Time for another monthly update, and it’s fair to say that September was very busy and productive, as well as throwing up one or two surprises, which in turn are paving the way for a very interesting October. There is of course a video to go with this post, and I hope you enjoy this little catch-up as usual!
Here’s my most recent guest post to share with you all. This time I was interviewed by Chelsey from VI Blind Resources about what it’s like for me to have visually impaired parents. I hope you enjoy reading it! This brings me up to date at the moment, but I have another interview with another blogger coming soon, so keep an eye out for that.
While I’m here, thank you so much to everyone who has donated to my charity abseil and/or shared my tweets about it. It’s all very much appreciated. I’m now up to £765, thanks in particular to an astonishing £250 (plus £62.50 Gift Aid) donation from TV’s own Richard Osman this morning, which I’m still in shock about! That is extremely generous, so massive thanks to you sir! Everyone who has donated is credited on my Thank You page, including quite a few fellow bloggers now.
There are still 3 days to go before the abseil takes place, so if you want to give me your support before then, you can donate at JustGiving.com/WellEyeNever, or in the UK you can also text WENA80 plus a space and your amount to 70070 (e.g. WENA80 £5). You can donate £1, £2, £3, £4, £5 or £10 by text message. Thanks for your support! 🙂
by Chelsey Zumpano
Glin is a fellow Blogger and YouTuber, he’s also visionally impaired, but unlike me he has been raised by parents who also happend to be visionally impaired. So I asked him some questions about what it was like growing up.
1 Do you have the same visual impairment as your parents and either way what is the name/names of it?
I have the same conditions as my mother – aniridia and nystagmus. Aniridia means I don’t have an iris (the coloured circle) in my eye, so my eyes don’t adjust to changes in light properly. As a result, I’m very sensitive to glare and I find it hard to adjust in the dark. Nystagmus means my eyes shake and wobble all the time. This makes it harder for me to focus on things, unless they’re close up or enlarged.
My mother’s sight got a lot worse over…
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Thank you to everybody for the lovely reactions to my previous post about My Visual Impairment Aids & Gadgets, especially after the RNIB kindly shared it on Facebook and Twitter, where it got a particularly big response. I’m very glad it’s proven so useful, and it’s been great to see other people sharing what they use as a result.
So this post and video is a follow-up to that, looking at the accessibility features and favourite apps I use on my iPhone. I’m not sponsored by anyone to do this or affiliated with any companies mentioned here, I just wanted to share the things that I use and enjoy. So I hope you find this post interesting, and feel free to share the features and apps that you use too.
I use various things to assist me in my day-to-day life as a visually impaired person, just to make things easier or more accessible. It means I can be independent and do many things that normal people do. So in other words, I’m still leading a normal life, it’s just that I do some things a bit differently to people with regular sight.
Naturally my iPhone is a huge help these days, but I’ll talk about the features and apps I use there in a separate post. In the meantime, you can see a list of my apps here, with an older video about them that I’ll update when I do a new post.
So in this post and video I’m going to tell you about various other aids and gadgets that I use, and a few used by my mother as well, as she’s blind. I’m not affiliated with or sponsored by any companies mentioned here, and these are all my own opinions.
So I hope you find this post interesting. And let me know if there are any particular aids or gadgets that you use a lot, or if there’s anything you recommend I should check out.
I’d love to go on a cruise one day, it’s one of those bucket list items for me. I know a few friends who have done it and enjoyed it, and I love the idea of relaxing in a massive floating hotel… well, they can be entire floating cities in effect… with all the entertainment on board, and visiting a variety of interesting places. One day it’ll happen I’m sure.
But I got a nice taste for it on Saturday, and in particular learned about a lot of the history of it, with the Victoria & Albert Museum’s exhibition Ocean Liners – Speed & Style. This was the last weekend of the exhibition, so I just got around to seeing it before it closed. And I made a new friend in the process. So it was a lovely day, and I thought I’d tell you a bit about it.
May was a lovely month. The weather’s been gorgeous lately, for the most part, and with no major events going on it’s been quite a relaxing few weeks .But there are still various bits and pieces I’ve enjoyed, and want to mention in this latest post and video update. So I hope you find this interesting.
To start with though, I just quickly want to plug a couple of upcoming events in June that will interest some of you. They’re for people all over the world to join in with, not just the UK. The more the merrier really, as it will help to spread vital awareness in both cases.
June 20th will be Nystagmus Awareness Day, which is its new permanent date, having moved from November. This year’s theme is Nystagmus In The Open, where people are being encouraged to do outdoor activities to raise funds and generate awareness. Sue, who runs the Nystagmus Network, is opening her garden for people to visit, for instance. People are also being invited to submit their stories online to show how amazing people with nystagmus are.
June 21st will then be Aniridia Day. This is the second time it’s been held, as it was a big success last year. This year’s awareness campaign is called Aniridia Sight, where we want people with aniridia to share a photo or video of a scene, and describe how they see it through their eyes. So the more people that get involved, the more we can show how varied the vision of people with aniridia is. And then there will hopefully be live webinars too, for people to discuss aniridia related topics e.g. doctors, researchers, people with aniridia, etc. If you’d be interested in doing a webinar on the day, please fill out the form to sign up.
So now that’s out of the way, let me tell you what I’ve been up to in May.
On the 25th and 26th of April I went to the Naidex show for the first time, which was held in the Birmingham NEC. It’s Europe’s biggest event dedicated to disability and independent living, and is full of companies showcasing the latest technology, products and services they have to offer, along with seminars and panel discussions, a mobility test track, a sporting arena for people to try out different activities, a moving and handling lab offering training for healthcare professionals, and more. And it’s completely free to attend, which makes it very worthwhile going to check it all out.
I’d never heard of the event before, so I was very intrigued to see what it was all about. I became aware of it because I was one of various bloggers contacted by Cláudia from the Prysm Group marketing team. As well as telling me about the event, she asked if I wanted to be an ambassador for it – which basically involved me giving them a plug on my social media channels, and they would promote my blog in return. I was happy to do that, given my interest in the event, so that’s what we did. Hence you will have seen me mentioning them every so often over the past month, and they did indeed share the link to my blog on Facebook and Twitter a couple of times as well. I didn’t receive any payments or gifts for it, we were literally just exchanging posts to promote each other.
And the event itself was great, I really enjoyed exploring it over both days. I’ve already written about my travel and hotel stay in another post, so now I want to give you a comprehensive review of the event itself, and tell you about the various companies, products and services that I became aware of. As a result, this is quite a long post, but it is divided into headings if it’s helpful. So I hope you enjoy reading about it!