thank you.
I never imagined that I’d have a documentary made about me though. Yet that’s exactly what happened for the first time a few months ago. It was an exciting experience and I’m delighted with how it turned out.
I’ve held it back until now for various reasons. Firstly, whilst I have permission to post it regardless, I wanted to give a bit of space for its creators and sponsors, including a major charity, to publish it first if they so wished. But I also had a few things distracting me over the summer too, as regular followers will know, which has further delayed it.
But now’s a good time to release it, as it ties in nicely with the recent publication of my Aniridia Network Conference talk – Growing In Confidence With Aniridia – which was filmed shortly after the documentary was completed. Soon after that I was also in a second documentary – See Differently by Yiwen Feng – which featured myself and others. You can find out more about my speech and that other film in my June Favourites. I was certainly getting my 15 minutes of fame around that time!
In this post, therefore, I want to share my first ever documentary with you, and give a behind-the-scenes insight into how it all came together. I hope you enjoy it, and please do share the film around on social media.
So without any further ado, I present my documentary debut – What Is Normal?
Continue reading “What Is Normal? (Documentary)”
We’ve reached the halfway point in the year, and summer is finally blessing us with decent weather. And I’ve had a very busy month!
Firstly, there have been some disability related developments, most of them positive. In particular, I’ve spoken at a conference, been a guest on a podcast, and I was filmed for another documentary. So my visual impairment led to a few great opportunities in quick succession, I’m happy to say.
On the downside, I’ve finally received the call-up letter to switch from Disability Living Allowance (DLA) to Personal Independence Payments (PIP). This basically means I have to fill out a huge form about how my disability affects me, and then have a face-to-face assessment with a health professional, so the government can decide if I’m entitled to benefit payments. It sounds relatively simple when worded like that, but most disabled people will tell you it’s anything but. So that’s going to be on my mind a lot over the next couple of months at least, and I’m not looking forward to the process. But I’ll let you know how it goes at a later date. I’m not going to bore you with a rant about it in this post!
Thankfully, apart from that, I’ve been able to enjoy the month in many other ways. I went on a lovely weekend break with my girlfriend, I’ve been out in London for more exhibitions and walks, my girlfriend and I enjoyed a new film at the cinema, and I’ve enjoyed new TV shows and music releases at home. So there’s plenty to get through. As always, I’m not sponsored by anyone mentioned here, I’m just sharing these things because I enjoyed them. And I hope you enjoy this month’s post and video!
Continue reading “June 2019 Favourites”
Hello again, and welcome to my latest monthly recap. I’ve been a bit quiet here this past month, and that’s because I had to take a step back while working on a couple of important things – neither of which I can give you a lot of detail about in this post, although I will briefly tease you about them.
A lot of my time was spent preparing for this year’s Aniridia Network Conference. Not only was I going to be capturing photos and video, but I also had to prepare and rehearse a talk of my own, about how I’ve grown in confidence with aniridia. So that was naturally on my mind a lot. The successful event took place on 1 June, and all of the talks were filmed, which I’ll be editing and uploading to the charity’s Youtube channel in the weeks to come. So I’ll share my talk with you at a later date. In the meantime, do also keep an eye out for Aniridia Day on 21 June, which will raise awareness of the condition worldwide, and show your support if you can.
I was also on camera during May itself though, for another exciting reason, because a mini documentary was made about me by a wonderful group of film students. I really enjoyed the experience, and I’m very pleased with how the film’s come out. I’ll tell you all about it in a separate post later, after the video has been published (although there is a sneaky preview in the video relating to this post). It was made for a major disability charity, so I’m waiting to see if they’ll post it first. But I have permission to publish it on my own channel as well, so it’ll end up there in due course. In any case, I’m really looking forward to sharing it with you!
Those events aside, there are still some other bits and pieces I can tell you about in this month’s post and video. As always, I’m not sponsored by anybody mentioned here, nothing has been gifted, and all opinions are my own. So let’s crack on with it, and I hope you enjoy as per usual!
Continue reading “May 2019 Favourites”