Category: Fun & Leisure

Speaking At The Nystagmus Network Open Day

On Saturday, I attended the Nystagmus Network‘s Open Day in Birmingham, the first time I’ve ever been to an event of this nature. The only time I’ve previously met a group who share one of my eye conditions was after Sight Village last year, when I got together with a handful of people with aniridia in a coffee shop. And that was wonderful, but this weekend’s event was on a much bigger scale. This time, I was going to a big conference for people with nystagmus with hundreds of people in attendance. And I was very much looking forward to.

However, I was also nervous, because I had been invited to be one of the speakers – making this the first time I would ever give a talk in public about myself. I wrote in my last post about how this came about, and how I prepared for it. So now I want to tell you about the day itself and how it went.

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Preparing For My First Public Talk

This weekend I was invited to attend the Nystagmus Network Open Day in Birmingham. Although I’ve been to things like Sight Village before, where I got to meet a handful of people with aniridia, I’ve never been to a large, dedicated conference for people with the same eye condition to network and find out information. So that in itself was going to be interesting.

But I wasn’t just a regular attendee – I was going to be one of the speakers! So that meant doing another first – publicly talking about myself and my life. This was naturally a daunting prospect, but exciting too. So I agreed to give it a go, it was worth a try.

And I wanted to write in detail about my experience, which I’m going to split over a couple of posts so it doesn’t get too long. I’m then going to publish a written article version of my speech here, and a video version on my Youtube channel, so you can see what I said, and maybe it will give you some inspiration and reassurance too. So I’ve got quite a bit to share!

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Losing My Veganity With Fashioneyesta

Last night I had my first ever vegetarian meal at the Redemption Bar in Shoreditch. And I had the privilege of dining there in the company of Emily Davison from Fashioneyesta, this now being our third meeting together since Knole Park and the Jack The Ripper tour recently. And again we had a lovely time.

Emily looked stunning as per usual, and you can see a detailed description and photos of her outfit and makeup in her blog post about the day.

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Fashioneyesta & The Five Murders

As well as the great Open House tours by VocalEyes, the other big highlight of last weekend was on Sunday evening, when I got to meet Emily Davison from Fashioneyesta for the second time. If you missed it, our first meeting was at Knole Park on the August Bank Holiday Monday (which Emily vlogged as well).

This time, the plan was to have something to eat and then go on a Jack The Ripper walking tour. And we had a lovely time.

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Open House Tours

Last weekend was the Open House London weekend, where hundreds of buildings across the capital opened their doors for free for the public to look around and take part in talks and tours. These include many places that you might never have heard of or never considered visiting before. Some of the places also do tours during the rest of the year, but you may have to pay for them, whereas on this weekend they’re free. And some places may rarely grant public access at all, so this may be the only opportunity you get to look around. So it’s a great initiative that’s been running for 25 years now, and the volunteers who help to make it happen deserve thanks and praise for their work.

As part of this event, the team at VocalEyes arranged special audio described tours of 4 different buildings for visually impaired people. I went on 3 of them (I didn’t do the 4th as I had something else planned). It was my first time going to an Open House weekend, and I thoroughly enjoyed it. So I’ll definitely be keeping an eye out for it next year. So here’s my summary of the tours I went on.

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August 2017 Favourites

Hi there, welcome to my next update! My birthday month has been marked by a number of special outings, including my first meeting with one of my favourite Youtubers, my first audio description experiences at a theatre and a cinema, my first visits to a few places outside London, a park outing with a visually impaired social group, a music pub quiz, some talking statues, and a couple of other walks too. So yet again there’s a lot to cover here, with lots of photos and video footage accompanying it, and I hope you enjoy!

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Meeting Fashioneyesta

This Monday I finally got to meet one of my favourite Youtubers – Emily Davison from Fashioneyesta. We spent a delightful day together at Knole Park in Sevenoaks, and she’s posted a wonderful vlog about it on her second channel. So I wanted to blog about it from my own perspective as well, which I hope you enjoy!

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July 2017 Favourites

Hello again, hope you’re doing well! This has been another busy and very enjoyable month, most significantly including my first experiences of audio described museum tours, along with more social events, festivals and some other nice walks. So I hope you enjoy this latest roundup!

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Room 101 – My Visually Impaired Frustrations

For this post, I thought I’d do something a bit like the TV show Room 101 (where celebrities nominate their pet hates to be locked away forever). It’s named after the torture chamber in George Orwell’s novel 1984, which is said to contain “the worst thing in the world”. We also had a Room 101 at my college which was rather memorable, because it was the examinations office! So that felt both appropriate and ominous!

So I wanted to do a post along those lines, using it as an excuse to list some things that frustrate or irritate me because I have a visual impairment. I’ve also made a Youtube video to accompany it. It’s not at all intended to be offensive or to upset anyone, and I’m not a negative or moaning person. I’m actually very positive, as I’ve hopefully conveyed throughout this blog. But it’s nice to get some things off your chest now and again, and to try and spread a bit of awareness in the process.

So here are 10 things that frustrate me as a visually impaired person, which either affect me directly or have an impact on my friends and family. I could think of more, but this is plenty. If you’ve done any of these things, please don’t feel bad about them. We all make mistakes without meaning to, that’s life and that’s fine. All I ask is that you take it on board for future reference.

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June 2017 Favourites

Hi there, welcome back to the next instalment of my monthly updates. It’s hard to believe that it was the 6-month anniversary of my move to London in June, that’s certainly flown by!

Of course, I appreciate that this month is one that some people would rather forget, given the despicable attack on London Bridge and the devastating Grenfell Tower fire, and my thoughts go out to everyone affected by those terrible events.

But for me, I’ve happily continued with my explorations of London, taking advantage of the glorious weather to walk around a lot of different places, capturing lots of photos and videos along the way, as well as celebrating Aniridia Day, seeing TV shows being recorded and socialising with friends! Hence this is a very busy post, and I hope you enjoy it all!

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