On Saturday, I attended the Nystagmus Network‘s Open Day in Birmingham, the first time I’ve ever been to an event of this nature. The only time I’ve previously met a group who share one of my eye conditions was after Sight Village last year, when I got together with a handful of people with aniridia in a coffee shop. And that was wonderful, but this weekend’s event was on a much bigger scale. This time, I was going to a big conference for people with nystagmus with hundreds of people in attendance. And I was very much looking forward to.
However, I was also nervous, because I had been invited to be one of the speakers – making this the first time I would ever give a talk in public about myself. I wrote in my last post about how this came about, and how I prepared for it. So now I want to tell you about the day itself and how it went.
Continue reading “Speaking at the Nystagmus Network Open Day”
This weekend I was invited to attend the Nystagmus Network Open Day in Birmingham. Although I’ve been to things like Sight Village before, where I got to meet a handful of people with aniridia, I’ve never been to a large, dedicated conference for people with the same eye condition to network and find out information. So that in itself was going to be interesting.
But I wasn’t just a regular attendee – I was going to be one of the speakers! So that meant doing another first – publicly talking about myself and my life. This was naturally a daunting prospect, but exciting too. So I agreed to give it a go, it was worth a try.
And I combined this with yet another first – recording a proper travel vlog, the pilot episode of “Glen Cam”! I didn’t film inside the event, but I recorded myself before and after. I’m currently editing it all together, so you’ll be able to see that on my Youtube channel very soon.
But I wanted to write in detail about my experience as well, which I’m going to split over a couple of posts so it doesn’t get too long. I’m then going to publish a written article version of my speech here, and a video version on my Youtube channel, so you can see what I said, and maybe it will give you some inspiration and reassurance too. So I’ve got quite a bit to share!
Continue reading “Preparing For My First Public Talk”
Last night I had my first ever vegetarian meal at the Redemption Bar in Shoreditch. And I had the privilege of dining there in the company of the vivacious Emily Davison from Fashioneyesta, this being our third meeting together. And we had a lovely time.
Emily looked stunning as per usual, and you can see a detailed description and photos of her outfit and makeup in her blog post about the day.
Continue reading “Losing My Veganity”
Although the Open House VocalEyes tours I did last weekend were great fun, the highlight of the weekend came on Sunday evening, when I got to meet the exquisite Emily Davison from Fashioneyesta for the second time. If you missed it, our first meeting was at Knole Park on the August Bank Holiday Monday (which Emily vlogged as well).
This time, the plan was to have something to eat and then go on a Jack The Ripper walking tour. And we had a lovely time.
Continue reading “Fashioneyesta & The Five Murders”
September is proving to be the busiest month of the year so far, and in a good way. So I’m having to do a few posts in quick succession to catch up with various bits and pieces. I’ve already posted about the music and drama day I did a couple of weeks ago, and now I want to tell you a bit about my visits to Guildford and The Royal Academy Of Arts, and my holiday to Guernsey.
Continue reading “Guildford, Matisse & Guernsey”
A couple of weeks ago I went to a music and drama day with East London Vision, at the Theatre Royal in Stratford. I haven’t done either of those things since school, so this was going to be something very different for me. But I felt sure it would be fun and interesting to try it out, especially as I was with a group of people I got on well with. And I was right, it was a really enjoyable day.
Continue reading “Music & Drama Day”
If you’ve been following me for a while, you’ll know that one of my favourite Youtubers is Fashioneyesta, aka Emily Davison. And this Monday I actually got to meet her and spend the day with her, much to my delight. She’s now posted a wonderful vlog of the day on her FashioneyestaExtra channel, so I wanted to blog about it from my own perspective as well.
Continue reading “Meeting Fashioneyesta”