Time for another monthly update, and it’s fair to say that September was very busy and productive, as well as throwing up one or two surprises, which in turn are paving the way for a very interesting October. There is of course a video to go with this post, and I hope you enjoy this little catch-up as usual!
Even though my abseil for nystagmus research has had to be postponed (it’ll now be on 21st October), nystagmus has still been the big topic this month, because on Saturday I attended the annual Open Day held by the Nystagmus Network.
This was my second time going to this event, following my experience last year when I gave my first public talk. So this year was much more relaxed, because I didn’t have to do anything! And it was a wonderful day, so I thought I’d give an overview of how it went.
Here’s my most recent guest post to share with you all. This time I was interviewed by Chelsey from VI Blind Resources about what it’s like for me to have visually impaired parents. I hope you enjoy reading it! This brings me up to date at the moment, but I have another interview with another blogger coming soon, so keep an eye out for that.
While I’m here, thank you so much to everyone who has donated to my charity abseil and/or shared my tweets about it. It’s all very much appreciated. I’m now up to £765, thanks in particular to an astonishing £250 (plus £62.50 Gift Aid) donation from TV’s own Richard Osman this morning, which I’m still in shock about! That is extremely generous, so massive thanks to you sir! Everyone who has donated is credited on my Thank You page, including quite a few fellow bloggers now.
There are still 3 days to go before the abseil takes place, so if you want to give me your support before then, you can donate at JustGiving.com/WellEyeNever, or in the UK you can also text WENA80 plus a space and your amount to 70070 (e.g. WENA80 £5). You can donate £1, £2, £3, £4, £5 or £10 by text message. Thanks for your support! 🙂
by Chelsey Zumpano
Glin is a fellow Blogger and YouTuber, he’s also visionally impaired, but unlike me he has been raised by parents who also happend to be visionally impaired. So I asked him some questions about what it was like growing up.
1 Do you have the same visual impairment as your parents and either way what is the name/names of it?
I have the same conditions as my mother – aniridia and nystagmus. Aniridia means I don’t have an iris (the coloured circle) in my eye, so my eyes don’t adjust to changes in light properly. As a result, I’m very sensitive to glare and I find it hard to adjust in the dark. Nystagmus means my eyes shake and wobble all the time. This makes it harder for me to focus on things, unless they’re close up or enlarged.
My mother’s sight got a lot worse over…
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Time for another monthly favourites post and video, this time looking back over June. It was a significant month on social media for a few reasons, plus I also got to see 2 theatre shows, went out to a few museums and did a few walking tours in the nice weather. So there’s plenty to mention.
Thank you to everybody for the lovely reactions to my previous post about My Visual Impairment Aids & Gadgets, especially after the RNIB kindly shared it on Facebook and Twitter, where it got a particularly big response. I’m very glad it’s proven so useful, and it’s been great to see other people sharing what they use as a result.
So this post and video is a follow-up to that, looking at the accessibility features and favourite apps I use on my iPhone. I’m not sponsored by anyone to do this or affiliated with any companies mentioned here, I just wanted to share the things that I use and enjoy. So I hope you find this post interesting, and feel free to share the features and apps that you use too.
I use various things to assist me in my day-to-day life as a visually impaired person, just to make things easier or more accessible. It means I can be independent and do many things that normal people do. So in other words, I’m still leading a normal life, it’s just that I do some things a bit differently to people with regular sight.
Naturally my iPhone is a huge help these days, but I’ll talk about the features and apps I use there in a separate post. In the meantime, you can see a list of my apps here, with an older video about them that I’ll update when I do a new post.
So in this post and video I’m going to tell you about various other aids and gadgets that I use, and a few used by my mother as well, as she’s blind. I’m not affiliated with or sponsored by any companies mentioned here, and these are all my own opinions.
So I hope you find this post interesting. And let me know if there are any particular aids or gadgets that you use a lot, or if there’s anything you recommend I should check out.
For the visually impaired and other disabled people, the processes involved in claiming and retaining benefits and support can cause a lot of stress. Some are left feeling that their conditions and needs are not understood by those making the decisions. and by wider society in general for that matter. And there is some truth in that unfortunately. Although awareness is improving, there is still a lot of work to be done.
A new play called Libby’s Eyes is hoping to increase that awareness. It’s written by visually impaired playwright Amy Bethan Evans, and stars visually impaired actress Georgie Morrell as Libby. It’s not often at all that you see a disabled character played by a person with that disability, so that delighted and intrigued me when I heard about the production, as well as the overview of the story itself. So I went to see it on Thursday night with my friend Claire, and I wanted to give you my thoughts on it. Continue reading “Libby’s Eyes”