As well as the game nights and my trip to Alexandra Palace that I’ve written about recently, I’ve been doing a lot of other stuff as well. There doesn’t need to be full posts dedicated to every little thing, so I thought I’d group it all together into one long and varied post instead. I’ve broken it up with some photos and video links along the way, but you can see even more on my Youtube and Instagram pages too. Enjoy! 🙂
Happy Aniridia Day! 🙂
Today we’re celebrating people’s achievements and ambitions with Aniridia, as part of the Shining Success campaign, for which I edited a promo video I’m very proud of. There are also Facebook and Twitter pages for the day, where people are sharing their stories, photos and videos to mark the occasion, so please do check them out.
It’s already bringing people together with aniridia who have never met before, and helping to spread a positive message of positivity, support, solidarity and hope for the future. And if you want to find aniridia support groups, the links on my Disability Links page may help.
So this post is my contribution for the day, talking about my own achievements and ambitions, as someone living with aniridia. It’s an adaptation of the transcript of my video for the occasion.
As you may know if you’ve followed me for a while, I have the rare eye condition Aniridia. It basically means I don’t have an iris in my eye, and as that would normally control the size of the pupil, it means I’m more sensitive to natural light and glare than normal people and find it harder to adjust in the dark. I also have nystagmus, which many people with aniridia also have, but I want to talk about aniridia specifically here.
I’ve written about Living With Aniridia before, and posted a video as well, so they should help to explain what it is, at least from my perspective. Plus there are links to organisations connected with Aniridia on my Disability Links page.
So this post relates to that, as it’s about the first ever Aniridia Day that is being held on Wednesday June 21. If you can share this information, or just something like the video, website, Facebook or Twitter pages I’m about to mention, in as many places as possible, it’d be very much appreciated! And please do RT the stuff I keep tweeting and sharing about it on my own Twitter feed as well.
Summer’s here, the weather’s lovely and bright and hot, and so there’s no reason not to go out every weekend to see what the city has to offer. Especially when there are festivals and events on all the time too, there’s always something happening every week. A case in point is a weekend I spent at Alexandra Palace last month, where they had a couple of things going on. I’ll write more about it below, and link to all the videos I created, but here’s the Palace’s own video of highlights:
Today, June 17th, marks my 6-month anniversary as a Londoner already. Half a year living in this great city has flown by, and it only continues to get more interesting and exciting as time goes on, so I haven’t regretted it one little bit. Things here have been keeping me happily occupied for a variety of reasons, which is why I haven’t been writing here frequently. But I wanted to catch-up on some of the things I’ve been doing, and that’s going to need a few posts to get through.
So here I want to talk about a couple of the gaming nights I’ve been on most recently, essentially as a follow-up to the Name Of The Game post I wrote back in April.
When I was looking ahead to my move to London, I was naturally looking online for various things to do with the city. And on Youtube I quickly fell in love with the videos made by Geoff Marshall and Vicki Pipe, which are a joy to watch (it’s important to stress at I’m not affiliated with them, this is all personal opinion only).
You can see their clips on Londonist and Geoff’s own channel, Geofftech. They’ve made videos about secrets of the Underground, the least used stations in the country, facts about London, vlogs and more. So it’s not just about the railways. But it is a big passion of theirs, so a lot of their videos are related to it in some form.
That may sound boring at first, but Geoff and Vicki aren’t trainspotters, and the videos aren’t specifically aimed at trainspotters. You don’t need to be into trains and railways in a big way to enjoy them. These are accessible, fun and informative videos that aren’t nerdy or patronising, looking more closely at a rail network that millions of us take for granted on a daily basis, not considering the history and features that are unique and unusual to each location. They clearly love what they do, and it shows.
And right now, they’re embarking on their most ambitious project yet, called All The Stations, and it’s the reason behind my latest outing this weekend.
Being visually impaired, one of the things I’m naturally keen to do is get to know other people with sight loss in London now that I’ve moved here. And I’ve already met a few such people individually, and have plans to meet others, so I’ve made a good start. But in this past week I took another important step by meeting up with a local social group for people with sight loss for the first time.