How I See (RNIB #HowISee Campaign)

One of the common misconceptions about those of us with visual impairments is that we have no sight at all. It’s as if some people think eyesight is on or off, like flicking a light switch. I’ve had people assume this about me in the past, and have even had people telling others that I’m blind, because they don’t know how to explain it properly.

But the fact is that 93% of people who are registered partially sighted or blind can see something. Every single visually impaired person sees the world in their own unique way, some better than others. It’s a huge spectrum. So don’t assume that a visually impaired person cannot see at all, because 93% of the time you’ll be wrong.

The RNIB are spreading awareness of this simple fact using their #HowISee campaign. They have been asking people to make short videos about how they see, and this is my contribution. It’s had a big reaction on Twitter and Facebook already, so please do feel free to share it and help spread the message.

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Aniridia Day – My Shining Success Story

Happy Aniridia Day! 🙂

Today we’re celebrating people’s achievements and ambitions with Aniridia, as part of the Shining Success campaign, for which I edited a promo video I’m very proud of. There are also Facebook and Twitter pages for the day, where people are sharing their stories, photos and videos to mark the occasion, so please do check them out.

It’s already bringing people together with aniridia who have never met before, and helping to spread a positive message of positivity, support, solidarity and hope for the future. And if you want to find aniridia support groups, the links on my Disability Links page may help.

So this post is my contribution for the day, talking about my own achievements and ambitions, as someone living with aniridia. This is also available as a video as well.

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Aniridia Day – June 21st – We Need You!

As you may know if you’ve followed me for a while, I have the rare eye condition Aniridia. It basically means I don’t have an iris in my eye, and as that would normally control the size of the pupil, it means I’m more sensitive to natural light and glare than normal people and find it harder to adjust in the dark. I also have nystagmus, which many people with aniridia also have, but I want to talk about aniridia specifically here.

I’ve written about Living With Aniridia before, and posted a video as well, so they should help to explain what it is, at least from my perspective. Plus there are links to organisations connected with Aniridia on my Disability Links page.

So this post relates to that, as it’s about the first ever Aniridia Day that is being held on Wednesday June 21. If you can share this information, or just something like the video, website, Facebook or Twitter pages I’m about to mention, in as many places as possible, it’d be very much appreciated! And please do RT the stuff I keep tweeting and sharing about it on my own Twitter feed as well.

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Springing Into Action

It’s been a couple of months since I last made a post here. So now that Spring is upon us and the weather is improving, I thought I’d do a bit of a catch-up to let you know how things are going, as I have been busy lately. So this is going to be a long mixture of all sorts of things.

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50 Random Facts About Me

This is an idea I’ve seen elsewhere that I thought might be fun to do, so you can find out a bit more about me. A few of these facts you’ll know from elsewhere in my blog, but most I’ve never mentioned here before.

Since posting this, I’ve also made a video, which contains some of the same information as this post, but also some different facts as well, so do check it out:

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VIP Tag

While looking around Youtube channels and blogs by other visually impaired people, I’ve seen the VIP (Visually Impaired Person) Tag come up numerous times. And thanks to the wonderful Emily Davison from Fashioneyesta, I was finally tagged to do it.

It was originally created by Chatty Chelby, and it’s an interesting way of telling the community about yourself. So I’ve put my answers together in this post, and have also produced a video version too. I hope you enjoy my responses!

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Living with Aniridia

There are 2 conditions I’ve had since birth – Aniridia and Nystagmus – and I’ve written a post about each one. They can be frustrating and awkward sometimes, but because I’ve had them all my life, I’m used to them and have adapted to them as best I can. And they haven’t stopped me living a happy and successful life. These posts aren’t intended to be negative. I just want to describe the main effects they have on me.

So in this post, I’m going to discuss Aniridia. I’ve also made a video about it which you may find of interest.

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