Time to bring you up to date once again with my life as a carer. And things have gone much better than expected in the latter half of this month, as neither Mum nor I have had any problems resulting from our minor bits of surgery (I had a wisdom tooth out, while she had a small skin biopsy). And Mum’s continued to have more confidence and less anxiety, in large part thanks to her wrist recovery and improved sleep cycle, to the point where I’ve been able to go out for a while by myself like I used to do. So this is quite a positive update, I’m happy to say, and I hope you find it interesting.
Continue reading “Carer’s Journal – November 2025 – Part 2”Tag: Moorfields
Carer’s Journal – October 2025 – Part 2
Now we’re getting somewhere. In the last couple of weeks, there have been some huge leaps forward in my mother’s situation, giving us a welcome sense of relief and optimism after such a long, hard summer. So in this latest instalment of my carer journal posts, I’m happy to share some very positive developments that, fingers crossed, bode well for the remainder of the year.
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March 2023 Favourites
Hello again, and welcome to my next monthly roundup. Now that I’ve settled into my new job (for which I’ve had a nice gift and my hours have just increased from 22 to 25 per week), things are getting back to normal again.
So there are no major announcements about my life this time. And I haven’t been to any theatre shows or exhibitions this month, as I wasn’t able to make it to the Super Power Panto in the end. But I have used the first salary payment from my new job to book a few shows, in addition to a couple of things I already had in the diary, so the cultural side of things will pick up very soon.
All of which means this was a relatively relaxed month, but I can still mention some bits and pieces I did while out and about, and some entertainment that I watched at home. So I hope you enjoy my latest post and video update!
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Out Of Orbit – My Charity Nystagmus Abseil!
We did it! 🙂 On Sunday 21 October, after a month’s delay due to the typical British weather, I finally got to do my charity abseil down the ArcelorMittal Orbit Tower in aid of nystagmus research. That’s a drop of 80 metres (262 feet) from the UK’s tallest sculpture!
It was my first ever fundraising challenge and my first ever abseil, and therefore a big deal for a beginner like me. And it was an amazing experience, which I’m excited to tell you about in this post. I’ve also made a video that includes headcam footage from my descent, so do check that out as well.
Donations closed on 23 March 2019, and I raised £920 (+ £143 Gift Aid)! Thank you all SO much! Everyone who donated prior to the initial publication of this post is listed at the end, and are also in the credits of my video (unless you were anonymous of course). But if you’d like to donate even though the deadline has passed, please feel free to donate to Nystagmus Network and/or Moorfields Eye Charity directly. Thanks!
So I hope you enjoy reading about my abseil adventure, including my fundraising achievements and what happened on the day itself! Thanks again for your support!
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Nystagmus Network Open Day 2018
Even though my abseil for nystagmus research has had to be postponed (it’ll now be on 21st October), nystagmus has still been the big topic this month, because on Saturday I attended the annual Open Day held by the Nystagmus Network.
This was my second time going to this event, following my experience last year when I gave my first public talk. So this year was much more relaxed, because I didn’t have to do anything! And it was a wonderful day, so I thought I’d give an overview of how it went.
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Well Eye Never 