Aniridia Day – My Shining Success Story

Happy¬†Aniridia Day! ūüôā

Today we’re celebrating people’s achievements and ambitions with Aniridia, as part of the Shining Success campaign, for which I edited a promo video I’m very proud of. There are also Facebook and Twitter pages for the day, where people are sharing their stories, photos and videos to mark the occasion, so please do check them out.

It’s already bringing people together with aniridia who have never met before, and helping to spread a positive message of positivity, support, solidarity and hope for the future. And if you want to find aniridia support groups, the links on my Disability Links page may help.

So this post is my contribution for the day, talking about my own achievements and ambitions, as someone living with aniridia. This is also available as a video as well.

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Aniridia Day – June 21st – We Need You!

As you may know if you’ve followed me for a while, I have the rare eye condition¬†Aniridia. It basically means I don’t have an iris in my eye, and as that would normally control the size of the pupil, it means I’m more sensitive to natural light and glare than normal people and find it harder to adjust in the dark. I also have nystagmus, which many people with aniridia also have, but I want to talk about aniridia specifically here.

I’ve written about Living With Aniridia¬†before, and posted¬†a video as well, so they should help to explain what it is, at least from my perspective. Plus there are links to organisations connected with Aniridia on my Disability Links page.

So this post relates to that, as it’s about the first ever Aniridia Day¬†that is being held on Wednesday¬†June 21. If you can share this information, or just something like the video, website, Facebook or Twitter pages I’m about to mention, in as many places as possible, it’d be very much appreciated! And please do RT the stuff I keep tweeting and sharing about it on¬†my own Twitter feed¬†as well.

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Springing Into Action

It’s been a couple of months since I last made a post here. So now that Spring is upon us and the weather is improving, I thought I’d do a bit of a catch-up to let you know how things are going, as I have been busy lately. So this is going to be a long mixture of all sorts of things.

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Living With Aniridia (Video Transcript)

This past month I’ve started to make more use of my Youtube channel, and I hope¬†to continue making more videos now I’ve got into my stride a bit. At the moment, the videos are based on my blog posts here, but they’re not direct¬†copies of them. And I know¬†that not everyone will want, or be able, to watch videos.

So I though it would be useful to post the transcripts here as well, as I had them written¬†for captioning purposes anyway. And within the text, I’ll also include descriptions of the visuals, for those who can’t see what’s going on. So here’s the first¬†of my new¬†videos…

Living With Aniridia

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50 Random Facts About Me

This is an idea I’ve seen elsewhere that I thought might¬†be fun to do, so you can find out¬†a bit more about me. A few of these facts you’ll know from elsewhere in my¬†blog, but most¬†I’ve never mentioned here before.

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While¬†looking around Youtube channels and blogs by other visually impaired people, I’ve seen the VIP (Visually Impaired Person) Tag come up numerous times. And thanks to the wonderful¬†Emily Davison from Fashioneyesta, I was finally¬†tagged to do it.

It was originally created by Chatty Chelby, and it’s an interesting way of telling the community about yourself. So I’ve put my answers together in this post, and have also produced a¬†video version¬†too. I hope you enjoy my responses!

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Living with Aniridia

There are 2 conditions¬†I’ve had since birth – Aniridia and Nystagmus – and I’ve written a post about¬†each one. They can¬†be¬†frustrating and awkward¬†sometimes, but because I’ve had them all my life, I’m used to them and have adapted to them as best I can. And they haven’t stopped me living a happy and successful life. So¬†these posts aren’t intended to be negative. I just want to describe¬†the main effects they have on me.

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