Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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2017 Review – Christmas Favourites

Happy New Year everybody! I hope you all had a lovely Christmas, and that 2018 is a joyful and prosperous year for you. 🙂

I’m very much looking forward to the year ahead after an eventful and successful 2017, which you can read about in my 2017 review post. I posted quite a bit over the holiday period in fact, including my entertainment favourites for the year, and a big Christmas Q&A about how I spend Christmas in general, with photos and video footage of me enjoying Christmas as a child. So do go back and check my recent posts if you were busy celebrating and missed them.

For this post I just wanted to quickly bring you up to date with how my Christmas went. I’ve also filmed a video to go with this, which has my general reflections on 2017 as well. If you’ve been following me on Instagram you’ll have seen some of the photos I posted over Christmas – and I’m going to try and make more use of Instagram this year if I can as well. So I hope you enjoy my little Christmas update, tying up the loose ends before I enjoy the year ahead!

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Christmas Q&A

MERRY CHRISTMAS!!! 🙂

I hope everyone’s having a wonderful time, with all the fun and food and festivities that Christmas brings!

If you’re working to keep services and utilities running, or you’re volunteering to help out those less fortunate e.g. the disabled, elderly, homeless, etc, then thank you so much for your efforts and commitment, as you don’t get as much gratitude as you deserve for it.

And if you’re not having a nice Christmas for whatever reason, then you have my sympathies, and I hope you’re able to find some support or company to help get you through the day. There are lots of options if you need someone to talk to.

For me, this Christmas is hugely significant, as it’s my first proper one as a resident of London. So I wanted to mark it with a couple of special posts.

Yesterday, therefore, I made an extensive post about my Christmas music collection, following the advent calendar music posts I’ve been making on social media this month.

And now today’s post is a Christmas Q&A , all about how I celebrate and enjoy Christmas, and I’ve also made a video to go with it. Everyone reading this is welcome to answer the questions as well, I tag everyone who wants to do it. So I hope you enjoy reading my festive posts, and finding out about how I celebrate Christmas!

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My Christmas Music Collection

Back in 2016 I posted extensive lists of my music collection, and have done a few little updates on it since. But the one thing I didn’t get a chance to do last year, because I was moving house over the festive period, was to go through the Christmas music I’ve accumulated over the years.

So now it’s time to rectify that, with an epic feature-length Christmas special of a post, showing you the festive albums and tracks that I have in my collection. Some will be obvious, some probably much less so. And if you’ve followed my Christmas music advent calendar in 2017, you’ll have had a sneak preview of a few of them.

I hope you enjoy digging through it all, and maybe it’ll introduce you to some Christmas music you weren’t previously aware of. My intention is to update this post each year, so if there are any festive tracks or albums you think I should check out, do let me know and I’ll update this post accordingly.

I’ve also found as many of these songs as I can on Youtube and gathered them into a Christmas music playlist, so you can explore and shuffle it all to your heart’s content. Enjoy!

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Christmas With The Stars

This week I finally went to my first concert since moving to London. I’ve been to a few musicals this year, but not an actual concert. And this was in arguably the most iconic concert venue in London – The Royal Albert Hall. I went there with the family in my youth for a Christmas concert, though I don’t remember it now of course. So going to a Christmas concert there this year felt like the first time really. And it was all for a good cause too.

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Victoria & Albert Museum

The Victoria & Albert (V&A) Museum is one of the most well-known and exciting museums in the city, because of the huge variety of fascinating historical objects it holds in its many galleries. So it was one of the places I was really looking forward to visiting when I moved to London.

So I’ve now been there twice this year. I first visited back in April, but never got around to blogging about it at the time. And then I went back again last weekend. The most recent trip is the most significant that I want to talk about, but I’ll briefly fill you in on my first visit too, as it’s a good opportunity to do so.

Chandelier in the main hall of the V&A Museum. It has many curved intertwining tubes with bulbous ends, in a mixture of blue and green colours, forming a teardrop-like shape overall.

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Matilda The Musical

Recently I went to see Matilda The Musical at The Cambridge Theatre in Seven Dials, including a touch tour and audio description, and it was an amazing experience. So in this post I want to tell you a bit about it.
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