February 2018 Favourites

Well, what a way to start a new month, with snow all over the place! Winter has seemed very reluctant to let Spring take over, but hopefully things will warm up in the coming weeks now.

And the cold weather didn’t stopped February from being an eventful month. Following on from my January 2018 Favourites, it’s now time to look through what I’ve been enjoying in February. And even though it’s the shortest month, I seem to have packed quite a bit in! So I hope you enjoy this post and video for February.

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Rare Disease Day Photo Challenge

Update (March 1st) I won the challenge, much to my surprise! Thank you so much to Rare Disease UK! It was great fun being involved, because I loved the theme of the campaign, and I really enjoyed seeing other people’s photos. So very well done to all involved. We can all be proud of our efforts to raise awareness during the month! 🙂

Happy Rare Disease Day! 🙂

Today is a wonderful international opportunity to raise awareness of rare diseases, conditions, disabilities, etc, to educate people and highlight the need for greater funding and research. Here in the UK, it’s led by Rare Disease UK. But there are events taking place worldwide, so there will be related organisations in many countries.

1 in 17 people have a rare disease, meaning it’s a lot more common than you might think. So even if you don’t have one yourself, chances are you know somebody who does. And if you do have a rare condition, you’re certainly not alone.

There are over 6,000 rare diseases, affecting over 300 million people worldwide (including 30 million in Europe). That’s a huge number! So this is a day for all of us unusual rarities to get together, along with anyone and everyone who supports us and the cause in any way.

This year, the theme is “Show your rare, show you care”, and everyone can get involved, regardless of whether or they you have a rare disease. So that includes patients, families, carers, medical professionals, policy makers and members of the public.

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Winter at the Young Vic

If you live in the UK like me, you’ll be well aware that we’re getting another blast of winter from the weather gods right now, including some snow. Which is lovely to look at if you don’t have to go travelling in it – yay to being a homeworker! – but on the whole I think we’re all looking forward to spring and some warmer weather more than ever.

But as we’re still in the winter season at the moment, it felt like a very appropriate time to go and see a play called Winter by Jon Fosse, which was on at the Young Vic theatre from the 14th-24th February. Granted, it’s got nothing to do with the weather, but the title and timing is appropriate. And it is quite an unusual play compared to the ones I’ve attended so far. So I wanted to tell you a bit about my experience.

Before I do, there are a couple of important points to note for transparency:

  1. I was among a few visually impaired bloggers very kindly offered complimentary tickets by the theatre to see the show, as they were extending their accessibility services for this production and wanted our feedback. However, all ramblings and opinions here are my own, the theatre have had no input into this post.
  2. This is a spoiler-free review. Although the play’s run at the Young Vic has finished, it will appear in other venues, just it has done in the past. So there’s a chance other people interested in the show will find this post, and I don’t want to ruin anything!

Now that’s sorted, let me tell you how things went last Friday. I hope you enjoy reading about it.

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Beauty & The Beast Pantomime

I’ve wasted no time in getting to the theatre this year. Last week I got a surprise call from Bhavini at East London Vision, asking me if I wanted to join a group that was going to see the Beauty & The Beast pantomime at the Queen’s Theatre, Hornchurch. Of course I said yes, and thankfully was able to get the day off work at short notice, so I went along and joined them. There were some people I knew there from my local group of East London Vision, while a few of the others I hadn’t met before as they’re from a different area. So it was a nice mixture of people. And we all had a lovely time. Oh yes we did! 🙂

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2017 Review – My First Year In London

As I mentioned in a recent blog post, this Christmas marked my first anniversary of moving to London, and 2017 has been an amazing year.

I said it in that post, but it’s worth saying again – thank you so much to everyone I’ve met and interacted with during the year, whether it be in person or online. By reading, liking and sharing my content, leaving comments, asking questions, sending me private messages and emails, giving me opportunities for guest posts and public talks, and even meeting up in person, you’ve helped to make this year a very special one for me. Especially Fashioneyesta, Aniridia Network UK, Nystagmus Network, East London Vision, South East London Vision, Thinking Bob, VocalEyesRNIB, Scope, Life Of A Blind Girl, My Blurred World, Luke Sam Sowden and All The Stations, but also everyone else that I’ve had any kind of contact with during the year.

Everyone has been very positive and supportive, and your involvement has enabled me to start this new chapter in my life with confidence and comfort, and fun and friendship. And for that I’ll always be very grateful. 2017 will forever be one of the most significant and happy of my life, nothing will take that away. I hope everyone else has had a good 2017 too, and I hope 2018 is a very prosperous and Happy New Year for you!

So I wanted to do an overview post, running through the things I’ve been up to in the busiest year of my life to date. It’ll give you a good sense of how things developed, and will allow you to check out any blog posts or videos you may have missed if you only found me relatively recently. You can also check out a comprehensive list of places I’ve visited on my Out & About Adventure page at any time. I also recommend you look back through my Youtube videos, especially my London videos and disability videos as there’s no way I can list everything here. And there are loads of Instagram photos you can enjoy as well. So I hope you enjoy my little journey down a very busy memory lane!

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Christmas Q&A

MERRY CHRISTMAS!!! 🙂

I hope everyone’s having a wonderful time, with all the fun and food and festivities that Christmas brings!

If you’re working to keep services and utilities running, or you’re volunteering to help out those less fortunate e.g. the disabled, elderly, homeless, etc, then thank you so much for your efforts and commitment, as you don’t get as much gratitude as you deserve for it.

And if you’re not having a nice Christmas for whatever reason, then you have my sympathies, and I hope you’re able to find some support or company to help get you through the day. There are lots of options if you need someone to talk to.

For me, this Christmas is hugely significant, as it’s my first proper one as a resident of London. So I wanted to mark it with a special Christmas Q&A , all about how I celebrate and enjoy Christmas. I’ve also made a video to go with it. Everyone reading this is welcome to answer the questions as well, I tag everyone who wants to do it. So I hope you enjoy reading my festive posts, and finding out about how I celebrate Christmas!

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Matilda The Musical

Recently I went to see Matilda The Musical at The Cambridge Theatre in Seven Dials, including a touch tour and audio description, and it was an amazing experience. So in this post I want to tell you a bit about it.
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