May 2018 Favourites

May was a lovely month. The weather’s been gorgeous lately, for the most part, and with no major events going on it’s been quite a relaxing few weeks. But there are still various bits and pieces I’ve enjoyed, and want to mention in this latest post and video update. So I hope you find this interesting.

To start with though, I just quickly want to plug a couple of upcoming events in June that will interest some of you. They’re for people all over the world to join in with, not just the UK. The more the merrier really, as it will help to spread vital awareness in both cases.

June 20th will be Nystagmus Awareness Day, which is its new permanent date, having moved from November. This year’s theme is Nystagmus In The Open, where people are being encouraged to do outdoor activities to raise funds and generate awareness. Sue, who runs the Nystagmus Network, is opening her garden for people to visit, for instance. People are also being invited to submit their stories online to show how amazing people with nystagmus are.

June 21st will then be Aniridia Day. This is the second time it’s been held, as it was a big success last year. This year’s awareness campaign is called Aniridia Sight, where we want people with aniridia to share a photo or video of a scene, and describe how they see it through their eyes. So the more people that get involved, the more we can show how varied the vision of people with aniridia is. And then there will hopefully be live webinars too, for people to discuss aniridia related topics e.g. doctors, researchers, people with aniridia, etc.

So now that’s out of the way, let me tell you what I’ve been up to in May.

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April 2018 Favourites

Time for another monthly favourites post, and April was very busy for me. There were a couple of big important events, a couple of interesting museum visits, vanother theatre trip, and a few nice walks now that the weather’s improving. So I hope you enjoy this little post and video recap of what I got up to.

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Naidex 2018

On the 25th and 26th of April I went to the Naidex show for the first time, which was held in the Birmingham NEC. It’s Europe’s biggest event dedicated to disability and independent living, and is full of companies showcasing the latest technology, products and services they have to offer, along with seminars and panel discussions, a mobility test track, a sporting arena for people to try out different activities, a moving and handling lab offering training for healthcare professionals, and more. And it’s completely free to attend, which makes it very worthwhile going to check it all out.

I’d never heard of the event before, so I was very intrigued to see what it was all about. I became aware of it because I was one of various bloggers contacted by Cláudia from the Prysm Group marketing team. As well as telling me about the event, she asked if I wanted to be an ambassador for it – which basically involved me giving them a plug on my social media channels, and they would promote my blog in return. I was happy to do that, given my interest in the event, so that’s what we did. Hence you will have seen me mentioning them every so often over the past month, and they did indeed share the link to my blog on Facebook and Twitter a couple of times as well. I didn’t receive any payments or gifts for it, we were literally just exchanging posts to promote each other.

And the event itself was great, I really enjoyed exploring it over both days. So I want to give you a comprehensive review of the event, and tell you about the various companies, products and services that I became aware of. As a result, this is quite a long post, but it is divided into headings with a contents list if it’s helpful. So I hope you enjoy reading about it!

Note: Footage from the event can be seen in my April Favourites video. I also discussed my Naidex visit with Fern Lulham on AMI Audio‘s Kelly & Company show on 24 May 2018.

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Motown The Musical

Although I was born in the early 80’s, I grew up with a lot of 60’s music, because my parents enjoyed it and so had plenty of it in the house. So I’ve always enjoyed listening to tracks from that era, including the hits of Motown. So many amazing and timeless artists and songs have come out of the Motown movement, that people still enjoy today, and that still influences many musicians today.

So it’s only right and fitting that we now have Motown The Musical to celebrate it, and I got to see it this week at the Shaftesbury Theatre, with my friends at East London Vision, for an accessible performance organised by those wonderful folks at VocalEyes. So I hope you enjoy this review of my experience!

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March 2018 Favourites

Well, that’s an early Easter out of the way for this year, and I hope everyone had a great time. We had the typical bank holiday weather here in the UK – i.e. wet – but on the plus side we also had lots of treats to indulge on as well, so it’s been like another Christmas in that sense. Indeed, with the wintery weather still hanging around, you’d be forgiven for not realising it was spring yet. Still, just like February, once again the weather hasn’t stopped me from having another very successful month.

But before I get on to the details, I just want to very quickly mention a free event I’m attending in April that you might also be interested in. I’m not being paid to mention it, but I am one of their voluntary social media ambassadors. And regardless of that, I’m genuinely intrigued by the whole thing anyway, having never heard of it before, so it deserves a mention in any case. And I don’t want to bury it at the bottom of the post where nobody will see it.

So to quote them directly:

Naidex is Europe’s most exciting event dedicated to the disability, independent living and healthcare professional sectors. Taking place at the NEC Birmingham on the 25th and 26th April, this esteemed event provides cutting-edge exhibitors, world-class CPD accredited seminars, live demos, 1-2-1 advice and unparalleled networking opportunities, over two unforgettable days. And it’s absolutely free to attend! Register for your FREE ticket on naidex.co.uk!

There are bold claims there, I know, but in all fairness I’ve looked through the show guide listing the exhibitors, speakers and events, and it really is very exciting. Plus it is their 44th year, so they know what they’re doing. I’ll be there both days and will have no problem filling the time, and I will of course tell you all about it. But I recommend going too if you can – it’s free, so you just have to be able to get to Birmingham on at least one of those days, and you need to register for tickets on their website in advance. If you’re a fellow blogger who’s also going, and you want to say hello there or collaborate in some way in relation to it, you’re welcome to get in touch. And if you know others who might want to go, pass it on!

Ok, that’s all I have to say about it, I just felt it deserved a plug. Now let’s crack on with my latest favourites post and video, so you can see what I’ve been up to. I hope you enjoy it!

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An Evening Of Unnecessary Detail

Following my trip to The Comedy Store last week, this Tuesday I went to another comedy club – this time the Backyard Comedy Club in Bethnal Green, for a show called An Evening Of Unnecessary Detail, produced by the team at Festival Of The Spoken Nerd. I’d heard a little bit about them before, so had been curious about going to one of their shows. So when my friend James invited me to go along with him, I happily took up the opportunity.

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Companions, Cuisine, Cinema & Comedy

This has been a fun week, because I got to spend time with some good friends who were visiting London for a few days, one of whom was celebrating their 30th birthday. They packed plenty in to their short break, having planned things out very well beforehand, and they really enjoyed themselves. I didn’t get to spend quite as much time with them as I was hoping to, but I did meet up with them on each of the 3 days they were here. So I thought I’d tell you about it, as we did a variety of fun things!

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Wicked

Just because I said I enjoyed Winter at the Young Vic and looking at the snow recently, it doesn’t mean I want the winter season itself to continue! We’re halfway through March now, so you’d think the spring might make a bit of an effort. But no, we had a bit more snow today, with more due tomorrow! When I’d heard this on the weather during the week, I was worried that it might stop me from going out today. But thankfully it didn’t. What little snow fell in London failed to settle, much to my relief!

So that was great, because today I was able to tick off another big production from my theatre wishlist – Wicked. It’s had loads of awards and gets loads of great reviews, and I already knew a couple of songs from it, so I was really keen to see it. And when the opportunity to book tickets with a touch tour and audio description came up a little while back, I gladly went for it. So I went this afternoon, and in this post I’ll tell you what I thought!

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February 2018 Favourites

Well, what a way to start a new month, with snow all over the place! Winter has seemed very reluctant to let Spring take over, but hopefully things will warm up in the coming weeks now.

And the cold weather didn’t stopped February from being an eventful month. Following on from my January 2018 Favourites, it’s now time to look through what I’ve been enjoying in February. And even though it’s the shortest month, I seem to have packed quite a bit in! So I hope you enjoy this post and video for February.

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Rare Disease Day Photo Challenge

Update (March 1st) – I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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