Glen – Page 40 – Well Eye Never

Living With Nystagmus

Following on from my previous post about Aniridia, I want to use this post to talk about another condition I have – Nystagmus (specifically Congenital Nystagmus, meaning I’ve had it since birth, as I have with Aniridia).

As mentioned in my Aniridia post, I’ve had my visual impairments all my life, so I’m used to them and have adapted to them. They certainly haven’t stopped me living a happy and successful life – and others deal with it very well too, including TV’s Richard Osman. So these posts aren’t intended to be negative. I just want to describe the main effects they have on me.

I’ve also made a video about living with the condition, which may help to explain things further.

Living With Aniridia

There are 2 conditions I’ve had since birth – Aniridia and Nystagmus – and I’ve written a post about each one. They can be frustrating and awkward sometimes, but because I’ve had them all my life, I’m used to them and have adapted to them as best I can. And they haven’t stopped me living a happy and successful life. These posts aren’t intended to be negative. I just want to describe the main effects they have on me.

So in this post, I’m going to discuss Aniridia. I’ve also made a video about it which you may find of interest.

Journal – January 2016 (Guernsey Holiday)

So here we go with another year – hopefully my final one in Devon, as we feel determined to make the move to London happen now after all the delays.

But to start with, 2016 has got off to a fun start, because I’ve visited my best mate in Guernsey again, the first time I’ve seen him since I was Best Man at his wedding last September. These are my first journal entries since that event, as there was nothing else of interest to write about for the last few months of 2015.

So I hope you enjoy reading about my little holiday – including an awkward bus trip, the latest Star Wars film and a games night, among other things – plus a few other updates.

Journal – September 2015 (Guernsey Best Man)

This month has seen a big event that I’ve been looking forward to for a while – my best mate’s wedding in Guernsey, where I was one of two best men with his cousin. It was a wonderful occasion in a beautiful location, and it’s the first time I’ve given a public speech as well. So this post is mainly about that, but I also met another friend the week before, I’ve posted my first ever vlog on Youtube, and there have been one or two things to mention from home too.

So I hope you enjoy going through everything here, including some of the photos and video footage that I was able to capture on my new iPhone 6, and a few other photos that people took of me.

Interacting With Disabled People #EndTheAwkward

This post relates to a video I’ve recorded for Scope’s End The Awkward campaign, giving advice about interacting with disabled people. Scope explain things far better than I do – I’m just giving my own perspective on things here – so I strongly suggest looking at their website and videos. But I hope you enjoy my post on the subject as well.

In general you just need to be friendly and respectful, and treat each disabled person as a person first and foremost, just like you would with anybody you meet. Don’t make assumptions about how they feel or what they can do, be tactful about any questions you ask so you don’t get too personal, and offer to help instead of forcing it on them. And don’t worry if you do make an innocent mistake. These things happen. Nobody’s perfect, and nobody’s expecting you to be. We do understand if you feel awkward around us – all we want to get across is that you don’t need to feel that way. 🙂

Journal – July-August 2015 (Guernsey Stag Do)

Time for another epic set of journal entries. June was quiet, so I haven’t written anything for that month – but July made up for it, as I had another visit to Guernsey for my best mate’s stag do and wedding suit fittings. So there’s a lot to share about that here, as well as my first iPhone for my birthday, a computer repair, lots of nice food, and other bits and pieces. So I hope you enjoy!

Journal – April-May 2015

Time for a couple more journal entries, just one per month on this occasion so I’ve bundled them together. But there’s been plenty going on, including a farewell dinner for a colleague who had recently left, meeting a friend’s new baby, and another visit by our builder to get some work done. So I hope you enjoy!

Journal – March 2015

Welcome to my next set of journal entries. This has been quite an eventful month, including a colleague retiring, electoral work, our builder visiting, a friend’s relationship ending, my best mate’s wedding preparations continuing, and my TV explorations with a new streaming box. So I hope you enjoy!

Journal – January-February 2015 (Guernsey Holiday)

Here we go once again into another year. This looks set to be significantly busier than the last one, in particular because my best mate from Guernsey is getting married, and I’m going to be one of the two best men at his wedding, alongside his cousin.

So these lengthy, detailed entries to start the year are all about my recent trip to see my friend on the island, where I got to meet some of his family members and relatives, had nice walks, ate lots of nice things, watched various TV shows and films, played video games, and even had my first experience of getting properly drunk. And I’ll be travelling over there again a couple more times in the months ahead. So I hope you enjoy reading about it all!

Journal – December 2014

Welcome to my final journal entry of the year. I’ve skipped several months since the last post because it’s been a very uneventful year overall. But things look set to be a lot busier in 2015, with my best mate’s wedding and other stuff. So here’s my Christmas roundup for the time being, with the usual mix of updates about home, work and friends. I know it’s short, but I hope you enjoy!

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